Introducing Our New Special Education Resource Guide! Many of you wonder what kind of accommodations, services, and supports you can request from your child's school, especially when it comes to understanding the outcomes of
Financial help before, during, and after your child's epilepsy surgery Raising a child with complex medical needs can bring various challenges, including financial burdens. You may have to pay for doctor’s visits, hospital stays,
It can be challenging and emotionally overwhelming to raise a child with drug-resistant epilepsy. Caregivers often find themselves navigating a new normal after epilepsy surgery and dealing with many concerns about their child's needs. The
This week, we were invited by Sofie's Journey - the organizers of Epilepsy Awareness Day at Disneyland - to take the lead on planning all the pediatric and adult epilepsy surgery sessions at the
Your Support System Just Got Bigger We are excited to announce our new partnership with Unite Us and the Child Neurology Foundation. This collaboration is designed to connect parents and caregivers with a wide
Spread the word We can present about epilepsy surgery, epilepsy-related education issues, data from our Global Pediatric Epilepsy Surgery Registry, peer support, and other relevant topics to your teams, at conferences, or webinars.
Recently we hosted a Power Hour on Vision After Epilepsy Surgery. Dr. Linda Lawrence, member of our scientific advisory board and a pediatric ophthalmologist who is an expert in brain-based visual impairment as well as
We're actively recruiting parents, primary caregivers, and grandparents of children who have had epilepsy surgery for our second cohort of volunteer parent training. Parent supporters come from a wide range of socioeconomic, cultural,
The Flynn family, Christmas Day 2021 Guest Blog Post: Elizabeth Flynn "About six years ago on a family vacation to Park City, my three-year-old sister Margaret had her first seizure. I can
Cecile Dame and her son earlier this week "I still remember the feeling of entering an endless night after learning the diagnosis of infantile spasms for our son, followed by the despair
