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2025 Special Interest Group (SIG): Psychosocial Comorbidities
This SIG provides an understanding of roles Care-Partners play in epilepsy and the impact of caregiving on health and well-being; with emphasis on physical, psychosocial, and economic variables. The overall objective is to assist healthcare professionals in supporting caregivers and targeting services toward those most in need. We will elucidate variances in the challenges of the caregiver role across the lifespan. Data surrounding burden, HRQOL, affiliate stigma, and an effective peer support program will be shared. Lived-experience speakers will provide insight into breadth of Care-Partner roles. Moderated discussion will enable thought sharing around Care-Partner well-being and relevant strategic interventions.
AGENDA:
- Whole Person Health in Epilepsy: Prioritizing Care Partner Well-Being, Elaine T. Kiriakopoulos, MD, MPH, MSc
- Stand By Me: Empowering Care Partner Dyads in Epilepsy, Preston Reilly, PhD and Alison Kukla, MPH
- Practical Solutions for Addressing Caregiver Burden in Routine Epilepsy Care, Janelle Wagner, PhD
- Silent Scars: Navigating Medical Trauma as a Parent of a Child Undergoing Epilepsy Surgery, Monika Jones, JD, CNP and Audrey Vernick
- Exploring Care Partner Affiliate Stigma in Epilepsy, Sarah Prieto, PhD
- Meeting the Challenges of Caregiving for Older Adults with Epilepsy, Felicia Chu, MD
- Moderated Panel Discussion