We are taking a pledge, because time is brain Today is International Epilepsy Day, a global epilepsy awareness day held every year on the second Monday in February. It was launched in 2015 and is
For us, 2025 was defined by five moments that, together, moved families closer to answers, support, and better outcomes. 1) We said the quiet part out loud: epilepsy surgery can save lives In
When my son started having seizures just 30 hours after he was born, an MRI a few days later showed us that he had hemimegalencephaly - a massive brain malformation that affected one side
We're actively recruiting parents, primary caregivers, and grandparents of children who have had epilepsy surgery for our second cohort of volunteer parent training. Parent supporters come from a wide range of socioeconomic, cultural,
This Thanksgiving, we're especially grateful for the community of champions who share our resources and support what we do. They help us raise awareness about pediatric epilepsy surgery and fuel our programs for children
Earlier this year, we conducted a community survey where we asked you - the pediatric epilepsy surgery community - what you want us to do: 59% of you responded that you want us to
We know that some members of our community may be experiencing financial hardship that affects their ability to pay for food, shelter, rent, or other necessities right now because of the COVID-19 pandemic.
The U.S. Department of Labor Statistics reports that only 19.1% of persons with disabilities are employed, compared to 65.9% without disabilities. In celebration of National Disability Employment Awareness Month, here are resources for you
There is a lot that goes in the daily lives of children before and after epilepsy surgery that medical experts don’t see or fully understand. Parents and caregivers have a personal, deep understanding of
About caregiving a child with drug-resistant seizures Parents of children with chronic illnesses or disabilities are at a higher risk of parenting stress. Caregiving can put a physical and emotional strain on parents, as
