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  • POWER HOUR: Open Forum

    Virtual Workshop

    We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power. If you have to advocate for something for your child, you must understand it. Our Power Hours are designed to help families

  • Back to School with a 504 Plan or IEP

    Virtual Workshop

    Please join us for a special "back to school" chat as you prepare to return your child to school. We'll begin by sharing information about our key educational resources for children who have epilepsy, epilepsy

  • Future Planning for Siblings

    Virtual Workshop

    Siblings are often in line to be the default caregiver for their brother or sister with special needs. This webinar will explore what this responsibility means for you and discuss alternative paths available. What can

  • What About My Other Kids?

    Virtual Workshop

    THIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: What about my other kids? Navigating the dynamics of sibling relationships in families of children with pediatric epilepsy When you have a

  • A mother lovingly holds hands with her young daughter, who is seated in a specialized wheelchair. The mother, wearing a black hat and green outfit, gazes warmly at her child, who is dressed in a floral outfit with a white collar and green sweater. The intimate moment reflects a deep bond and care.

    POWER HOUR: Navigating the Life Stage Checklist for Families

    Virtual

    THIS EVENT HAS OCCURRED. YOU CAN WATCH IT HERE: https://www.youtube.com/watch?v=kp8GfaKYM9E&t=14s   In this Power Hour, Growing Together: Navigating the Life Stage Checklist for Families, our Director of Patient and Family Advocacy, Audrey Vernick, walks you

  • A person wearing a deep burgundy satin shirt is leaning against a white curtain with their head bowed and hands clasped together above their head. Their face is partially obscured, conveying an emotional or introspective moment. The background consists of a plain off-white wall, emphasizing the subject’s body language and expression.

    Power Hour: Making It to Monday – A Conversation on Medical Trauma, Resilience, and Community

    Virtual

    For parents and caregivers of children with neurological conditions, the emotional impact of medical trauma is often unrecognized but deeply felt. In this insightful event, Jennifer Nunes, author of Making It to Monday, and a panel of parents will explore PTSD, anxiety, burnout, and the importance of trauma-informed care. Discover practical tools for healing and the power of peer support in navigating life after a medical crisis. Hosted in collaboration with the Pediatric Epilepsy Surgery Alliance, the International Alliance for Pediatric Stroke, the Child Neurology Foundation, and the Courageous Parents Network.

  • Power Hour: School Questions Open Forum

    Virtual

    School can feel like a constant battle—whether your child has an IEP, a 504 Plan, or you’ve chosen to homeschool. In this Power Hour, we’ll kick things off with a quick overview of seizure action

  • A clinic coordinator meets with a mother and teenage daughter to talk through a care plan.

    Preparing Teens and Families for Adult Health Care

    Preparing for adult health care is a significant milestone, especially for teens who have had epilepsy surgery. From managing medications to navigating health insurance, this transition requires planning, advocacy, and the right tools. This Power

  • A green backpack, books, pencils, and an apple are shown as a back-to-school theme.

    Power Hour: Back to School Open Forum

    Virtual

    Getting ready to send your child back to school? Join us for a special Back to School Power Hour. This open forum is for parents and caregivers of children with drug-resistant epilepsy, epilepsy surgery histories,

  • Drawing of a chalkboard that says back to school on it.

    Back To School Open Forum

    Virtual Workshop

    Getting ready to send your child back to school? Join us for a special Back to School Power Hour. This open forum is for parents and caregivers of children with drug-resistant epilepsy, epilepsy surgery histories,

  • A girl in a blue dress leans against a wooden fence with her brother. The two are smiling at each other.

    Sharing the Sibling Experience: Insights from Adult Siblings

    Virtual

    Drug-resistant epilepsy is relentless. It disrupts daily life, creates uncertainty, and impacts the whole family. Seizures can happen anytime, bringing terrifying moments and constant stress.  Even after surgery, challenges often remain: medical side effects, behavior

 

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