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  • Drawing of a chalkboard that says back to school on it.

    Back To School Open Forum

    Virtual Workshop

    Getting ready to send your child back to school? Join us for a special Back to School Power Hour. This open forum is for parents and caregivers of children with drug-resistant epilepsy, epilepsy surgery histories,

  • CSN Annual Conference

    54th CNS Annual Meeting | Charlotte, NC

    The Pediatric Epilepsy Surgery Alliance will be at the 2025 Child Neurology Society Annual Meeting to advocate for families affected by drug-resistant epilepsy. These in-person gatherings are a vital opportunity to engage directly with clinicians,

  • A girl in a blue dress leans against a wooden fence with her brother. The two are smiling at each other.

    Sharing the Sibling Experience: Insights from Adult Siblings

    Virtual

    Drug-resistant epilepsy is relentless. It disrupts daily life, creates uncertainty, and impacts the whole family. Seizures can happen anytime, bringing terrifying moments and constant stress.  Even after surgery, challenges often remain: medical side effects, behavior

  • An adult sibling lays in a hammock and reads from a tablet to her brother who is seated next to her in a wheelchair.

    Sharing the Sibling Experience: Insights from Adult Siblings

      Drug-resistant epilepsy is relentless. It disrupts daily life, creates uncertainty, and impacts the whole family. Seizures can happen anytime, bringing terrifying moments and constant stress. Even after surgery, challenges often remain: medical

  • Epilepsy Awareness Day

    Epilepsy Awareness Day @ Disneyland (EADDL) | Anaheim, CA

    Disneyland Resort Anaheim, CA, United States

    In an effort to address the unmet needs for increased education for people with epilepsy and their families, we (Sofie’s Journey) have created the Epilepsy Awareness & Education Expo and Epilepsy Awareness Day at Disneyland.

  • AES Annual Meeting

    American Epilepsy Society Annual Meeting | Atlanta, GA

    If you're attending the annual meeting of the American Epilepsy Society, please stop by booth #754 to learn how we support families before and after surgery, grab materials for your clinic, or talk about collaboration.

  • Parents with a teenage daughter with intellectual disability

    Seamless Handoffs in Pediatric-to-Adult Epilepsy Surgery Care

    Omni Hotel 190 Marietta St NW, Atlanta, GA, United States

    This meeting focuses on one of the weakest links in complex epilepsy care: the transition from pediatric to adult providers for youth with prior epilepsy surgery including neuromodulation devices. When records, imaging, and device data

  • Purple Day Expo • Orlando, FL

    Learn about about epilepsy surgery and all the resources we offer. The expo hall will include patient advocacy groups from across the country and speakers will cover important topics.

  • Pediatric Epilepsy Surgery Conference and Family Reunion • Round Rock, TX

    Featured
    Kalahari Resort | Texas 3001 Kalahari Boulevard, Round Rock, TX, United States

    If your child has had epilepsy surgery, or may need it, this conference is for you. Learn from some of the world’s top neuro-professionals, educators, researchers, rehabilitation clinicians who will present rich sessions on issues

  • Advancing Pediatric Epilepsy Surgery Conference: Seizure Freedom Starts Early

    Advancing Pediatric Epilepsy Surgery: Seizure Freedom Starts Early | Durham, NC

    JB Duke Hotel, Durham, NC 230 Science Drive, Durham, NC, United States

    Duke Pediatrics and Duke Neurosurgery are hosting their inaugural Advancing Pediatric Epilepsy Surgery Conference. Centered around the theme "Seizure Freedom Starts Early," this two-day professional educational event explores the latest clinical advances in evaluating and

 

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