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X-WR-CALNAME:Pediatric Epilepsy Surgery Alliance
X-ORIGINAL-URL:https://epilepsysurgeryalliance.org
X-WR-CALDESC:Events for Pediatric Epilepsy Surgery Alliance
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DTSTART;TZID=America/New_York:20220802T120000
DTEND;TZID=America/New_York:20220802T130000
DTSTAMP:20260702T163100
CREATED:20221012T162832Z
LAST-MODIFIED:20221012T165819Z
UID:17863-1659441600-1659445200@epilepsysurgeryalliance.org
SUMMARY:Power Hour
DESCRIPTION:We have a mantra at The Brain Recovery Project: Knowledge is power. If you have to advocate for something for your child\, you must understand it.\n\nPower Hour is for caregivers advocating for the needs of a child anywhere on the epilepsy surgery journey. Come with any questions about education\, transition to adulthood\, connecting to financial or medical resources\, housing options\, epilepsy surgery\, dealing with postoperative hydrocephalus or shunt issues\, or any other concern. We will have open forums where parents can learn from each other during the session and topic-specific sessions with specialists in the field. Sessions will be monitored by our Director of Patient and Family Advocacy. Power Hour is only for parents or primary caregivers of children (including adult children) who have had or are considering epilepsy surgery.\n\n\nPLEASE NOTE! YOU MUST REGISTER IN ADVANCE!
URL:https://epilepsysurgeryalliance.org/event/power-hour-3/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220721T170000
DTEND;TZID=America/New_York:20220723T220000
DTSTAMP:20260702T163100
CREATED:20220417T113748Z
LAST-MODIFIED:20220417T122414Z
UID:17278-1658422800-1658613600@epilepsysurgeryalliance.org
SUMMARY:Pediatric Epilepsy Surgery Family Conference
DESCRIPTION:If your child has had epilepsy surgery\, or may need it\, this conference is for you. Learn from some of the world’s top neuro-professionals\, educators\, researchers\, rehabilitation clinicians who will present rich sessions on issues related to pediatric epilepsy surgery. \nExhibitors will share their resources for our community and professional childcare is available so that kids have safe and supervised fun. \nJoin hundreds of families from around the world and enjoy two days of learning\, fun\, and fellowship against the backdrop of the spectacular Rocky Mountain range. \nOur conference theme this year is “Together We Climb.” It’s a reminder that even though sometimes obstacles seem insurmountable\, we’re all in this together. \nEarly bird rates end May 1st! Always free for adults who had surgery in childhood and children 4 and under. \nLEARN MORE
URL:https://epilepsysurgeryalliance.org/event/pediatric-epilepsy-surgery-family-conference/
LOCATION:Sheraton Park City\, 1895 Sidewinder Driver\, Park City\, UT\, 84060\, United States
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/04/conference-event.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220714T190000
DTEND;TZID=America/New_York:20220714T200000
DTSTAMP:20260702T163100
CREATED:20221012T162446Z
LAST-MODIFIED:20221012T162446Z
UID:17860-1657825200-1657828800@epilepsysurgeryalliance.org
SUMMARY:Rescue medications for episodes of frequent seizures
DESCRIPTION:You are invited to join a free learning event for people living with episodes of frequent seizures––and for their care partners. You will have the opportunity to learn about managing seizures and the importance of an on-hand seizure rescue. \n\nLearn about episodes of frequent seizures (2 or more seizures in 24 hours that are different from usual seizures) and why you should always carry an on-hand seizure rescue treatment;\nDiscover the importance of having a Seizure Action Plan\, how to create one\, and must-have resources to help along the way.\n\n**This event is in partnership with Neurelis.
URL:https://epilepsysurgeryalliance.org/event/rescue-medications-for-episodes-of-frequent-seizures/
LOCATION:Virtual Workshop
CATEGORIES:General
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/spray.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220622T200000
DTEND;TZID=America/New_York:20220622T210000
DTSTAMP:20260702T163100
CREATED:20221012T162401Z
LAST-MODIFIED:20230316T042250Z
UID:17857-1655928000-1655931600@epilepsysurgeryalliance.org
SUMMARY:Power Hour
DESCRIPTION:We have a mantra at The Brain Recovery Project: Knowledge is power. If you have to advocate for something for your child\, you must understand it.\n\nPower Hour is for caregivers advocating for the needs of a child anywhere on the epilepsy surgery journey. Come with any questions about education\, transition to adulthood\, connecting to financial or medical resources\, housing options\, epilepsy surgery\, dealing with postoperative hydrocephalus or shunt issues\, or any other concern. We will have open forums where parents can learn from each other during the session and topic-specific sessions with specialists in the field. Sessions will be monitored by our Director of Patient and Family Advocacy. Power Hour is only for parents or primary caregivers of children (including adult children) who have had or are considering epilepsy surgery.\n\n\nPLEASE NOTE! YOU MUST REGISTER IN ADVANCE!
