THIS EVENT HAS BEEN CANCELLED Join us at the beautiful French Embassy in Washington, DC! This event kicks off our annual Give for Hope™ campaign to benefit Dreams for Danny – our surgical evaluation travel scholarship.
THIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: What about my other kids? Navigating the dynamics of sibling relationships in families of children with pediatric epilepsy When you have a
THIS EVENT HAS OCCURRED. YOU CAN WATCH IT HERE: https://www.youtube.com/watch?v=kp8GfaKYM9E&t=14s In this Power Hour, Growing Together: Navigating the Life Stage Checklist for Families, our Director of Patient and Family Advocacy, Audrey Vernick, walks you
Epilepsy surgery is not a last resort. Join the Pediatric Epilepsy Surgery Alliance in partnership with DEE-P Connections, where Dr. Taylor Abel will present the latest research on the life-saving nature of epilepsy
Epilepsy surgeries that remove or disconnect the temporal lobe, including hemispheric procedures, will result in central auditory processing disorders for the child. This can impact how they hear conversations in noisy environments, learn to read,
For parents and caregivers of children with neurological conditions, the emotional impact of medical trauma is often unrecognized but deeply felt. In this insightful event, Jennifer Nunes, author of Making It to Monday, and a panel of parents will explore PTSD, anxiety, burnout, and the importance of trauma-informed care. Discover practical tools for healing and the power of peer support in navigating life after a medical crisis. Hosted in collaboration with the Pediatric Epilepsy Surgery Alliance, the International Alliance for Pediatric Stroke, the Child Neurology Foundation, and the Courageous Parents Network.
School can feel like a constant battle—whether your child has an IEP, a 504 Plan, or you’ve chosen to homeschool. In this Power Hour, we’ll kick things off with a quick overview of seizure action
Audrey Vernick, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA), will be the keynote speaker at HemiCon Australia 2025, hosted by Hemispherectomy Foundation Australia. Drawing from her personal and professional
Audrey Vernick, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA), will be the keynote speaker at the Hemispherectomy Foundation Australia's HemiCon Australia 2025. Audrey will present “Understanding Medical Trauma and
Monika Jones, Founder and Executive Director of the Pediatric Epilepsy Surgery Alliance (PESA) and Principal Investigator of the Global Pediatric Epilepsy Surgery Registry, will present “The Pediatric Epilepsy Surgery Alliance Registry: Hemispherectomy Outcomes” at the
The Pediatric Epilepsy Surgery Alliance is honored to participate in the Coalition to Cure CHD2 Family and Scientific Conference, taking place June 13–15, 2025, in Westminster, Colorado. Our Director of Patient and Family Advocacy, Audrey
Many children with drug-resistant epilepsy (DRE) also have learning, behavior, or attention challenges—but families are often left wondering what’s going on or how to get help. These challenges are sometimes part of something called a
