Fear the Spasms, Not the Surgery: Hope for Infantile Spasms Fear the Spasms, Not the Surgery: Hope for Infantile SpasmsAudrey Vernick2024-12-05T14:45:13-05:00December 5th, 2024|Community|
Navigating Employment After Epilepsy Surgery Navigating Employment After Epilepsy SurgeryAudrey Vernick2024-10-24T15:12:45-04:00October 16th, 2024|Employment|
The (Almost) Everything List: Your Essential Guide The (Almost) Everything List: Your Essential GuideAudrey Vernick2024-10-09T13:57:12-04:00October 9th, 2024|Resources|
Highlights from Our 2024 Pediatric Epilepsy Surgery Conference Highlights from Our 2024 Pediatric Epilepsy Surgery ConferenceMonika Jones2024-09-03T17:09:05-04:00August 31st, 2024|Community|
Back to School After Epilepsy Surgery: Creating a Snapshot of Your Child Back to School After Epilepsy Surgery: Creating a Snapshot of Your ChildAudrey Vernick2024-08-09T11:40:38-04:00August 9th, 2024|Education|
Why You Need To Understand Central Auditory Processing Disorder After Epilepsy Surgery Why You Need To Understand Central Auditory Processing Disorder After Epilepsy SurgeryAudrey Vernick2024-07-14T10:41:16-04:00July 14th, 2024|Research|
Why Isn’t Epilepsy Surgery Used More Often? Why Isn’t Epilepsy Surgery Used More Often?Julie Lazzara, PhD2024-06-03T20:20:14-04:00May 31st, 2024|Research|
Parents and Educators: Discover Our Essential Guide of Special Education Resources Parents and Educators: Discover Our Essential Guide of Special Education ResourcesAudrey Vernick2024-05-30T10:25:51-04:00May 28th, 2024|Resources|
It’s time for a roadmap of care after hemispherectomy It’s time for a roadmap of care after hemispherectomyMonika Jones2024-06-05T12:05:55-04:00May 25th, 2024|Research|
My Epilepsy Surgery Journey My Epilepsy Surgery JourneyAudrey Vernick2024-05-25T08:33:21-04:00May 20th, 2024|Meet Our Families|
Caregiver Survey – Your Voice Matters! Caregiver Survey – Your Voice Matters!Audrey Vernick2024-04-15T23:15:11-04:00April 15th, 2024|Research|
The harsh reality of disparities in pediatric epilepsy surgery The harsh reality of disparities in pediatric epilepsy surgeryChristina Briscoeabath, MD2024-04-12T08:54:19-04:00April 12th, 2024|Research|
Celebrating Siblings Day – April 10, 2024 Celebrating Siblings Day – April 10, 2024Audrey Vernick2024-04-08T18:23:09-04:00April 8th, 2024|Meet Our Families|
What we learned about dilemmas in genetic testing What we learned about dilemmas in genetic testingAudrey Vernick2024-04-02T16:38:28-04:00April 2nd, 2024|Research|
What we learned about mortality in epilepsy What we learned about mortality in epilepsyAudrey Vernick2024-10-16T08:34:34-04:00March 30th, 2024|Research|
Understanding Memory After Hemispherectomy: Insights and Outcomes Understanding Memory After Hemispherectomy: Insights and OutcomesAditi Dewangan2024-02-18T22:13:34-05:00February 18th, 2024|Research|
The heart of a nanny: Caring for a child with epilepsy The heart of a nanny: Caring for a child with epilepsyJulie Lazzara, PhD2024-02-09T11:41:53-05:00February 9th, 2024|Community|
Understanding the Emotional Journey of Parents Of Children With Drug-Resistant Epilepsy Understanding the Emotional Journey of Parents Of Children With Drug-Resistant EpilepsyJulie Lazzara, PhD2024-01-23T00:43:11-05:00January 4th, 2024|Research|
What we learned at the American Epilepsy Society Meeting What we learned at the American Epilepsy Society MeetingAudrey Vernick2024-01-23T15:07:26-05:00December 20th, 2023|Research|
Welcome the new members of our board of directors Welcome the new members of our board of directorswebsiteadmin2023-11-17T12:57:52-05:00November 17th, 2023|Featured|
Epilepsy surgery can improve health-related quality of life Epilepsy surgery can improve health-related quality of lifeMonika Jones2024-06-10T01:40:08-04:00September 4th, 2023|Research|
Quick Guide to Financial & Medical Resources for Families Quick Guide to Financial & Medical Resources for FamiliesAudrey Vernick2023-06-22T14:42:47-04:00June 22nd, 2023|Resources|
Epilepsy surgery improves survival in children with drug-resistant seizures Epilepsy surgery improves survival in children with drug-resistant seizuresMonika Jones2024-10-16T08:53:55-04:00June 15th, 2023|Research|
