Give for Hope Chicago
SEPTEMBER 19, 2025 | CHICAGO, IL Join us for an unforgettable evening of hope Our signature fundraising event has moved to Chicago! Step into history at the International Museum of Surgical Science
Fear the Spasms, Not the Surgery: Hope for Infantile Spasms
At five months old, my son was diagnosed with infantile spasms (IS)—a rare, catastrophic form of epilepsy. Before his diagnosis, his unusual movements were mistaken for startle reflexes, and his frequent crying was thought
Highlights from Our 2024 Pediatric Epilepsy Surgery Conference
Every two years, we host a very special event: a multi-day family conference and scientific meeting. This year, we gathered in Boston from August 1-3, and it was a huge success! With record-breaking attendance
My Epilepsy Surgery Journey
Our guest blogger, Rosin Crosby, had epilepsy surgery as a teen. Now, she leads a rich and fulfilling life. Read her inspiring story. My journey In eighth grade, I was diagnosed with
Celebrating Siblings Day – April 10, 2024
Siblings Day is a global awareness day held on April 10 of each year. It is a special day to celebrate the unique bond between brothers and sisters. This year, we are grateful to
The heart of a nanny: Caring for a child with epilepsy
Meet Ally, a compassionate caregiver whose journey touched our hearts as she helped us care for our son. In this heartfelt narrative, Ally shares her experiences, struggles, and triumphs as she supported our family
How Brooklyn met a challenge head-on
Brooklyn was diagnosed with left temporal lobe cortical dysplasia when she was 7 years old. She took medications for five years, but they were not effective in stopping her seizures. Brooklyn was a candidate
“All I wished for was for someone to talk to”
The Flynn family, Christmas Day 2021 Guest Blog Post: Elizabeth Flynn "About six years ago on a family vacation to Park City, my three-year-old sister Margaret had her first seizure. I can
“Why peer support is important to me”
Cecile Dame and her son earlier this week "I still remember the feeling of entering an endless night after learning the diagnosis of infantile spasms for our son, followed by the despair
Sibling reflections: two sisters share their journey
By: Brooke (13) and Jill (15) Hauser Our sister Katie’s story: For the past 8 years of my life, my little sister Katie has definitely made the most impact. When she was 4 months