School can feel like a constant battle—whether your child has an IEP, a 504 Plan, or you’ve chosen to homeschool. In this Power Hour, we’ll kick things off with a quick overview of seizure action plans and our key education resources, then open the floor for real conversation.
This is your space to ask the hard questions, share what’s working (or what isn’t), and connect with other parents who truly get it. Some of us have supportive school teams. Others are fighting for every service. Many of us are simply exhausted and need to know we’re not alone.
Come as you are. No pressure, no judgment—just honest talk, shared experiences, and support from a community that truly understands. You are welcome here whether you’re early in the school journey or preparing for adulthood.
For parents and caregivers of children with drug-resistant epilepsy, epilepsy surgery histories, and complex educational needs.
Note: Our open forum sessions are not recorded to promote open and honest discussion.
Hosted by our Director of Patient and Family Advocacy, Audrey Vernick.
About Power Hour
We understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child.
These workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn.
During the workshops, we’ll cover a variety of topics, including:
- Understanding your child’s needs and the impact it may have on their development;
- Navigating the educational system and finding the right resources for your child;
- Building a support system for yourself and your family;
- Self-care and stress management for parents of children with disabilities
…. and more!
By empowering yourself and your child, you can better advocate for their needs and create a more positive and fulfilling life for both of you.
Power Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment!
Power Hour sessions are brought to you by our corporate sponsor UCB.
We are grateful for their support!