Caregiver Supports After Epilepsy Surgery Caregiver Supports After Epilepsy SurgeryAudrey Vernick2024-06-06T16:57:09-04:00May 26th, 2023|Resources|
Epilepsy Awareness Day at Disneyland 2023 Epilepsy Awareness Day at Disneyland 2023Monika Jones2023-05-25T11:19:43-04:00May 25th, 2023|Resources|
Neurology Social Services Network – A Powerful Partnership Neurology Social Services Network – A Powerful PartnershipAudrey Vernick2023-05-11T09:54:53-04:00May 10th, 2023|Resources|
Alert! Medicaid and CHIP Renewals Alert! Medicaid and CHIP RenewalsAudrey Vernick2023-03-24T13:18:36-04:00March 24th, 2023|Financial Assistance|
How Brooklyn met a challenge head-on How Brooklyn met a challenge head-onBrittany Carver2023-03-09T12:29:09-05:00February 27th, 2023|Meet Our Families|
Call for siblings to join our new support program Call for siblings to join our new support programAudrey Vernick2023-02-06T15:33:39-05:00January 18th, 2023|Get Involved|
Study confirms intensive rehabilitation effective years after hemispherectomy Study confirms intensive rehabilitation effective years after hemispherectomyMonika Jones2024-02-12T20:55:26-05:00December 27th, 2022|Research|
What we learned in our Power Hour session about vision after epilepsy surgery What we learned in our Power Hour session about vision after epilepsy surgeryAudrey Vernick2023-01-11T06:54:57-05:00June 1st, 2022|Resources|
How you helped Owen’s parents get answers How you helped Owen’s parents get answerswebsiteadmin2023-02-23T19:16:59-05:00May 2nd, 2022|Financial Assistance|
Power Hour: AAC and Literacy Power Hour: AAC and LiteracyAudrey Vernick2022-04-19T18:12:18-04:00April 18th, 2022|Education|
Our new goal bank will help you navigate your child’s IEP Our new goal bank will help you navigate your child’s IEPAudrey Vernick2023-01-11T08:07:38-05:00February 15th, 2022|Education|
Are you ready to be a parent supporter?Monika Jones2023-01-11T07:33:48-05:00January 24th, 2022|Resources|
“All I wished for was for someone to talk to” “All I wished for was for someone to talk to”websiteadmin2022-01-13T17:42:56-05:00January 10th, 2022|Meet Our Families, Resources|
“Why peer support is important to me” “Why peer support is important to me”websiteadmin2022-01-13T17:43:08-05:00January 4th, 2022|Get Involved, Meet Our Families, Resources|
Sibling reflections: two sisters share their journey Sibling reflections: two sisters share their journeywebsiteadmin2022-01-13T17:43:19-05:00December 13th, 2021|Meet Our Families|
Call for volunteers – sibling support initiative Call for volunteers – sibling support initiativewebsiteadmin2023-01-24T20:29:44-05:00November 15th, 2021|Resources|
Introducing our new parent support programwebsiteadmin2023-01-09T21:25:45-05:00November 9th, 2021|Resources|
Transition to Employment: Adult Agencies You Should Know About! Transition to Employment: Adult Agencies You Should Know About!Audrey Vernick2023-05-07T08:34:08-04:00October 26th, 2021|Transition|
National Disability Employment Awareness Month: Five Tips for Success National Disability Employment Awareness Month: Five Tips for SuccessAudrey Vernick2023-05-07T08:35:24-04:00October 19th, 2021|Transition|
Our best tips for a 504 plan after epilepsy surgery Our best tips for a 504 plan after epilepsy surgeryAudrey Vernick2023-01-11T08:10:38-05:00October 8th, 2021|Education, Resources|
Meet Catherine Flynn, who’s helping lead our sibling support initiative Meet Catherine Flynn, who’s helping lead our sibling support initiativewebsiteadmin2022-01-13T17:43:56-05:00October 8th, 2021|Community, Resources|
Meet Boston: seizure-free and thriving after hemispherectomy Meet Boston: seizure-free and thriving after hemispherectomywebsiteadmin2022-01-13T17:44:08-05:00October 1st, 2021|Meet Our Families|
Announcing our new sibling support initiative Announcing our new sibling support initiativeAudrey Vernick2023-01-09T21:15:45-05:00September 8th, 2021|Resources|
New! Participate in research and help our community New! Participate in research and help our communitywebsiteadmin2022-01-13T17:44:34-05:00August 31st, 2021|Research|
Meet Chantell Ferrin, our family conference Attendee Experience Lead Meet Chantell Ferrin, our family conference Attendee Experience LeadMonika Jones2022-12-27T10:14:22-05:00August 18th, 2021|Community, Resources|
