Events

Events Search and Views Navigation

Event Views Navigation

Today

  • Power Hour: School Questions Open Forum

    Virtual

    School can feel like a constant battle—whether your child has an IEP, a 504 Plan, or you’ve chosen to homeschool. In this Power Hour, we’ll kick things off with a quick overview of seizure action

  • A silhouette of a family of three against a vibrant sunset sky with mountains in the background. The father is lifting a baby into the air while the mother stands nearby, reaching toward them. The sky is a blend of warm and cool tones, creating a serene and joyful atmosphere.

    Psychosocial Care of Hemispherectomy Families

    SeaWorld Resort, Gold Coast, Australia Seaworld Drive, Main Beach, Gold Coast, Queensland, Australia

    Audrey Vernick, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA), will be the keynote speaker at HemiCon Australia 2025, hosted by Hemispherectomy Foundation Australia. Drawing from her personal and professional

  • A close-up of an adult’s hands gently holding a child’s small hand. The child is wearing a warm, knitted sweater, and the background is softly blurred, creating a sense of comfort, care, and connection.

    Understanding Medical Trauma and Hemispherectomy Families

    SeaWorld Resort, Gold Coast, Australia Seaworld Drive, Main Beach, Gold Coast, Queensland, Australia

    Audrey Vernick, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA), will be the keynote speaker at the Hemispherectomy Foundation Australia's HemiCon Australia 2025. Audrey will present “Understanding Medical Trauma and

  • Global Pediatric Epilepsy Surgery Registry: Hemispherectomy Outcomes

    SeaWorld Resort, Gold Coast, Australia Seaworld Drive, Main Beach, Gold Coast, Queensland, Australia

    Monika Jones, Founder and Executive Director of the Pediatric Epilepsy Surgery Alliance (PESA) and Principal Investigator of the Global Pediatric Epilepsy Surgery Registry, will present “The Pediatric Epilepsy Surgery Alliance Registry: Hemispherectomy Outcomes” at the

  • Coalition to Cure CHD2 Conference graphic

    CHD2 Family & Scientific Conference

    Westin Westminster 10600 Westminster Boulevard, Westminster, CO, United States

    The Pediatric Epilepsy Surgery Alliance is honored to participate in the Coalition to Cure CHD2 Family and Scientific Conference, taking place June 13–15, 2025, in Westminster, Colorado. Our Director of Patient and Family Advocacy, Audrey

  • NASN2025 logo

    How School Nurses Can Support the Transition to Adulthood

    Virtual

    How School Nurses Can Support the Transition to Adulthood for Students with Complex Health Needs Speaker: Audrey Vernick, Megan Carlson Session: Virtual Anytime Sessions (Viewable between July 7, 2025 and October 11th, 2025 The transition

  • A clinic coordinator meets with a mother and teenage daughter to talk through a care plan.

    Preparing Teens and Families for Adult Health Care

    Preparing for adult health care is a significant milestone, especially for teens who have had epilepsy surgery. From managing medications to navigating health insurance, this transition requires planning, advocacy, and the right tools. This Power

  • A green backpack, books, pencils, and an apple are shown as a back-to-school theme.

    Power Hour: Back to School Open Forum

    Virtual

    Getting ready to send your child back to school? Join us for a special Back to School Power Hour. This open forum is for parents and caregivers of children with drug-resistant epilepsy, epilepsy surgery histories,

  • Drawing of a chalkboard that says back to school on it.

    Back To School Open Forum

    Virtual Workshop

    Getting ready to send your child back to school? Join us for a special Back to School Power Hour. This open forum is for parents and caregivers of children with drug-resistant epilepsy, epilepsy surgery histories,

  • CSN Annual Conference

    54th CNS Annual Meeting | Charlotte, NC

    The Pediatric Epilepsy Surgery Alliance will be at the 2025 Child Neurology Society Annual Meeting to advocate for families affected by drug-resistant epilepsy. These in-person gatherings are a vital opportunity to engage directly with clinicians,

  • A girl in a blue dress leans against a wooden fence with her brother. The two are smiling at each other.

    Sharing the Sibling Experience: Insights from Adult Siblings

    Virtual

    Drug-resistant epilepsy is relentless. It disrupts daily life, creates uncertainty, and impacts the whole family. Seizures can happen anytime, bringing terrifying moments and constant stress.  Even after surgery, challenges often remain: medical side effects, behavior

 

PAST EVENTS