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DTSTART;TZID=America/New_York:20231204T183000
DTEND;TZID=America/New_York:20231204T210000
DTSTAMP:20260628T163926
CREATED:20231107T140030Z
LAST-MODIFIED:20250109T005816Z
UID:18937-1701714600-1701723600@epilepsysurgeryalliance.org
SUMMARY:Science and Research Update: Outcomes After Cerebral Hemispheric Surgery
DESCRIPTION:Moderated by Dr. George Ibrahim (The Hospital for Sick Children)\, this review will include: \n1. Early Data from the Global Pediatric Epilepsy Surgery Registry – Outcomes Beyond Seizure Control (Monika Jones\, JD\, Pediatric Epilepsy Surgery Alliance) \n2. Functional Outcomes: The Children’s Hospital of Pittsburgh Experience (Dr. Taylor Abel and Emily Harford\, M.A\, CCC-SLP Children’s Hospital of Pittsburgh) \n3. Systematic Review of Outcomes Other Than Seizure Freedom (Dr. Nancy Mcnamara\, Mott Children’s Hospital) \n4. Post-Operative Hydrocephalus (Dr. Aria Fallah\, UCLA Mattel Children’s Hospital) \nThis Science and Research Update meeting has been approved by the American Epilepsy Society to be held in tandem with the annual meeting of the American Epilepsy Society in Orlando\, Florida. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n \n 
URL:https://epilepsysurgeryalliance.org/event/science-and-research-update-outcomes-after-cerebral-hemispheric-surgery/
LOCATION:Rosen Plaza Hotel\, 9700 International Drive\, Orlando\, FL\, 32819\, United States
CATEGORIES:Research Meeting
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/11/Science-Meeting-Event.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231115T200000
DTEND;TZID=America/New_York:20231115T210000
DTSTAMP:20260628T163926
CREATED:20231024T230913Z
LAST-MODIFIED:20250109T005950Z
UID:18911-1700078400-1700082000@epilepsysurgeryalliance.org
SUMMARY:The Lifelong Impact of Having a Sibling with a Disability
DESCRIPTION:  \nThis session is all about understanding the brothers and sisters of people with disabilities. Research shows that siblings of people with disabilities have their own special qualities and needs\, but often\, families and experts don’t really know the best ways to help them out. We’re going to dive into what the studies say and share real-life stories from these siblings. \nThe goal? To create a friendly\, supportive space where everyone can learn how to better support and understand these awesome siblings. \nSPEAKERS: \nKalyn Farris\n \nKalyn Farris is the Sib of the late great Jonathan\, who left a huge impression on Kalyn in both their childhood together and after his passing. Kalyn found the Sib movement during a period of grief and has found that giving back through the Board has been healing in her journey to understand her Sib experience and honor the memories of her sibling relationship. Kalyn has her Master’s in Public Policy and currently works as a Senior Director in human resources strategy for a large healthcare company. Although her life looks different\, Kalyn has nothing but admiration for Sibs\, who are in the thick of the Club Sandwich Generation – playing a care role for aging parents\, young children\, and their siblings – and hopes that the work of CaliforniaSibs can provide them with the information\, support\, advocacy and empowerment they need to thrive in their lives. \nNikki Donnelly\n \nNikki is a co-founder of the Oregon Sibling Leadership Network. She is one of three children in her family\, with the youngest sibling being autistic. Her brother\, Robby\, has guided her career path in special education and her passion for advocacy for people with diverse needs. Watching her brother grow from a non-verbal\, self-injurious child to a well-functioning adult inspires her to help other families. She currently serves as an Autism Consultant in Southern Oregon and is pursuing her Doctorate degree in Education with a focus on inclusive practices. She was previously a special education teacher and administrator in CA. She still sits on the Board of Directors for the California Sibling Leadership Network and is also a Board Member for the national Sibling Leadership Network and the Advisory Council for The Natalie Project. She serves Adjunct Faculty roles at Portland State University\, Fresno Pacific University\, and the University of Illinois Urbana Champaign. In her leisure time\, Nikki enjoys fly-fishing\, snowboarding\, hiking and backpacking. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/the-lifelong-impact-of-having-a-sibling-with-a-disability/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/Copy-of-Website-events-calendar.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231109T120000
DTEND;TZID=America/New_York:20231109T130000
DTSTAMP:20260628T163926
CREATED:20231024T225834Z
LAST-MODIFIED:20250109T010116Z
UID:18908-1699531200-1699534800@epilepsysurgeryalliance.org
SUMMARY:Behavior & Co-Regulation with Eileen Devine
