Announcing our new Power Hour to help answer your questions
Do you want to learn how to be a better collaborator with your child’s school team and still get the services your child needs? Do you feel frustrated by the IEP process? Confused?
Going to college after pediatric epilepsy surgery
Transitioning to college for a teen who had epilepsy surgery in childhood may seem daunting, but it is possible for many in our community. Here are some tips and resources for young
Apply for our Community of Care grant
The COVID-19 pandemic and changing economy has increased financial anxiety and needs for many members of our community. It has also exposed deep inequities in health care and education across the country, especially
Announcing our COVID-19 emergency assistance fund
We know that some members of our community may be experiencing financial hardship that affects their ability to pay for food, shelter, rent, or other necessities right now because of the COVID-19 pandemic.
Helpful information for you this World Sight Day
Posted October 8, 2019 • Updated October 8, 2020 Today is World Sight Day, a global day of awareness to focus attention on blindness and vision impairment. Here we share some resources for you
Individual Education Plans After Epilepsy Surgery
Individual education plans (IEPs) can be challenging and confusing, not just for parents, but for school members of the educational team as well. Our new webinar series will walk you through the steps
Managing the toll of caregiving
About caregiving a child with drug-resistant seizures Parents of children with chronic illnesses or disabilities are at a higher risk of parenting stress. Caregiving can put a physical and emotional strain on parents, as
Free! Functional electric stimulation class this summer
WHAT IS FUNCTIONAL ELECTRIC STIMULATION? Functional electrical stimulation uses weak electrical impulses to generate body movements in people who have been paralyzed or have significant weakness due to brain injuries, stroke, or other damage
Launching soon – Dreams for Danny: our new surgical evaluation travel scholarship program
Danny on a walk in early March of 2018 Dreams for Danny was created to help families afford travel and lodging to obtain an epilepsy surgery consultation. Launching soon, thanks to
Hydrocephalus after hemispherectomy and other epilepsy surgeries
Understand Hydrocephalus After Epilepsy Surgery At any given time, your brain and spinal cord are bathed in a little less than a half a cup of fluid. This clear and colorless fluid is called cerebrospinal fluid