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THIS EVENT HAS OCCURRED. YOU CAN WATCH IT HERE:
In this Power Hour, Growing Together: Navigating the Life Stage Checklist for Families, our Director of Patient and Family Advocacy, Audrey Vernick, walks you through the “Transition to Adulthood/Life Stage Checklist” step-by-step, breaking down key milestones and actionable steps across critical life stages. From early intervention to adult services, this comprehensive guide empowers families to feel confident as they prepare for transitions, access necessary supports, and advocate effectively.
Then, a fantastic parent panel answers questions and shares their lived experiences. They provide insights into navigating challenges such as coordinating care for adults with disabilities and addressing gaps in resources and support. Their stories offer practical advice and encouragement for families facing similar experiences.
Key resources:
- Transition to Adulthood/Life Stage Checklist
- Slide deck with links
- Resource list with links from Growing Together Power Hour
- Educational Transition For Youth With Neurological Conditions Guide
- Transition Roadmap for Youth with Neurological Conditions
- The (Almost) Everything List
About Power Hour
We understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child.
These workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn.
During the workshops, we’ll cover a variety of topics, including:
- Understanding your child’s needs and the impact it may have on their development;
- Navigating the educational system and finding the right resources for your child;
- Building a support system for yourself and your family;
- Self-care and stress management for parents of children with disabilities
…. and more!
By empowering yourself and your child, you can better advocate for their needs and create a more positive and fulfilling life for both of you.
Power Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment!