This meeting focuses on one of the weakest links in complex epilepsy care: the transition from pediatric to adult providers for youth with prior epilepsy surgery including neuromodulation devices. When records, imaging, and device data are missing or fragmented, adult teams are flying blind, which delays care and increases risk when seizures recur, batteries need replacement, or shunt problems arise.
Pediatric and adult epileptologists, neurologists, neurosurgeons, nurses/APPs, and neuroradiologists will work together on three concrete tasks: practical ways to share imaging, building named pediatric–adult contact partnerships, ideating a usable transfer packet that includes surgical summaries and device details. Participants will leave with a transfer packet template, a first draft of a contact tree that links pediatric and adult points of contact, and one specific action to improve transition processes in their own setting.
Moderated by Dr. George Ibrahim, Abe Bresver Chair in Functional Neurosurgery, The Hospital for Sick Kids
Speakers include Dr. Jeffrey Blount, Raymond J. Harbert Chair in Pediatric Neurosurgery, Children’s of Alabama, and Dr. Laura Kirkpatrick, Director, Epilepsy Transition Clinic, UPMC Children’s Hospital of Pittsburgh.
BY INVITATION ONLY
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