How AI Can Find Hidden Cortical Dysplasia In The Brain
When my son started having seizures just 30 hours after he was born, an MRI a few days later showed us that he had hemimegalencephaly - a massive brain malformation that affected one side
Are you ready to be a parent supporter?
We're actively recruiting parents, primary caregivers, and grandparents of children who have had epilepsy surgery for our second cohort of volunteer parent training. Parent supporters come from a wide range of socioeconomic, cultural,
We’re thankful for our champions
This Thanksgiving, we're especially grateful for the community of champions who share our resources and support what we do. They help us raise awareness about pediatric epilepsy surgery and fuel our programs for children
The Epilepsy Research Benchmarks
Earlier this year, we conducted a community survey where we asked you - the pediatric epilepsy surgery community - what you want us to do: 59% of you responded that you want us to
Announcing our COVID-19 emergency assistance fund
We know that some members of our community may be experiencing financial hardship that affects their ability to pay for food, shelter, rent, or other necessities right now because of the COVID-19 pandemic.
October is National Disability Employment Awareness Month
The U.S. Department of Labor Statistics reports that only 19.1% of persons with disabilities are employed, compared to 65.9% without disabilities. In celebration of National Disability Employment Awareness Month, here are resources for you
Why Sharing Your Child’s Epilepsy Surgery Journey On Social Media Is Not Enough
There is a lot that goes in the daily lives of children before and after epilepsy surgery that medical experts don’t see or fully understand. Parents and caregivers have a personal, deep understanding of
Managing the toll of caregiving
About caregiving a child with drug-resistant seizures Parents of children with chronic illnesses or disabilities are at a higher risk of parenting stress. Caregiving can put a physical and emotional strain on parents, as
Eugene Washington Engagement Award
We are excited to announce that we have been approved for a $49,960 Patient Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award to convene a meeting in July to better understand the
Announcing Robocamp 4.0!
Six incredible kids get intensive rehab at Rancho Los Amigos.