Ninetee years ago my son needed hemispherotomy as an infant (just three months old) to treat his seizures caused by hemimegalencephaly. My husband and I were desperate for seizure control and terrified of what
Epilepsy surgery saves lives Epilepsy surgery is not a last resort and can be life-saving for children with drug-resistant epilepsy. Recent studies show that surgery can not only control or reduce seizures better than
Life with Half a Brain (2024) is a poignant documentary directed by Ken Kobré that gives us a peek into the lives of children with medication-resistant epilepsy and their journey to hemispherectomy surgery. The film
ES HORA DE INFORMARSE No Pierdas Tiempo Durante muchos años, la cirugía cerebral se veía como la última opción para tratar las convulsiones. Pero eso ya no es así. Hoy en día,
Guest blogger: Elaine O’Loughlin, PhD Our daughter Fiadh (Fia) was diagnosed with infantile spasms at 5.5 months old. While the spasms resolved with steroids, another seizure type quickly emerged: focal tonic seizures. Her seizures
At five months old, my son was diagnosed with infantile spasms (IS)—a rare, catastrophic form of epilepsy. Before his diagnosis, his unusual movements were mistaken for startle reflexes, and his frequent crying was thought
Many parents are surprised to know that there are no mandatory national or international standards which designate the level of expertise needed to qualify a surgeon as an "experienced pediatric epilepsy surgeon." In fact, there
Time is brain. Whether your child is a candidate for one of the many surgeries to treat seizures is important to know as soon as possible. When should
What you need to know It's OK to not understand terms. Ask for plain language, infographics, and repeats. Understand the basics: why this surgery, why now, and what if you