Meet Erin Williamson, our 2022 family conference event chair! Meet Erin Williamson, our 2022 family conference event chair!websiteadmin2022-03-28T19:27:45-04:00July 23rd, 2021|Community, Resources|
How do I get 1:1 support for my child at school?Audrey Vernick2024-01-28T14:51:00-05:00July 12th, 2021|Education|
New program for youth with epilepsy and memory challengesAudrey Vernick2023-01-09T21:16:11-05:00June 30th, 2021|Resources|
Why should I think about an ABLE account? Why should I think about an ABLE account?Audrey Vernick2023-10-23T19:06:14-04:00June 29th, 2021|Financial Planning, Resources|
Understanding the decision-making process around RNS, VNS, and DBSwebsiteadmin2022-01-13T17:42:27-05:00June 16th, 2021|Research|
My Child Is Not Meeting IEP Goals, Now What? My Child Is Not Meeting IEP Goals, Now What?Audrey Vernick2023-01-11T08:15:11-05:00June 14th, 2021|Education|
Launching our free education transition courseAudrey Vernick2023-05-07T08:37:08-04:00May 18th, 2021|Transition|
Announcing our new Power Hour to help answer your questions Announcing our new Power Hour to help answer your questionsAudrey Vernick2023-01-11T08:15:58-05:00April 28th, 2021|Education, Featured, Resources|
Quick guide to financial resources Quick guide to financial resourcesAudrey Vernick2023-01-11T08:18:08-05:00April 21st, 2021|Financial Assistance|
Beginner’s Guide to Extended School Year Services Beginner’s Guide to Extended School Year ServicesAudrey Vernick2023-01-11T08:18:37-05:00April 13th, 2021|Education|
Patient Assistance Programs Patient Assistance ProgramsAudrey Vernick2023-01-11T08:19:29-05:00March 31st, 2021|Financial Assistance|
How to get your child’s IEP revised after evaluation How to get your child’s IEP revised after evaluationAudrey Vernick2023-08-22T06:45:44-04:00March 24th, 2021|Education|
Understanding the importance of assessments in your child’s IEP Understanding the importance of assessments in your child’s IEPAudrey Vernick2023-01-11T08:20:38-05:00March 17th, 2021|Education|
Seven Steps To Build Your Child’s IEP After Epilepsy Surgery Seven Steps To Build Your Child’s IEP After Epilepsy SurgeryAudrey Vernick2023-01-11T08:04:52-05:00March 10th, 2021|Education|
A guide to health care transition after pediatric epilepsy surgery A guide to health care transition after pediatric epilepsy surgeryAudrey Vernick2023-01-11T08:03:02-05:00March 2nd, 2021|Transition|
Tips for compensatory education during the pandemic Tips for compensatory education during the pandemicAudrey Vernick2023-01-11T08:02:39-05:00February 24th, 2021|Education|
Transition and Emergency Planning Transition and Emergency PlanningAudrey Vernick2023-05-07T08:42:41-04:00February 16th, 2021|Transition|
Going to college after pediatric epilepsy surgery Going to college after pediatric epilepsy surgeryAudrey Vernick2023-01-11T08:02:26-05:00February 10th, 2021|Resources|
First community report from our Global Pediatric Epilepsy Surgery Registry First community report from our Global Pediatric Epilepsy Surgery RegistryMonika Jones2023-07-22T22:54:20-04:00February 5th, 2021|Research|
Transitioning to independent living during the pandemic Transitioning to independent living during the pandemicAudrey Vernick2023-05-07T08:43:18-04:00February 4th, 2021|Transition|
Tips for teens and young adults transitioning to employment Tips for teens and young adults transitioning to employmentAudrey Vernick2023-05-07T08:43:51-04:00January 26th, 2021|Transition|
Preparing for college during the pandemic Preparing for college during the pandemicAudrey Vernick2023-01-11T08:02:06-05:00January 19th, 2021|Education|
All aboard! How the brain processes vision after resective epilepsy surgery All aboard! How the brain processes vision after resective epilepsy surgeryMonika Jones2023-01-09T21:19:13-05:00December 30th, 2020|Research|
We’re thankful for our champions We’re thankful for our championsMonika Jones2020-11-25T20:40:45-05:00November 25th, 2020|Get Involved|
Do you need financial aid? Here’s a list of what’s available for you.Audrey Vernick2023-01-09T21:19:28-05:00July 26th, 2020|Financial Assistance|
