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Life With Half A Brain
Life with Half a Brain (2024) is a poignant documentary directed by Ken Kobré that gives us a peek into the lives of children with medication-resistant epilepsy and their journey to hemispherectomy surgery. The film
Highlights from the 2024 AES Annual Meeting
In December, our team attended the 2024 American Epilepsy Society (AES) Annual Meeting in Los Angeles. This conference gives epilepsy experts and advocates a chance to share research and innovations to improve care for
Fear the Spasms, Not the Surgery: Hope for Infantile Spasms
At five months old, my son was diagnosed with infantile spasms (IS)—a rare, catastrophic form of epilepsy. Before his diagnosis, his unusual movements were mistaken for startle reflexes, and his frequent crying was thought
It’s time for a roadmap of care after hemispherectomy
Important Update on Our Symptom Surveillance After Hemispheric Surgery Initiative When my son, Henry, underwent a functional hemispherectomy at just three months old to stop seizures caused by hemimegalencephaly, I vividly remember being overwhelmed by
Understanding Memory After Hemispherectomy: Insights and Outcomes
Exploring hemispherectomy and its impact on memory Many parents are cautious about allowing their child to have hemispheric surgery because of the potential outcomes such as losing some ability to move, or more importantly,
Study confirms intensive rehabilitation effective years after hemispherectomy
Each summer from 2014 through 2019, we collaborated with Rancho Research Institute on an important research study: Robocamp. This was an intensive rehabilitation camp for children after hemispherectomy surgery. We wanted to understand whether
Our Response to Netflix Diagnosis, Episode 2: “Second Opinions”
On August 16, 2019, Netflix aired a new documentary series Diagnosis. The second episode, titled Second Opinions, features a couple from Queens whose otherwise typically-developing seven-year-old daughter Sadie has started having seizures. Members
Research Library
Welcome to our library The Pediatric Epilepsy Surgery Alliance library includes publications and presentations based on our work in epilepsy surgery research. Our library includes both our own research and research we
Hemispherectomy Surgeries
What you need to know Hemispheric surgeries can significantly reduce or stop seizures. Most children have improved development after hemispheric surgery Unavoidable consequences of surgery include homonymous hemianopia and hemiparesis. About