What we provide to your patients
- Dreams for Danny Surgical Evaluation Travel Scholarship – helping families access surgical evaluations
- Parent Support Navigators – connecting multi-lingual, trained, experienced parents with those just beginning the surgical journey.
- Educator training and toolkits to support school re-entry, 504 accommodations and services, and IEP planning
- Webinars and plain-language guides on wide range of topics, from hospital stays, trauma, long-term planning, to the transition to adulthood
Family conferences and community
Our biennial family and research conferences are an opportunity for parents, caregivers, extended family – and of course the child – to learn from experts and surround themselves with people who get it.
Our next conference is July 16 – 18, 2026, in Round Rock, Texas.
Learn About Our Resources
Our Director of Patient and Family Advocacy walks you through what we do in this brief video.
Free Brochures and Other Resources
Programs and Resources At-A-Glance
Download our clickable one-sheet document detailing our programs and resources. Email it to your facility’s patient-facing staff to ensure they’re familiar with the support we offer for your families.
Texas conference flyer
Download and print or order (free!) our 2026 conference flyer to share with your patients and families.
Texas Conference Flyer [Printable PDF]
Request Alliance Info
Order our free program and patient registry brochures (English, Spanish), pull-up banners for your waiting area, or request a Zoom call to learn more about how we help your patients’ families.