The Pediatric Epilepsy Surgery Alliance is honored to participate in the Coalition to Cure CHD2 Family and Scientific Conference, taking place June 13–15, 2025, in Westminster, Colorado.

Our Director of Patient and Family Advocacy, Audrey Vernick, will present on two important topics:

Transition to Adult Care: Navigating Educational, Social, and Employment Issues
What does comprehensive life planning look like for individuals with CHD2 and their families? This session will explore the broader transition to adulthood — beyond just healthcare — including education, employment, community access, emotional wellbeing, and support services across the lifespan.

Psychosocial Care for Families
A practical, family-centered discussion focused on supporting both caregivers, siblings, and children living with complex neurological conditions.

The CHD2 conference brings together families, clinicians, and researchers working to advance care and research for this rare genetic epilepsy. Our involvement reflects the mission of The Alliance to support families navigating complex epilepsy, neurodevelopmental challenges, and surgical treatment decisions.

We look forward to connecting with the CHD2 community, sharing valuable resources, and strengthening our collaboration with the team at Children’s Hospital Colorado.

Stay tuned for updates from the conference!