The (Almost) Everything List: Your Essential Guide
When your child needs epilepsy surgery, it can feel overwhelming. You may have a lot of questions: What happens next? How do I prepare? And what comes after surgery? We get it! That’s why
Back to School After Epilepsy Surgery: Creating a Snapshot of Your Child
As the new school year starts, parents of kids who had epilepsy surgery often wonder how to make sure their child gets the right support at school. Even if your child has an IEP
Why You Need To Understand Central Auditory Processing Disorder After Epilepsy Surgery
Lessons I learned from an important neuroaudiology conference As part of my work for the Alliance, I enjoy learning about different conditions to help families in our community understand them. Because of his hemispherectomy,
Parents and Educators: Discover Our Essential Guide of Special Education Resources
Introducing Our New Special Education Resource Guide! Many of you wonder what kind of accommodations, services, and supports you can request from your child's school, especially when it comes to understanding the outcomes of
My Epilepsy Surgery Journey
Our guest blogger, Rosin Crosby, had epilepsy surgery as a teen. Now, she leads a rich and fulfilling life. Read her inspiring story. My journey In eighth grade, I was diagnosed with
Celebrating Siblings Day – April 10, 2024
Siblings Day is a global awareness day held on April 10 of each year. It is a special day to celebrate the unique bond between brothers and sisters. This year, we are grateful to
What we learned about dilemmas in genetic testing
This is part two of our series on lessons learned from our time at the American Epilepsy Society in December 2023. You can read Part 1 here. Families and clinicians have a lot
What we learned about mortality in epilepsy
“This meeting lays bare the true risk of living with epilepsy.” - PAME co-chair Gardiner Lapham I attended my first PAME meeting in 2022. That was a tough meeting, and I cried. Several parent
What we learned at the American Epilepsy Society Meeting
I am excited to share some lessons learned from our time at the American Epilepsy Society earlier this month. This is one of the largest epilepsy meetings in the world, with over 6,000 attendees
Quick Guide to Financial & Medical Resources for Families
Financial help before, during, and after your child's epilepsy surgery Raising a child with complex medical needs can bring various challenges, including financial burdens. You may have to pay for doctor’s visits, hospital stays,