Epilepsy surgery saves lives

DON’T DELAY

New research shows that children with drug-resistant seizures live longer after epilepsy surgery. The longer your child has seizures, the more devastating the consequences can be. The sooner your child has a surgical evaluation, the sooner you can understand all available treatment options.

It’s time to get informed.

OUR WORK HAS BEEN FEATURED IN:

An infant with dark curly hair and dark brown eyes looks at the camera.

IT’S TIME TO KNOW

Stop searching. Start Learning.

You need to understand the pros and cons of all your options when you’re considering brain surgery for your child. In fact, you’ll need to make a few choices:

  • Whether or not to operate
  • Which surgery to investigate
  • Which surgeon to work with

Don’t worry. We’ll walk you through it.

IT’S TIME FOR SUPPORT

You’re not alone.

Parenting a medically complex child can be lonely. And treating seizures can be costly – especially if you have to travel for a surgical evaluation. We provide emotional and financial support for families before and after surgery.

IT’S TIME TO HELP

You can make a difference.

When so much of your situation is out of your control, it feels great to make a difference in someone else’s life. You can help by sharing your story, providing support to another parent, or making a financial gift.

Is epilepsy surgery right for your child?

Neurosurgery is a big topic. It’s easy to get overwhelmed. But you’ve come to the right place. We’re here to help you understand the risks and benefits of all of your options so you can make an informed decision about whether surgery is the best decision for your child.

OUR IMPACT

Epilepsy is relentless. So are we.

We are a caregiver-led organization with lived experience of the pediatric epilepsy surgery journey.

Over $1.2 million in research funded to understand – and improve – outcomes after pediatric epilepsy surgery

$65,000 in financial aid awarded to families

3,000+ parents supported as they navigate the epilepsy surgery journey for their child

400+ educators trained in the impacts of epilepsy surgery

Fundraising Events

Children in Halloween costumes at Boo Bash event. One child is dressed as a Phillies baseball player, another as a witch, and a character actor dressed as Snow White poses with them. In the background, a life-size Spider-Man cutout and festive Halloween decorations including pumpkins, treat bags, and a 'Trick or Treat' table complete the fun atmosphere.

Give for Hope™️ Boo Bash

October 26, 5:30 pm

Washington, DC

 

Is epilepsy surgery right for your child?

Neurosurgery is a big topic. It’s easy to get overwhelmed. But you’ve come to the right place. We’re here to help you understand the risks and benefits of all of your options so you can make an informed decision about whether surgery is the best decision for your child.

OUR PARTNERS

Epilepsy is complex. So is our network.

We collaborate with high impact organizations who help us serve the entire epilepsy community.

Surgical Evaluation Travel Scholarship

When your child needs multiple days of clinical evaluations, the costs of travel, lodging, and meals can add up quickly. Learn more about our Dreams for Danny travel scholarship.

A doctor reviews images from a recent CT scan

UPCOMING EVENTS

Give for Hope ™ Boo Bash

October 26 @ 5:30 PM - 8:00 PM EDT

What About My Other Kids?

November 6 @ 3:00 PM - 4:00 PM EST

Let’s stay in touch

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