DESCRIPTION:As a parent\, your greatest and most effective tool for decreasing challenging behaviors is the ability to provide co-regulation for your child. Contrary to what many think\, this is not simply a psychological or emotional process underway but is one that resides deep within our nervous system and our child’s nervous system. \nIn this Power Hour\, we will talk about what is meant by self-regulation and co-regulation and why it is important for us to be cognizant of these two elements as a parent. We will talk about how this might look different when parenting a child with a brain-based diagnosis or disability and strategies for increasing the ability to stay regulated when your child is in the midst of incredibly challenging behaviors. No matter how little or how much we know about this topic\, there is always room to grow in our understanding of ourselves from this nervous system lens\, so I hope you will join us for this important discussion. \nAbout Eileen Devine\, LCSW: \n \nEileen has over a dozen years of clinical experience and is the adoptive mother of a child with fetal alcohol syndrome. She believes that kids do well if they can and that when we understand how a child’s brain works\, we understand the meaning behind challenging behaviors. Eileen’s goal is to not only support parents in feeling more competent and confident in connecting with their child by parenting from a brain-based perspective but also to recognize their experience as the parent of a child with challenging behavioral symptoms and their impact on their sense of self and well-being. When these two sides of the neurobehavioral coin can be equally addressed\, there is less frustration and increased hope in this unique parenting journey. \nEileen has her License in Clinical Social Work and is a certified facilitator in the teaching and application of the neurobehavioral model\, as developed by FASCETS founder Diane Malbin.  She has also completed Tier 1 training in Think:Kids Collaborative Problem Solving. Eileen is an instructor for the Post-Master’s Certificate in Adoption and Foster Therapy through Portland State University’s Child Welfare Partnership\, training other therapists on the neurobehavioral model. \nFounder of the Brain First Parenting Program and The Resilience Room  \nTune in! Brain First Parenting Podcast Mini-Series \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/behavior-co-regulation-with-eileen-devine/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/website-event-Image-1200-x-630-2.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231101
DTEND;VALUE=DATE:20231103
DTSTAMP:20260628T163926
CREATED:20231003T104205Z
LAST-MODIFIED:20231003T114211Z
UID:18870-1698807600-1698893999@epilepsysurgeryalliance.org
SUMMARY:Epilepsy Awareness Month
DESCRIPTION:November is Epilepsy Awareness Month\nNovember is not just another month on the calendar; it’s a time to shine a spotlight on epilepsy. At the Pediatric Epilepsy Surgery Alliance\, we dedicate this month to raising awareness about pediatric epilepsy surgery\, sharing vital information\, and rallying support for our life-changing programs. \nWhy Epilepsy Awareness Month Matters\nEpilepsy is more than just a medical condition; it’s a long and arduous journey for many families\, where they seek answers\, support\, and hope. Pediatric epilepsy surgery is a beacon of hope for many\, and it’s our mission to ensure that every family has access to the information and resources they need. \nHow You Can Make a Difference\n1. Share Information: Use your voice and platform on social media to share our facts\, stories\, and resources about pediatric epilepsy surgery. Every post\, tweet\, or story can make a difference in someone’s life. \n2. Start a Fundraiser: Whether you’re an individual with a passion for the cause or a group looking to make an impact\, consider starting a peer-to-peer fundraiser. Rally your friends\, family\, and colleagues to support our programs. You can set up fundraiser on our website or on platforms like Facebook or Instagram. Every dollar raised brings hope to another child. \n3. Sign Up for Our Newsletter: Stay informed and connected. Our newsletter provides updates\, stories\, and opportunities to get involved. By signing up\, you become part of a community dedicated to making a difference. \n 
URL:https://epilepsysurgeryalliance.org/event/epilepsy-awareness-month/
CATEGORIES:Awareness
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/Three-purple-awareness-ribbons-against-a-purple-background.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231031T120000
DTEND;TZID=America/New_York:20231102T010000
DTSTAMP:20260628T163926
CREATED:20230901T211247Z
LAST-MODIFIED:20230901T211247Z
UID:18732-1698753600-1698886800@epilepsysurgeryalliance.org
SUMMARY:Epilepsy Awareness Day at Disneyland
