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The U.S. Department of Labor Statistics reports that only 19.1% of persons with disabilities are employed, compared to 65.9% without disabilities. In celebration of National Disability Employment Awareness Month, here are resources for you
On August 16, 2019, Netflix aired a new documentary series Diagnosis. The second episode, titled Second Opinions, features a couple from Queens whose otherwise typically-developing seven-year-old daughter Sadie has started having seizures. Members
Monika's first son, Henry, was born with total hemimegalencephaly - a rare unilateral brain malformation which caused him to have hundreds of seizures per day shortly after birth. The seizures included infantile spasms, a catastrophic
The proceedings of this meeting were published in December of 2021. See Knowledge gaps for functional outcomes after multilobar resective and disconnective pediatric epilepsy surgery: Conference Proceedings of the Patient-Centered Stakeholder Meeting 2019
Individual education plans (IEPs) can be challenging and confusing, not just for parents, but for school members of the educational team as well. Our new webinar series will walk you through the steps
Our Scientific Advisory Board (SAB) provides guidance and direction for the organization’s research and programs. It plays a key role in guiding and prioritizing research projects and funding, assists with web content, guides, and
This is the privacy policy for The Brain Recovery Project dba Pediatric Epilepsy Surgery Alliance. This website is the property of The Brain Recovery Project dba Pediatric Epilepsy Surgery Alliance. We take the privacy
Many children with temporal lobe epilepsy have seizures that begin in the mesial-basal temporal lobe structures – for example, the hippocampus, amygdala and parahippocampal gyrus. These structures are part of the limbic system, which
Homonymous hemianopia Homonymous hemianopia is a loss of half the central field as well as the entire parafoveal and peripheral field opposite the side of surgery. Homonymous hemianopia is a type of cerebral or
Many parts of the brain control the movements of the eyes (known as oculomotor control) through six muscles on each eyeball. The electrical impulses from the brain to the muscles of
Products E.Z.C. Reader Strips™ – feature a tinted transparent “window” that helps pop print into view. Dark area helps block distractions surrounding targeted words, so eyes are easily guided to the desired print. Highlight
Some children compensate for their visual field loss automatically with various adaptive mechanisms to increase their visual access to the remaining visual field. These adaptive mechanisms include: Unusual head posturing such as head tilt
The child should learn as early as possible to advocate for themselves. This should be part of the Individual Education Plan (IEP). The educational staff should allow the child to say what he/she cannot
Visual processing (or visual perception) describes the brain’s ability to understand and process what the eyes see. Visual processing is comprised of several different parts and includes: Visual Closure
Acuity How sharply and clearly you see is known as visual acuity. A child with 20/20 vision is said to have normal visual acuity - this means that at 20 feet away from an object,
An Introduction To Central Auditory Impairment After Hemispherectomy, Posterior Quadrantic Resection, or Temporal Lobectomy To learn more about hearing after hemispherectomy, download our 15-page guide here. It provides an in-depth review of the various
The IEP team requires current data that accurately describes your child's grade-level performance in all academic areas as well as their functional skills. This is needed to develop a meaningful Present Levels of Academic
"The expeditious diagnosis and treatment of infantile spasms is essential. To the extent that ongoing infantile spasms and hypsarrhythmia pose a significant threat to long‐term development, the greatest harm is believed to be sustained
Understand Hydrocephalus After Epilepsy Surgery At any given time, your brain and spinal cord are bathed in a little less than a half a cup of fluid. This clear and colorless fluid is called cerebrospinal fluid
What do I need to know? A vagus nerve stimulator does not require brain surgery Children who have tried fewer medications before VNS surgery have better results The device is more
Most epilepsy surgeries aim to remove or disconnect regions of the brain where seizures originate. But what if those regions are needed for essential functions like movement or vision? When this happens, surgeons sometimes
What is a corpus callosotomyCorpus callosotomy is a surgical procedure that disconnects the two hemispheres of the brain. It is a safe and effective treatment for many children, but it is not a cure. Corpus
A Step-By-Step Guide to IEPs After Epilepsy Surgery. Early data from our Global Pediatric Epilepsy Surgery Registry shows that almost 90% of children after epilepsy surgery access special education in public
Welcome to the www.epilepsysurgeryalliance.org website (the “Website”), operated by The Brain Recovery Project dba Pediatric Epilepsy Surgery Alliance (“we” or “us”). We are a 501(c)(3) nonprofit organization that enhances the lives of children who need
Taylor Abel, MD - Board Chair Dr. Abel is the Chief of Pediatric Neurosurgery and Chief of Pediatric Epilepsy Surgery at UPMC Children’s Hospital of Pittsburgh. He is uniquely committed to kids who live with
What You Need To Know About Development After Epilepsy Surgery Our vast library of videos, guides, and webinars help you navigate your child's therapies and development after surgery. And because presenters
What you need to know about school after epilepsy surgery It's important to understand the IEP process after epilepsy surgery. Our free school training can help the school team understand the
When a child has epilepsy surgery, school can suddenly feel confusing for families, teachers, and support staff. Our free, online self‑paced school training course helps your child’s educational team understand the day‑to‑day learning, behavior,
LEARN ABOUT THE TESTS Understand all possible surgery options early There are many tests that are done to see which epilepsy surgery is best for your child. The tests are done in
Join the Global Pediatric Epilepsy Surgery Registry The Global Pediatric Epilepsy Surgery registry is a research project that allows families to share their experiences with and without epilepsy surgery in childhood by completing
