The image shows three adults standing side by side, smiling for the camera. On the left is a man with a shaved head wearing a dark blue sweater and jeans. In the middle is a younger man wearing a colorful rugby-style shirt with bold horizontal stripes in blue, yellow, and black, along with dark pants. On the right is a woman with curly blonde hair, wearing a black jacket and a gray scarf. All three have their hands in their pockets or resting comfortably. The background features a plain whiteboard, suggesting an indoor setting, possibly a classroom or meeting room. The mood of the image feels friendly and casual.

Our journey began when our son Aaron began having seizures at the age of 8 due to Rasmussen Encephalitis. Many years of failed treatments, denial, avoidance and drug trials eventually resulted in Aaron having a left hemispherectomy in 2012 at the age of 14. I have been actively involved in the Australian Hemispherectomy Foundation since its infancy and know the value of connecting and having support on the hemispherectomy journey.

The hemispherectomy journey was a scary and black time. I could only manage with the contact and support of other parents in a similar situations. Even now, over 10 years post surgery these parents remain my closest confidants, they get me, they get our life struggles and genuinely celebrate the small but significant positives. I wish to assist to ensure all carers have the opportunity to connect with others who have some insight into their difficult reality.