We're actively recruiting parents, primary caregivers, and grandparents of children who have had epilepsy surgery for our second cohort of volunteer parent training. Parent supporters come from a wide range of socioeconomic, cultural,
This Thanksgiving, we're especially grateful for the community of champions who share our resources and support what we do. They help us raise awareness about pediatric epilepsy surgery and fuel our programs for children
Earlier this year, we conducted a community survey where we asked you - the pediatric epilepsy surgery community - what you want us to do: 59% of you responded that you want us to
We know that some members of our community may be experiencing financial hardship that affects their ability to pay for food, shelter, rent, or other necessities right now because of the COVID-19 pandemic.
The U.S. Department of Labor Statistics reports that only 19.1% of persons with disabilities are employed, compared to 65.9% without disabilities. In celebration of National Disability Employment Awareness Month, here are resources for you
"We joined the Global Pediatric Epilepsy Surgery Registry to do our part to ensure research in this field continues to gain momentum." E. Williamson (Kinley's mom) There is a lot that
About caregiving a child with drug-resistant seizures Parents of children with chronic illnesses or disabilities are at a higher risk of parenting stress. Caregiving can put a physical and emotional strain on parents, as
We are excited to announce that we have been approved for a $49,960 Patient Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award to convene a meeting in July to better understand the
Six incredible kids get intensive rehab at Rancho Los Amigos.
We estimate that approximately 1,000 -2,000 children in the United States alone have some type of brain surgery to stop seizures every year. Some are just infants at the time of surgery and
