At five months old, my son was diagnosed with infantile spasms (IS)—a rare, catastrophic form of epilepsy. Before his diagnosis, his unusual movements were mistaken for startle reflexes, and his frequent crying was thought
Important Update on Our Symptom Surveillance After Hemispheric Surgery Initiative When my son, Henry, underwent a functional hemispherectomy at just three months old to stop seizures caused by hemimegalencephaly, I vividly remember being overwhelmed by
Exploring hemispherectomy and its impact on memory Many parents are cautious about allowing their child to have hemispheric surgery because of the potential outcomes such as losing some ability to move, or more importantly,
Each summer from 2014 through 2019, we collaborated with Rancho Research Institute on an important research study: Robocamp. This was an intensive rehabilitation camp for children after hemispherectomy surgery. We wanted to understand whether
On August 16, 2019, Netflix aired a new documentary series Diagnosis. The second episode, titled Second Opinions, features a couple from Queens whose otherwise typically-developing seven-year-old daughter Sadie has started having seizures. Members
Welcome to our library The Pediatric Epilepsy Surgery Alliance library includes publications and presentations based on our work in epilepsy surgery research. Our library includes both our own research and research we
What you need to know Hemispheric surgeries can significantly reduce or stop seizures. Most children have improved development after hemispheric surgery Unavoidable consequences of surgery include homonymous hemianopia and hemiparesis. About
