When my son had his first seizure at 8 months old, I had no idea what lay ahead. His diagnosis of infantile spasms led us down a path of relentless seizures, testing, and tough decisions. After two frontal lobe resection surgeries within a year, we finally found hope—but getting there was overwhelming.

Through it all, I searched for answers everywhere—research studies, medical journals, social media groups, and most importantly, other parents who had been through it. The Pediatric Epilepsy Surgery Alliance’s Parent Support Navigator Program gave me a lifeline, helping me feel less alone. Now, I’m here to do the same for other families.

I know how hard it is to process information, ask the right questions, and make impossible decisions. I’m here to listen, share what I’ve learned, and help make this journey a little less isolating. We should all be helping each other and building community.

Languages spoken: English, Russian