Our team of staff, consultants, and volunteers are relentlessly committed to our cause. Meet the people working on the frontlines for our community.

Monika Jones, JD

FOUNDER, EXECUTIVE DIRECTOR

+1-833-675-3335 extension 2

Bio | ORCID 0000-0001-6086-3236

Audrey Vernick

DIRECTOR, PATIENT & FAMILY ADVOCACY

+1-833-675-3335 extension 4

Nicole Murray

DIRECTOR OF DEVELOPMENT

+1-833-675-3335 extension 7

Brittany Carver

ADMINISTRATIVE ASSISTANT

+1-833-675-3335 extension 3

Klajdi Puka, PhD

REGISTRY BIOSTATISTICIAN

+1-833-675-3335

ORCID 0000-0001-7763-988X

Courtney Stone

Volunteer – SPECIAL EVENTS

+1-833-675-3335 extension 6

Julie Lazzara, PhD

Volunteer – CONTRIBUTOR ENGAGEMENT AMBASSADOR

Elaine O’Loughlin, PhD

Volunteer – RESEARCH ASSOCIATE