I am the mother of a child who began experiencing infantile spasms at 8 months old and underwent a right hemispherectomy at 17 months. Today, he is 14 years seizure-free and off medication.
Throughout this journey, I have dedicated myself to supporting families facing rare epilepsies and considering epilepsy surgery, particularly in Ibero-America—because no one should have to navigate this path alone. Along the way, I have taken on various roles in both national and international organizations to create meaningful impact and improve the lives of families affected by epilepsy.
Being part of the Parent Support Navigator Program at the Pediatric Epilepsy Surgery Alliance is my way of giving back—just as I was supported 14 years ago by a small email group when no information was available in Spanish. Their guidance gave me strength and clarity during a difficult time, and now I strive to offer the same to families walking this path today.
Languages spoken: Spanish, Portuguese, English