Apply for our Community of Care grantwebsiteadmin2023-01-09T21:19:36-05:00July 16th, 2020|Featured, Financial Assistance, Resources|
We stand against racism We stand against racismwebsiteadmin2020-09-15T17:06:53-04:00June 8th, 2020|Community|
Announcing our COVID-19 emergency assistance fund Announcing our COVID-19 emergency assistance fundMonika Jones2020-09-15T17:07:21-04:00April 3rd, 2020|Financial Assistance, Resources|
Helpful information for you this World Sight Day Helpful information for you this World Sight DayMonika Jones2024-02-12T12:09:03-05:00October 10th, 2019|Resources|
October is National Disability Employment Awareness Month October is National Disability Employment Awareness MonthMonika Jones2023-10-02T08:06:19-04:00October 4th, 2019|Employment|
Our Response to Netflix Diagnosis, Episode 2: “Second Opinions” Our Response to Netflix Diagnosis, Episode 2: “Second Opinions”Monika Jones2023-02-23T19:12:57-05:00October 1st, 2019|Featured|
Why Sharing Your Child’s Epilepsy Surgery Journey On Social Media Is Not Enough Why Sharing Your Child’s Epilepsy Surgery Journey On Social Media Is Not EnoughMonika Jones2020-09-15T17:10:17-04:00June 21st, 2019|Research|
Individual Education Plans After Epilepsy Surgery Individual Education Plans After Epilepsy Surgerywebsiteadmin2022-01-13T17:49:07-05:00May 24th, 2019|Education, Resources|
Recruiting now for Robocamp 2019!websiteadmin2022-01-13T17:49:18-05:00May 14th, 2019|Rehabilitation, Research|
Managing the toll of caregiving Managing the toll of caregivingMonika Jones2023-09-01T14:28:50-04:00April 16th, 2019|Resources|
Eugene Washington Engagement Award Eugene Washington Engagement AwardMonika Jones2023-02-23T19:00:40-05:00February 14th, 2019|Research|
Free! Functional electric stimulation class this summerwebsiteadmin2022-01-13T17:49:35-05:00July 6th, 2018|Rehabilitation, Resources|
Announcing Robocamp 4.0!Monika Jones2020-09-15T21:26:11-04:00May 11th, 2018|Rehabilitation, Research|
Launching soon – Dreams for Danny: our new surgical evaluation travel scholarship program Launching soon – Dreams for Danny: our new surgical evaluation travel scholarship programwebsiteadmin2023-01-11T07:16:39-05:00March 21st, 2018|Resources|
FUNDRAISE FOR US FUNDRAISE FOR USMonika Jones2018-07-10T18:49:34-04:00November 20th, 2017|Uncategorized|
HELP RESEARCHERS UNDERSTAND VISION AFTER HEMISPHERECTOMYwebsiteadmin2024-12-05T14:59:55-05:00August 14th, 2017|Research|
LEARNING TO READ AFTER HEMISPHERECTOMY LEARNING TO READ AFTER HEMISPHERECTOMYwebsiteadmin2023-01-11T07:19:09-05:00August 15th, 2016|Education, Featured|
MEET PETER BINKLEY – THE NEW LEAD DESIGNER OF THE AIRY ARM MEET PETER BINKLEY – THE NEW LEAD DESIGNER OF THE AIRY ARMMonika Jones2023-01-11T07:34:21-05:00August 11th, 2016|Innovation|
NEW! Travel covered for Robocamp 2.0. Sign up today!Monika Jones2023-01-11T07:35:30-05:00May 16th, 2016|Rehabilitation, Research|
Recruiting now for Robocamp 2.0 and HABIT camp! Recruiting now for Robocamp 2.0 and HABIT camp!Monika Jones2017-06-05T20:03:44-04:00April 16th, 2016|Research|
Airy Arm Candidates Needed! Airy Arm Candidates Needed!Monika Jones2017-06-05T20:08:03-04:00September 28th, 2015|Innovation|
The Airy Arm 1.0: A 3D Printed Hand Exoskeleton For Kids With Hemiplegia The Airy Arm 1.0: A 3D Printed Hand Exoskeleton For Kids With HemiplegiaMonika Jones2023-01-11T07:39:24-05:00May 29th, 2015|Research|
Recruiting for this summer: hand-arm bimanual intensive therapy camp in New York Recruiting for this summer: hand-arm bimanual intensive therapy camp in New YorkMonika Jones2021-11-06T01:14:01-04:00May 15th, 2015|Rehabilitation, Research|
Robocamp @ Rancho Robocamp @ RanchoMonika Jones2023-01-11T07:39:42-05:00November 12th, 2014|Rehabilitation, Research|
The Importance Of Published Research: Why It Matters For Kids With Disabilities The Importance Of Published Research: Why It Matters For Kids With DisabilitiesMonika Jones2023-01-11T07:40:23-05:00October 8th, 2014|Research|
Introducing The Airy Arm – A 3D Printed Exoskeleton For Children With Hemiplegia Introducing The Airy Arm – A 3D Printed Exoskeleton For Children With HemiplegiaMonika Jones2023-01-11T07:42:11-05:00September 29th, 2014|Research|
