At five months old, my son was diagnosed with infantile spasms (IS)—a rare, catastrophic form of epilepsy. Before his diagnosis, his unusual movements were mistaken for startle reflexes, and his frequent crying was thought
My son had a hemispherectomy as a toddler to stop his seizures, and now, as a young adult, we are navigating the world of adulthood together. He graduated from high school two years ago,
When your child needs epilepsy surgery, it can feel overwhelming. You may have a lot of questions: What happens next? How do I prepare? And what comes after surgery? We get it! That’s why
As the new school year starts, parents of kids who had epilepsy surgery often wonder how to make sure their child gets the right support at school. Even if your child has an IEP
Why Epilepsy Surgery Is Underused (And What You Should Know) As a parent of a child with epilepsy, you know how heartbreaking seizures can be. You've likely tried different medications, hoping to find the one
Our guest blogger, Rosin Crosby, had epilepsy surgery as a teen. Now, she leads a rich and fulfilling life. Read her inspiring story. My journey In eighth grade, I was diagnosed with
Share your experience and help others We’re proud to partner with the Child Neurology Foundation to conduct a survey to understand caregivers’ experiences raising children with neurologic conditions. This Needs Assessment Survey is designed