URL:https://epilepsysurgeryalliance.org/event/power-hour-2/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220608T120000
DTEND;TZID=America/New_York:20220608T130000
DTSTAMP:20260702T163100
CREATED:20220602T204044Z
LAST-MODIFIED:20230316T042216Z
UID:17482-1654689600-1654693200@epilepsysurgeryalliance.org
SUMMARY:Power Hour
DESCRIPTION:We have a mantra at The Brain Recovery Project: Knowledge is power. If you have to advocate for something for your child\, you must understand it.\n\nPower Hour is for caregivers advocating for the needs of a child anywhere on the epilepsy surgery journey. Come with any questions about education\, transition to adulthood\, connecting to financial or medical resources\, housing options\, epilepsy surgery\, dealing with postoperative hydrocephalus or shunt issues\, or any other concern. We will have open forums where parents can learn from each other during the session and topic-specific sessions with specialists in the field. Sessions will be monitored by our Director of Patient and Family Advocacy. Power Hour is only for parents or primary caregivers of children (including adult children) who have had or are considering epilepsy surgery.\n\n\nPLEASE NOTE! YOU MUST REGISTER IN ADVANCE!
URL:https://epilepsysurgeryalliance.org/event/power-hour/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220513T080000
DTEND;TZID=America/New_York:20220515T235900
DTSTAMP:20260702T163100
CREATED:20220417T123510Z
LAST-MODIFIED:20220418T155005Z
UID:17291-1652428800-1652659140@epilepsysurgeryalliance.org
SUMMARY:EpiCon
DESCRIPTION:EpiCon is a new\, national event hosted by the Epilepsy Foundation: “Connect with influencers\, learn from world-renowned experts\, join in candid discussions and engage in a variety of on-hands exhibits. Come meet new friends and create community with the people you care about.” From the EpiCon web page. \nOur founder\, Monika Jones\, will be part of two presentations: \n\nWhen Medication Doesn’t Work: Epilepsy Surgery Advancements and Options\nAfter High School\, What’s Next?: Exploring Young Adult Options In Education\, Employment\, and Living\n\nAges 18 and over only. \nLearn More
URL:https://epilepsysurgeryalliance.org/event/epicon/
LOCATION:Gaylord Opryland Hotel\, 2800 Opryland Drive\, Nashville\, TN\, 37214\, United States
CATEGORIES:General
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/04/Nashville.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220509T120000
DTEND;TZID=America/New_York:20220509T130000
DTSTAMP:20260702T163100
CREATED:20220417T121821Z
LAST-MODIFIED:20220417T122156Z
UID:17282-1652097600-1652101200@epilepsysurgeryalliance.org
SUMMARY:Safety Devices In Epilepsy
DESCRIPTION:Are you someone who has epilepsy? Or do you care for someone with epilepsy? This webinar will highlight ways to improve safety and independence in your daily life in places including: \n\nparks\npools\ngyms\nrecreation areas\n\nLindsay DeLong\, OT/L\, founder of EquipMe OT will share important information to help you have fun and stay safe. \nLearn how to improve safety and independence in community activities with special tools and techniques. Don’t miss this important webinar! \n  \nRegister Now\n  \n 
URL:https://epilepsysurgeryalliance.org/event/safety-devices-in-epilepsy/
LOCATION:Webinar
CATEGORIES:General
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/04/pool.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220428T190000
DTEND;TZID=America/New_York:20220428T200000
DTSTAMP:20260702T163100
CREATED:20220417T111002Z
LAST-MODIFIED:20230315T181521Z
UID:17269-1651172400-1651176000@epilepsysurgeryalliance.org
SUMMARY:AAC and Literacy After Epilepsy Surgery
