Stephanie Schaffer | Parent Support Navigators

When my son, Connor, was six, he had a right hemispherectomy to stop relentless seizures caused by an in-utero stroke. The decision was clear, but the recovery was anything but easy. He came home on a feeding tube, had to relearn how to walk and eat, and the seizures didn’t stop immediately. But today, at 21, he’s seizure-free, medication-free, and thriving in a transition program while working at a nonprofit coffee and ice cream shop.

Our journey has included intellectual disability, autism, hemiplegia, vision loss, orthopedic surgeries, and anxiety. I know how overwhelming it can be, but I also know there is hope. I believe every child is capable of more than we often expect, and every behavior has a reason. If sharing our experience can make another family’s path a little easier, I’m here to help.

Languages spoken: English