“My first experience with epilepsy was at the age of 23 when I became the primary caregiver to my 24-year-old brother with traumatic brain injury. My brother was not the first person with a disability I cared for. At the age of 13, while growing up in Iran, I spent my summers taking care of a younger cousin with muscular Dystrophy. In a way, it seems, I have been training to be an advocate and peer supporter most of my life.
My most important and profound training has been parenting two children with epilepsy and other disabilities. I am passionate about providing peer support to other families so they don’t feel alone on this path. My wish is to empower families to be advocates for their children and to encourage hope and acceptance.”
Languages spoken: English, Farsi