I am excited to share some lessons learned from our time at the American Epilepsy Society earlier this month. This is one of the largest epilepsy meetings in the world, with over 6,000 attendees
Families enjoying the dance party at our family conference in 2022 Health Related Quality of Life After Pediatric Epilepsy Surgery The #1 goal of any epilepsy surgery is either to stop seizures or reduce
Epilepsy and Long-Term Survival The most frightening fact about epilepsy is that people with epilepsy have a higher chance of dying compared to others their age. It's one of the main reasons we want
Each summer from 2014 through 2019, we collaborated with Rancho Research Institute on an important research study: Robocamp. This was an intensive rehabilitation camp for children after hemispherectomy surgery. We wanted to understand whether
Participating in research is a powerful way to help our community understand epilepsy surgery and its effects. We have three research studies for parents, children, and adults in our community. Please consider participating!
Does your child have an RNS, VNS, or DBS device implanted to treat drug-resistant epilepsy? Are you considering these devices for your child as a treatment after failing anti-epileptic medication? Or has your
This first data report reflects data collected from February 2019 - June 30, 2020. It provides an overview of some - not all - of the data in the registry. Future registry reports will break down
EXISTING PATHWAYS HELP CHILDREN PROCESS VISION LIKE THEIR TYPICAL PEERS In children with drug-resistant seizures, resective epilepsy surgery can offer a chance at seizure freedom. However,
Earlier this year, we conducted a community survey where we asked you - the pediatric epilepsy surgery community - what you want us to do: 59% of you responded that you want us to
There is a lot that goes in the daily lives of children before and after epilepsy surgery that medical experts don’t see or fully understand. Parents and caregivers have a personal, deep understanding of
SUBSCRIBE TO OUR MAILING LIST
