Monika Jones, Founder and Executive Director of the Pediatric Epilepsy Surgery Alliance (PESA) and Principal Investigator of the Global Pediatric Epilepsy Surgery Registry, will present “The Pediatric Epilepsy Surgery Alliance Registry: Hemispherectomy Outcomes” at the
The Pediatric Epilepsy Surgery Alliance is honored to participate in the Coalition to Cure CHD2 Family and Scientific Conference, taking place June 13–15, 2025, in Westminster, Colorado. Our Director of Patient and Family Advocacy, Audrey
Many children with drug-resistant epilepsy (DRE) also have learning, behavior, or attention challenges—but families are often left wondering what’s going on or how to get help. These challenges are sometimes part of something called a
How School Nurses Can Support the Transition to Adulthood for Students with Complex Health Needs Speaker: Audrey Vernick, Megan Carlson Session: Virtual Anytime Sessions (Viewable between July 7, 2025 and October 11th, 2025 The transition
Preparing for adult health care is a significant milestone, especially for teens who have had epilepsy surgery. From managing medications to navigating health insurance, this transition requires planning, advocacy, and the right tools. This Power
Getting ready to send your child back to school? Join us for a special Back to School Power Hour. This open forum is for parents and caregivers of children with drug-resistant epilepsy, epilepsy surgery histories,
Getting ready to send your child back to school? Join us for a special Back to School Power Hour. This open forum is for parents and caregivers of children with drug-resistant epilepsy, epilepsy surgery histories,
The Pediatric Epilepsy Surgery Alliance will be at the 2025 Child Neurology Society Annual Meeting to advocate for families affected by drug-resistant epilepsy. These in-person gatherings are a vital opportunity to engage directly with clinicians,
Drug-resistant epilepsy is relentless. It disrupts daily life, creates uncertainty, and impacts the whole family. Seizures can happen anytime, bringing terrifying moments and constant stress. Even after surgery, challenges often remain: medical side effects, behavior
In an effort to address the unmet needs for increased education for people with epilepsy and their families, we (Sofie’s Journey) have created the Epilepsy Awareness & Education Expo and Epilepsy Awareness Day at Disneyland.
If you're attending the annual meeting of the American Epilepsy Society, please stop by booth #754 to learn how we support families before and after surgery, grab materials for your clinic, or talk about collaboration.
This meeting focuses on one of the weakest links in complex epilepsy care: the transition from pediatric to adult providers for youth with prior epilepsy surgery including neuromodulation devices. When records, imaging, and device data
