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Power Hour: Making It to Monday – A Conversation on Medical Trauma, Resilience, and Community

Virtual

For parents and caregivers of children with neurological conditions, the emotional impact of medical trauma is often unrecognized but deeply felt. In this insightful event, Jennifer Nunes, author of Making It to Monday, and a panel of parents will explore PTSD, anxiety, burnout, and the importance of trauma-informed care. Discover practical tools for healing and the power of peer support in navigating life after a medical crisis. Hosted in collaboration with the Pediatric Epilepsy Surgery Alliance, the International Alliance for Pediatric Stroke, the Child Neurology Foundation, and the Courageous Parents Network.

Psychosocial Care of Hemispherectomy Families

SeaWorld Resort, Gold Coast, Australia Seaworld Drive, Main Beach, Gold Coast, Queensland, Australia

Audrey Vernick, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA), will be the keynote speaker at HemiCon Australia 2025, hosted by Hemispherectomy Foundation Australia. Drawing from her personal and professional

Understanding Medical Trauma and Hemispherectomy Families

SeaWorld Resort, Gold Coast, Australia Seaworld Drive, Main Beach, Gold Coast, Queensland, Australia

Audrey Vernick, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA), will be the keynote speaker at the Hemispherectomy Foundation Australia's HemiCon Australia 2025. Audrey will present “Understanding Medical Trauma and

Global Pediatric Epilepsy Surgery Registry: Hemispherectomy Outcomes

SeaWorld Resort, Gold Coast, Australia Seaworld Drive, Main Beach, Gold Coast, Queensland, Australia

Monika Jones, Founder and Executive Director of the Pediatric Epilepsy Surgery Alliance (PESA) and Principal Investigator of the Global Pediatric Epilepsy Surgery Registry, will present “The Pediatric Epilepsy Surgery Alliance Registry: Hemispherectomy Outcomes” at the

VIRTUAL NASN2025 | National Association for School Nurses

Virtual

How School Nurses Can Support the Transition to Adulthood for Students with Complex Health Needs Speaker: Audrey Vernick, Megan Carlson Session: Virtual Anytime Sessions (Viewable between July 7, 2025 and October 11th, 2025 The transition

54th CNS Annual Meeting | Charlotte, NC

We are attending the Child Neurology Society Annual Meeting to advocate for families affected by drug-resistant epilepsy. These in-person meetings allow us to engage with clinicians, share community experiences, and collaborate on improving patient care.

Epilepsy Awareness Day @ Disneyland (EADDL) | Anaheim, CA

Disneyland Resort Anaheim, CA, United States

In an effort to address the unmet needs for increased education for people with epilepsy and their families, we (Sofie’s Journey) have created the Epilepsy Awareness & Education Expo and Epilepsy Awareness Day at Disneyland.

American Epilepsy Society (AES) Annual Meeting | Atlanta, GA

2025 Special Interest Group (SIG): Psychosocial Comorbidities This SIG provides an understanding of roles Care-Partners play in epilepsy and the impact of caregiving on health and well-being; with emphasis on physical, psychosocial, and economic variables.

 

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