We estimate that approximately 1,000 -2,000 children in the United States alone have some type of brain surgery to stop seizures every year. Some are just infants at the time of surgery and may face a lifetime of significant challenges. But together we have the power to help them be their best, whatever their best may be.
Join Us. It’s easy.
Our grassroots social media company helps you rally around our goal: to help kids reach their full potential after brain surgery to stop seizures. It’s time this small but mighty community of children receives the attention they deserve. Brain surgery to stop seizures is only the first step in a very long journey.
Join our campaign and share by:
- posting your campaign on social media and asking your friends to donate;
- sending out an email;
- hosting a holiday dinner and ask for a donation to your campaign;
- organizing a company party where colleagues donate online.
It’s that easy. Click on the link below to begin!
about the author
Monika Jones, JD, is our founder and executive director. Her first son, Henry, had a modified lateral hemispherotomy, revision surgery, then true anatomical hemispherectomy to stop seizures caused by total hemimegalencephaly. She is also the principal investigator of the Global Pediatric Epilepsy Surgery Registry, the only parent-reported data collection to understand the developmental trajectory after pediatric epilepsy surgery. You can read her research works at orcid.org/0000-0001-6086-3236.
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