Preparing for adult health care is a significant milestone, especially for teens who have had epilepsy surgery. From managing medications to navigating health insurance, this transition requires planning, advocacy, and the right tools.

This Power Hour will give teens and caregivers practical strategies to support a smooth healthcare transition. Whether your teen has an IEP, a 504 Plan, or needs extra support navigating this major transition, you’ll learn how to build real-world skills that lead to greater health independence.

We’ll cover:

• Transition Planning Tools: How to use IEPs, 504 Plans, and checklists to build medical self-advocacy and independence

• Medical Self-Advocacy: Helping teens learn to talk with doctors, manage medications, and participate in their own care

• Seizure Safety: What young adults need to know about rescue medications and safety plans for school, college, and work

• Legal and Practical Steps: Understanding medical power of attorney, insurance, emergency planning, and the shift to adult providers

• Resources and Support: Access to tools, checklists, and trusted organizations that support teens and families through the transition

This session was adapted from a presentation created for the National Association of School Nurses (NASN), now tailored explicitly for families navigating epilepsy and childhood epilepsy surgery.

Who Should Attend? Teens with epilepsy or other neurological conditions and parents or caregivers supporting their transition to adult health care.

Hosted by: Audrey Vernick, Director of Patient and Family Advocacy, Pediatric Epilepsy Surgery Alliance.

This session is brought to you by our corporate sponsor, UCB.

We are grateful for their support!