Coping with Medical Trauma
Raising a child with a complex medical condition changes you forever. I’ve been walking this road for 21 years, ever since my son was an infant with catastrophic, drug-resistant epilepsy. At age two, he had
How to Navigate a Hospital Stay with Your Child: The Ultimate Survival Guide
The moment you walk into your child’s hospital room, it hits you. The sterile walls, the pungent scent of the hand sanitizer, the beeping monitors, the small hospital bed – it can all feel
The (Almost) Everything List: Your Essential Guide
When your child needs epilepsy surgery, it can feel overwhelming. You may have a lot of questions: What happens next? How do I prepare? And what comes after surgery? We get it! That’s why
Caregiver Survey – Your Voice Matters!
Share your experience and help others We’re proud to partner with the Child Neurology Foundation to conduct a survey to understand caregivers’ experiences raising children with neurologic conditions. This Needs Assessment Survey is designed
Understanding the Emotional Journey of Parents Of Children With Drug-Resistant Epilepsy
The Often Overlooked Challenge: Parental Mental Health In The Face Of Intractable Epilepsy When a child is diagnosed with drug-resistant epilepsy, the focus is naturally on their health and treatment. However, a recent study
Managing the toll of caregiving
About caregiving a child with drug-resistant seizures Parents of children with chronic illnesses or disabilities are at a higher risk of parenting stress. Caregiving can put a physical and emotional strain on parents, as