We’re actively recruiting parents, primary caregivers, and grandparents of children who have had epilepsy surgery for our second cohort of volunteer parent training. Parent supporters come from a wide range of socioeconomic, cultural, and linguistic backgrounds. If you meet these primary qualifications and are interested in volunteering for this role, please review our program outline and training requirements, then complete our application below.
about the author
Monika Jones, JD, is our founder and executive director. Her first son, Henry, had a modified lateral hemispherotomy, revision surgery, then true anatomical hemispherectomy to stop seizures caused by total hemimegalencephaly. She is also the principal investigator of the Global Pediatric Epilepsy Surgery Registry, the only parent-reported data collection to understand the developmental trajectory after pediatric epilepsy surgery. You can read her research works at orcid.org/0000-0001-6086-3236.
Upcoming Events
Recent Posts
Stay Connected