About caregiving a child with drug-resistant seizures
Parents of children with chronic illnesses or disabilities are at a higher risk of parenting stress. Caregiving can put a physical and emotional strain on parents, as well as healthy siblings and even extended relations like grandparents. Taking care of a child with drug-resistant epilepsy is a high risk factor
for parenting stress.
Stress doesn’t go away even after successful surgery
And, even if the child is seizure-free after epilepsy surgery, parenting stress never normalizes
to the level of parents of neurotypical children.
“In fact, despite successful surgery, parenting stress may even increase. For instance, parents who fostered unrealistic expectations with respect to their child’s cognitive and behavioral functioning after the surgery may be disappointed and may experience increased stress.” From Parenting stress does not normalize after child’s epilepsy surgery. Epilepsy Behav. 2015 Jan;42:147-52.
Read Eileen’s blog about parenting children with neurological challenges here.