DESCRIPTION:Some children in our community use augmentative and alternative communication (AAC) devices to communicate with others. Many parents wonder if proper reading instruction is part of their education. \n\n \n\nDoes your team know how to measure your child’s progress using AAC?\nDoes your team know how to support and model AAC use for your child throughout the day?\nHow does your child demonstrate knowledge and communicate during shared reading\, writing\, and word study?\nIs your team trained to use AAC?\nIs AAC used in other learning parts of the day?\n\n\n\nPlease join us as Dr. Stephanie Spadorcia helps us untangle some of these questions and more. \nStephanie Spadorcia\, Ph.D. is Associate Dean of the Graduate School of Education\, Associate Professor of Literacy and Special Education\, and Director of the Teacher Residency Programs at Lesley University in Cambridge\, MA.  She teaches courses in assessment\, instructional methods for reading and writing\, technology integration\, and literacy instruction for children with disabilities. She has worked with teachers on literacy and assessment initiatives in schools in New England and across the country. To learn more about Dr. Spadorcia\, go to https://www.stephaniespadorciaconsulting.com. \nDr. Stephanie Spadorcia \nWhat we discussed: \n\nWhat are literacy and communication?\nWhat is the difference between AT (assistive technology) and AAC (augmentative and alternative communication (AAC)?\nWhat is the emergent literacy model?\nWhat should reading instruction include?\nIs there dedicated instructional time in your child’s day\, every day\, for reading\, writing\, listening\, and communicating?\nAre there IEP goals that address all four of these areas?\nIs AAC use interwoven throughout the day in all four of these areas?\nHow do you teach a nonverbal or minimally verbal child to read?\nWhat about assessment or measuring progress?\n\nEssential Components of Daily Literacy Instruction: \n\nWord work\nComprehension\nWriting\nIndependent reading time\n\nDr. Spadorcia recommended 90-120 minutes of literacy instruction PER DAY in a child’s schedule that includes these 4 components. These minutes can be spread throughout the day. \nSuggested Assessment Tools: \n\nDevelopmental Writing Scale\n\nThe Developmental Writing Scale: A New Progress Monitoring Tool for Beginning Writers (Sturm 2012)\nThe Power of the Developmental Writing Scale (video)\nEffective Writing Instruction for Students with Developmental Disabilities: Curriculum\, Measurement\, and Accommodations\nUsing the Developmental Writing Scale for Writing Assessment | Jane Farrall Consulting\nWhat can assessment look like? (Alternative Pencils)\n\n\nMaze activity\n\nOn Progress Monitoring\, Maze Tests\, and Reading Comprehension Assessment (Reading Rockets)\n\n\nCloze activity\n\nUtilizing a Cloze Activity to Promote Decoding | Literacy for Students with Cognitive Disabilities\nDeveloping Fluent Readers (Reading Rockets)\n\n\nDevelopmental Spelling Test\n\nAssess the Child\, Find the Phase J. Richard Gentry – PDF Free Download\nDevelopmental Spelling Test – Teaching All Learners (Boston Public Schools)\nThe Gentry Developmental Spelling Test\nDeveloping a Written Productivity Profile: Conducting a Developmental Spelling Analysis (Montgomery Schools\, MD)\n\n\nInformal Reading Inventory\n\nInformal Reading Inventory (Qualitative Reading Inventory) (Reading Rockets)\nA Critical Analysis of Eight Informal Reading Inventories (Reading Rockets)\n\n\nWord identification assessment (Literacy Instruction for Individuals with Autism\, Cerebral Palsy\, Down Syndrome\, and Other Disabilities\, Penn State\, Janice Light & David McNaughton)\n\nResources Shared by Dr. Spadorcia: \n\nAAC Intervention (Caroline Musselwhite)\nAlternative Pencils | Center for Literacy and Disability Studies\nCenter for Literacy and Disability Studies\nEmergent Literacy model:\n\nTeale\, W.\, Sulzby\, E. Emergent Literacy: Writing and Reading. 1986 Norwood\, NJ: Ablex\nEmergent literacy (The Edmonton Regional Learning Consortium/ERLC)\nEmergent Literacy (Emilia Ferreiro\, The StateUniversity.com Education Encyclopedia)\n\n\nLiteracy and Disabilities – Stephanie Spadorcia Consulting\nMayer-Johnson PCS for Clicker : Spectronics – Inclusive Learning Technologies\nProloquo2Go – AAC app with symbols\nWhat are some types of assistive devices and how are they used? | NICHD\nRick Creech\, speech therapist and AAC specialist who was born with cerebral palsy. See also Reflections from a Unicorn (Creech 1992)
URL:https://epilepsysurgeryalliance.org/event/aac-and-literacy/
LOCATION:Virtual Workshop
CATEGORIES:Past events
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