Every two years, we host a very special event: a multi-day family conference and scientific meeting. This year, we gathered in Boston from August 1-3, and it was a huge success! With record-breaking attendance
Important Update on Our Symptom Surveillance After Hemispheric Surgery Initiative When my son, Henry, underwent a functional hemispherectomy at just three months old to stop seizures caused by hemimegalencephaly, I vividly remember being overwhelmed by
Families enjoying the dance party at our family conference in 2022 Health Related Quality of Life After Pediatric Epilepsy Surgery The #1 goal of any epilepsy surgery is either to stop seizures or reduce
Epilepsy and Long-Term Survival The most frightening fact about epilepsy is that people with epilepsy have a higher chance of dying compared to others their age. It's one of the main reasons we want
This week, we were invited by Sofie's Journey - the organizers of Epilepsy Awareness Day at Disneyland - to take the lead on planning all the pediatric and adult epilepsy surgery sessions at the
Each summer from 2014 through 2019, we collaborated with Rancho Research Institute on an important research study: Robocamp. This was an intensive rehabilitation camp for children after hemispherectomy surgery. We wanted to understand whether
Planning for our 2022 family and professional conference is well under way! We'll announce the location soon and are excited to share that Chantell Ferrin, a professional event marketer for Visa, joins our team
Posted October 8, 2019 • Updated October 8, 2020 Today is World Sight Day, a global day of awareness to focus attention on blindness and vision impairment. Here we share some resources for you
