At five months old, my son was diagnosed with infantile spasms (IS)—a rare, catastrophic form of epilepsy. Before his diagnosis, his unusual movements were mistaken for startle reflexes, and his frequent crying was thought
My son had a hemispherectomy as a toddler to stop his seizures, and now, as a young adult, we are navigating the world of adulthood together. He graduated from high school two years ago,
Share your experience and help others We’re proud to partner with the Child Neurology Foundation to conduct a survey to understand caregivers’ experiences raising children with neurologic conditions. This Needs Assessment Survey is designed
Your Support System Just Got Bigger We are excited to announce our new partnership with Unite Us and the Child Neurology Foundation. This collaboration is designed to connect parents and caregivers with a wide
Don’t risk a gap in your Medicaid or CHIP coverage. Get ready to renew now. Your renewal may have been on pause due to the COVID19 pandemic, but it’s making a comeback. Be sure
