- Does your child have an RNS, VNS, or DBS device implanted to treat drug-resistant epilepsy?
- Are you considering these devices for your child as a treatment after failing anti-epileptic medication?
- Or has your child had unsuccessful epilepsy surgery, and now you’re considering a device?
Please consider participating in a confidential survey to help researchers understand parent and caregiver decision-making around neurotechnologies such as vagus nerve stimulation, deep brain stimulation, and responsive neurostimulation (NeuroPace® RNS System).
To read the full invitation, go to:
Caregiver Decision-Making Study Invitation (English)
TAKE THE SURVEY
about the author
Audrey Vernick is our Director of Patient and Family Advocacy. She is the parent of a child who had hemispherectomy for seizures caused by stroke. She holds a level 2 certification in Special Education Advocacy Training from the Council of Parent Attorneys and Advocates and is certified by The ARC in future planning. She also serves on the International League Against Epilepsy’s Social Work and Social Services Section.