“Why peer support is important to me”
Cecile Dame and her son earlier this week "I still remember the feeling of entering an endless night after learning the diagnosis of infantile spasms for our son, followed by the despair
Call for volunteers – sibling support initiative
"The sibling relationship is unique in that it lasts the longest of all human relationships."* This Epilepsy Awareness Month, we're sharing facts about drug-resistant epilepsy and surgery on our social media channels.
Introducing our new parent support program
Talk with a parent who's been there. We are thrilled to launch our new Parent Support Program just in time for Epilepsy Awareness Month. If your child is anywhere on the epilepsy
Our best tips for a 504 plan after epilepsy surgery
Returning to school after epilepsy surgery can be a challenge, especially because of the diverse and various needs the child may have. Even if the student does not qualify for an IDEA, they
Meet Catherine Flynn, who’s helping lead our sibling support initiative
Today we introduce you to Catherine Flynn who, with Erica Hauser, will serve as a volunteer Sibling Support Lead and help us build our new Sibling Support Program. Both Catherine and Erica reached
Announcing our new sibling support initiative
Siblings of children with chronic medical conditions often grow up with more patience, compassion, and empathy than other children. But they're also at risk for anxiety, guilt, and isolation as well as other challenges.
Meet Chantell Ferrin, our family conference Attendee Experience Lead
Planning for our 2022 family and professional conference is well under way! We'll announce the location soon and are excited to share that Chantell Ferrin, a professional event marketer for Visa, joins our team
Meet Erin Williamson, our 2022 family conference event chair!
In a few weeks, we'll announce the location and dates of our family and professional conference. In the meantime, we're excited to announce the event chair for next year's family conference: meet Erin
New program for youth with epilepsy and memory challenges
As part of our ongoing effort to make sure we address the needs of all the children we serve, we are honored to be part of the Youth Advisory Committee for HOBSCOTCH-Youth, a forthcoming
Why should I think about an ABLE account?
Recently, a young adult who had a big epilepsy surgery when she was a child asked on social media about ABLE accounts. After I pulled together some links and resources for her, I