If you’re attending the annual meeting of the American Epilepsy Society, please stop by booth #754 to learn how we support families before and after surgery, grab materials for your clinic, or talk about collaboration. If you are working in pediatric epilepsy, neurosurgery, child neurology, nursing, psychology, or industry, we want to hear what you are seeing in your practice and how we can partner.
How We’re Amplifying the Voice of Our Community at the Meeting
• Audrey Vernick, our Director of Patient and Family Advocacy, and our founder Monika Jones will be presenting at the Psychosocial Comorbidities SIG – Whole-Person Health: Prioritizing Care Partner Well-Being In Epilepsy on Saturday, December 6th at 2:30 pm. We’ll focus on the medical trauma associated with having a child go through epilepsy surgery and what this means for children with drug-resistant epilepsy and their caregivers.
• On Sunday, December 7th, at 6:30 pm where we’ll have a candid conversation about the major gaps in care for children transitioning from pediatric to adult epilepsy surgery care, and what real world solutions may help. We see so many children who have seizures return in early adulthood, many of whom have nuanced cognitive challenges that can make it difficult for them to navigate reoperation or consideration for neuromodulation devices. Thank you Drs. George Ibrahim for moderating this important meeting, Jeffrey Blount taking us through the gaps, and Laura Kirkpatrick for sharing transition of care models that work. To register for this dinner, sign up here.
• On Monday, December 8th, our founder Monika Jones joins the Pediatric State of the Art Symposium: It’s Not Just About Resection – Neuromodulation in Pediatrics. Her talk will help attendees understand the pediatric epilepsy surgery journey. At noon, she will be presenting a poster with Dr. Shaun Hussain, Director of the UCLA Infantile Spasms Project, where they’ll show how delay to diagnosis and delay to epilepsy surgery is correlated with cognitive and speech acquisition delays.