SAVE THE DATE! REGISTRATION LINK COMING SOON.
Join The Cute Syndrome Foundation and guest speakers from the Pediatric Epilepsy Surgery Alliance (PESA) for an educational webinar on neuromodulation and surgical options for SCN8A-related epilepsy.
In this session, Dr. Nancy McNamara will discuss when families and care teams should consider pediatric epilepsy surgery for genetic epilepsies, focusing on neuromodulation therapies, including Vagus Nerve Stimulation (VNS), Responsive Neurostimulation (RNS), and Deep Brain Stimulation (DBS).
Monika Jones will share PESA’s “Epilepsy Surgery Saves Lives” campaign, along with critical resources, tools, and support programs to help families navigate the surgical journey and empower them every step of the way.
Speakers:
Dr. Nancy McNamara, MD, is the Division Chief of Pediatric Neurology at Corewell Health East. She is a pediatric epileptologist with a specialized focus on pediatric epilepsy surgery and genetic epilepsies. Dr. McNamara serves on the Scientific Advisory Board of the Pediatric Epilepsy Surgery Alliance and works closely with research collaboratives to improve surgical decision-making and functional outcomes for children with drug-resistant epilepsy.
Monika Jones, JD, is the founder and executive director of the Pediatric Epilepsy Surgery Alliance. She serves as principal investigator for the Global Pediatric Epilepsy Surgery Registry. Inspired by her son’s journey with brain surgery in infancy, she founded PESA to ensure families navigating pediatric epilepsy surgery receive comprehensive support, evidence-based resources, and community connections at every step of their journey.