Programa de Apoyo de Familia a Familia
Puedes conversar con un padre que ha pasado por una cirugía de epilepsia de un hijo. El apoyo que puede brindar el cuidador de una persona con epilepsia es fundamental para
The Sibling Experience: How Epilepsy Surgery Affects Brothers and Sisters
Epilepsy surgery impacts the entire family unit, often placing siblings on a "parallel journey" of emotional stress, increased responsibility, and resilient growth. While the family's main focus is often on the child with epilepsy,
How a child life specialist can help your child before and after epilepsy surgery
This week we're excited to share a guest blog post by Katie Taylor, Certified Child Life Specialist and Founder of Child Life On Call. She recently interviewed Audrey Vernick, our Director of Patient and
Reading with homonymous hemianopia
What you need to know Vision loss from epilepsy surgery can make reading harder, especially when part of the visual field is missing. Homonymous hemianopia may cause skipping words, guessing, or
Sibling Support
“The sibling relationship is unique in that it lasts the longest of all human relationships.” Siblings of children with epilepsy and epilepsy surgery experience this journey in their own
Neurodevelopmental Disorders Before and After Epilepsy Surgery – A Guide for Parents
When my son had a hemispherectomy at age two, it stopped the relentless seizures that had taken over our lives. But years later, I was still searching for answers about his behavior, learning struggles,
Epilepsy surgery saves lives
Epilepsy surgery saves lives Epilepsy surgery is not a last resort and can be life-saving for children with drug-resistant epilepsy. Recent studies show that surgery can not only control or reduce seizures better than
Coping with Medical Trauma
Raising a child with a complex medical condition changes you forever. I’ve been walking this road for 21 years, ever since my son was an infant with catastrophic, drug-resistant epilepsy. At age two, he
How to Navigate a Hospital Stay with Your Child: The Ultimate Survival Guide
The moment you walk into your child’s hospital room, it hits you. The sterile walls, the pungent scent of the hand sanitizer, the beeping monitors, the small hospital bed – it can all feel
Highlights from the 2024 AES Annual Meeting
In December, our team attended the 2024 American Epilepsy Society (AES) Annual Meeting in Los Angeles. This conference gives epilepsy experts and advocates a chance to share research and innovations to improve care for