Coping with Medical Trauma
Raising a child with a complex medical condition changes you forever. I’ve been walking this road for 21 years, ever since my son was an infant with catastrophic, drug-resistant epilepsy. At age two, he
Understanding the Emotional Journey of Parents Of Children With Drug-Resistant Epilepsy
The Often Overlooked Challenge: Parental Mental Health In The Face Of Intractable Epilepsy When a child is diagnosed with drug-resistant epilepsy, the focus is naturally on their health and treatment. However, a recent study
Are you ready to be a parent supporter?
We're actively recruiting parents, primary caregivers, and grandparents of children who have had epilepsy surgery for our second cohort of volunteer parent training. Parent supporters come from a wide range of socioeconomic, cultural,
“Why peer support is important to me”
Cecile Dame and her son earlier this week "I still remember the feeling of entering an endless night after learning the diagnosis of infantile spasms for our son, followed by the despair
Introducing our new parent support program
Talk with a parent who's been there. We are thrilled to launch our new Parent Support Program just in time for Epilepsy Awareness Month. If your child is anywhere on the epilepsy