Five moments that mattered in 2025
For us, 2025 was defined by five moments that, together, moved families closer to answers, support, and better outcomes. 1) We said the quiet part out loud: epilepsy surgery can save lives In
Year in Review
36 parents and caregivers received $1,000 each in financial aid A significant obstacle to accessing epilepsy surgery is the financial burden incurred from traveling to specialized epilepsy centers for surgical evaluations, as
Welcome the new members of our board of directors
The Pediatric Epilepsy Surgery Alliance (Alliance) has added four new individuals to its Board of Directors “We are thrilled to welcome these excellent additions to our Board of Directors,” said Matt Flesch, board chair of the
Our Response to Netflix Diagnosis, Episode 2: “Second Opinions”
On August 16, 2019, Netflix aired a new documentary series Diagnosis. The second episode, titled Second Opinions, features a couple from Queens whose otherwise typically-developing seven-year-old daughter Sadie has started having seizures. Members
LEARNING TO READ AFTER HEMISPHERECTOMY
New research highlights the importances of comprehensive reading assessments after hemispherectomy.
Our Team
Our team of staff, consultants, and volunteers are relentlessly committed to our cause. Meet the people working on the frontlines for our community. Monika Jones, JD FOUNDER, EXECUTIVE DIRECTOR