Epilepsy surgeries that remove or disconnect the temporal lobe, including hemispheric procedures, will result in central auditory processing disorders for the child. This can impact how they hear conversations in noisy environments, learn to read,
Audrey Vernick, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA), will be the keynote speaker at HemiCon Australia 2025, hosted by Hemispherectomy Foundation Australia. Drawing from her personal and professional
Audrey Vernick, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA), will be the keynote speaker at the Hemispherectomy Foundation Australia's HemiCon Australia 2025. Audrey will present “Understanding Medical Trauma and
Monika Jones, Founder and Executive Director of the Pediatric Epilepsy Surgery Alliance (PESA) and Principal Investigator of the Global Pediatric Epilepsy Surgery Registry, will present “The Pediatric Epilepsy Surgery Alliance Registry: Hemispherectomy Outcomes” at the
How School Nurses Can Support the Transition to Adulthood for Students with Complex Health Needs Speaker: Audrey Vernick, Megan Carlson Session: Virtual Anytime Sessions (Viewable between July 7, 2025 and October 11th, 2025 The transition
We are attending the Child Neurology Society Annual Meeting to advocate for families affected by drug-resistant epilepsy. These in-person meetings allow us to engage with clinicians, share community experiences, and collaborate on improving patient care.
In an effort to address the unmet needs for increased education for people with epilepsy and their families, we (Sofie’s Journey) have created the Epilepsy Awareness & Education Expo and Epilepsy Awareness Day at Disneyland.
2025 Special Interest Group (SIG): Psychosocial Comorbidities This SIG provides an understanding of roles Care-Partners play in epilepsy and the impact of caregiving on health and well-being; with emphasis on physical, psychosocial, and economic variables.
