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  • POWER HOUR: Open Forum

    Virtual Workshop

    We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power. If you have to advocate for something for your child, you must understand it. Our Power Hours are designed to help families

  • POWER HOUR: Open Forum

    Virtual Workshop

    We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power. If you have to advocate for something for your child, you must understand it. Our Power Hours are designed to help families

  • POWER HOUR: Open Forum

    Virtual Workshop

    We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power. If you have to advocate for something for your child, you must understand it. Our Power Hours are designed to help families

  • POWER HOUR: Open Forum

    Virtual Workshop

    We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power. If you have to advocate for something for your child, you must understand it. Our Power Hours are designed to help families

  • POWER HOUR: Open Forum

    Virtual Workshop

    We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power. If you have to advocate for something for your child, you must understand it. Our Power Hours are designed to help families

  • Future Planning for Siblings

    Virtual Workshop

    Siblings are often in line to be the default caregiver for their brother or sister with special needs. This webinar will explore what this responsibility means for you and discuss alternative paths available. What can

  • What About My Other Kids?

    Virtual Workshop

    THIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: What about my other kids? Navigating the dynamics of sibling relationships in families of children with pediatric epilepsy When you have a

  • A mother lovingly holds hands with her young daughter, who is seated in a specialized wheelchair. The mother, wearing a black hat and green outfit, gazes warmly at her child, who is dressed in a floral outfit with a white collar and green sweater. The intimate moment reflects a deep bond and care.

    POWER HOUR: Navigating the Life Stage Checklist for Families

    Virtual

    THIS EVENT HAS OCCURRED. YOU CAN WATCH IT HERE: https://www.youtube.com/watch?v=kp8GfaKYM9E&t=14s   In this Power Hour, Growing Together: Navigating the Life Stage Checklist for Families, our Director of Patient and Family Advocacy, Audrey Vernick, walks you

  • A person wearing a deep burgundy satin shirt is leaning against a white curtain with their head bowed and hands clasped together above their head. Their face is partially obscured, conveying an emotional or introspective moment. The background consists of a plain off-white wall, emphasizing the subject’s body language and expression.

    Power Hour: Making It to Monday – A Conversation on Medical Trauma, Resilience, and Community

    Virtual

    For parents and caregivers of children with neurological conditions, the emotional impact of medical trauma is often unrecognized but deeply felt. In this insightful event, Jennifer Nunes, author of Making It to Monday, and a panel of parents will explore PTSD, anxiety, burnout, and the importance of trauma-informed care. Discover practical tools for healing and the power of peer support in navigating life after a medical crisis. Hosted in collaboration with the Pediatric Epilepsy Surgery Alliance, the International Alliance for Pediatric Stroke, the Child Neurology Foundation, and the Courageous Parents Network.

  • A silhouette of a family of three against a vibrant sunset sky with mountains in the background. The father is lifting a baby into the air while the mother stands nearby, reaching toward them. The sky is a blend of warm and cool tones, creating a serene and joyful atmosphere.

    Psychosocial Care of Hemispherectomy Families

    SeaWorld Resort, Gold Coast, Australia Seaworld Drive, Main Beach, Gold Coast, Queensland, Australia

    Audrey Vernick, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA), will be the keynote speaker at HemiCon Australia 2025, hosted by Hemispherectomy Foundation Australia. Drawing from her personal and professional

  • A close-up of an adult’s hands gently holding a child’s small hand. The child is wearing a warm, knitted sweater, and the background is softly blurred, creating a sense of comfort, care, and connection.

    Understanding Medical Trauma and Hemispherectomy Families

    SeaWorld Resort, Gold Coast, Australia Seaworld Drive, Main Beach, Gold Coast, Queensland, Australia

    Audrey Vernick, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA), will be the keynote speaker at the Hemispherectomy Foundation Australia's HemiCon Australia 2025. Audrey will present “Understanding Medical Trauma and

 

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