The (Almost) Everything List: Your Essential Guide
When your child needs epilepsy surgery, it can feel overwhelming. You may have a lot of questions: What happens next? How do I prepare? And what comes after surgery? We get it! That’s why
Parents and Educators: Discover Our Essential Guide of Special Education Resources
Introducing Our New Special Education Resource Guide! Many of you wonder what kind of accommodations, services, and supports you can request from your child's school, especially when it comes to understanding the outcomes of
Quick Guide to Financial & Medical Resources for Families
Financial help before, during, and after your child's epilepsy surgery Raising a child with complex medical needs can bring various challenges, including financial burdens. You may have to pay for doctor’s visits, hospital stays,
Caregiver Supports After Epilepsy Surgery
It can be challenging and emotionally overwhelming to raise a child with drug-resistant epilepsy. Caregivers often find themselves navigating a new normal after epilepsy surgery and dealing with many concerns about their child's needs.
Epilepsy Awareness Day at Disneyland 2023
This week, we were invited by Sofie's Journey - the organizers of Epilepsy Awareness Day at Disneyland - to take the lead on planning all the pediatric and adult epilepsy surgery sessions at the
Neurology Social Services Network – A Powerful Partnership
Your Support System Just Got Bigger We are excited to announce our new partnership with Unite Us and the Child Neurology Foundation. This collaboration is designed to connect parents and caregivers with a wide
What we learned in our Power Hour session about vision after epilepsy surgery
Recently we hosted a Power Hour on Vision After Epilepsy Surgery. Dr. Linda Lawrence, member of our scientific advisory board and a pediatric ophthalmologist who is an expert in brain-based visual impairment as well as
2024 Pediatric Epilepsy Surgery Conference + Family Reunion
#BetterTogether2024 Surround yourself with people who get it If your child has had epilepsy surgery, or may need it, this conference is for you. Learn from some of the world’s
Are you ready to be a parent supporter?
We're actively recruiting parents, primary caregivers, and grandparents of children who have had epilepsy surgery for our second cohort of volunteer parent training. Parent supporters come from a wide range of socioeconomic, cultural,
“All I wished for was for someone to talk to”
The Flynn family, Christmas Day 2021 Guest Blog Post: Elizabeth Flynn "About six years ago on a family vacation to Park City, my three-year-old sister Margaret had her first seizure. I can