DESCRIPTION:Epilepsy Awareness Day at Disneyland is the world’s largest epilepsy event! Learn from experts while you surround yourself with people who understand the journey. \nThis year we have the honor of organizing all the adult and pediatric epilepsy surgery sessions. Thank you to the organizers at Sophie’s Journey for entrusting us with this important role. \n\nGeneral Event Information\nFree Tickets
URL:https://epilepsysurgeryalliance.org/event/epilepsy-awareness-day-at-disneyland/
LOCATION:Disneyland Hotel\, 1150 Magic Way\, Anaheim\, CA\, 92802\, United States
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/Website-Events-Calendar-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231027T173000
DTEND;TZID=America/New_York:20231027T203000
DTSTAMP:20260628T163926
CREATED:20230817T194843Z
LAST-MODIFIED:20231016T024349Z
UID:18649-1698427800-1698438600@epilepsysurgeryalliance.org
SUMMARY:Give for Hope™ Boo Bash (Washington DC)
DESCRIPTION:Join us at the beautiful French Embassy in Washington\, DC! As the Pediatric Epilepsy Surgery Alliance’s national signature event\, the Give for Hope™ Boo Bash benefits Dreams for Danny – our surgical evaluation travel scholarship. \nThe Problem\nOne-third of children with epilepsy have seizures that medication cannot control. Epilepsy surgery brings hope to stop or reduce seizures\, but finding out whether your child is a candidate for surgery at a specialized epilepsy center can be costly. \nHow You Can Solve It\nYour generosity enables us to provide up to $1\,000 to families facing the overwhelming costs associated with their child’s essential hospital tests. Your support alleviates the financial burden of airfare\, gas\, lodging\, and meals\, giving families the hope and focus they need during a critical time. Together\, we’re not just covering expenses; we’re offering a lifeline for families as they explore surgical options that could change their child’s life. \nYour contributions are vital in helping us reach our ambitious goal of raising $50\,000. With your support\, we aim to provide 50 or more children suffering from medication-resistant seizures the opportunity for a life-changing surgical evaluation.\nHonoring Disability Stars\nThis event is also a platform to honor those with relentless dedication to our community. This year’s honoree is Maureen van Stone\, Esq. the esteemed director of the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute and the founding director of Project HEAL (Health\, Education\, Advocacy\, Law). With an unwavering dedication to children with disabilities\, Ms. van Stone has pioneered transformative programs that combine healthcare\, education\, and legal advocacy to empower families in need. Her exceptional work through Project HEAL\, Maryland’s only medical-legal partnership\, has provided invaluable resources to low-income families and children with disabilities. A distinguished leader in the field\, she embodies the spirit of community service and is an inspiration to us all. \nAbout the event\nEnjoy hosted beer and French wine bar\, refreshments and appetizers\, a dinner buffet\, pizza for the kids\, silent auction\, trick or treating\, costume contest\, and monster mash dance party! \nCostumes or cocktail attire encouraged. \nTickets\n\nAdult – Regular: $50*\nAdult – VIP: $250**- Includes recognition at event\, preferred seating\, and champagne toast\nVisionary Table: $1\,500* – Deepen your commitment to our community with friends\, family\, or colleagues. Includes admission for ten persons\, dedicated sign\, preferred table location\, champagne toast\, recognition at event\, and on website\, meet and greet with honoree. Email Brittany Carver at bcarver@epilepsysurgeryalliance.org to purchase your visionary table.\nFree for children\n\n📣 *We are delighted to announce that thanks to the generous support of our corporate sponsors\, Livanova and Zimmer Biomet\, we have twelve complimentary adult tickets available for families who may not be able to afford the regular ticket price. Email bcarver@epilepsysurgeryalliance.org to learn more. Tickets are on a first-come\, first-served basis. \nDon’t forget to set up your own peer-to-peer fundraiser! It’s easy and a fun way to raise critical funds for this important program. Start your fundraiser here today. \n**Only amounts in excess of the fair market value of each ticket are tax deductible. Adult and Visionary Pass – valued at $40; VIP table – valued at $400. Recognition at the event and on the website is deemed to be “good will” and without monetary value. \n  \nGet Your Tickets \nDreams for Danny is funded in part by the generosity of \n \n\nBoo Bash Sponsors\n  \nAlly \n\n\n \nPatron \n\n  \n \n \n  \n \n  \n \n  \nFriend \n\n \n  \nVisionary \n \n  \n  \n  \n  \nCorporate Partnership: Help make this event a success and give a child hope – Boo Bash Sponsorship Package – Industry
URL:https://epilepsysurgeryalliance.org/event/give-for-hope-boo-bash-2/
LOCATION:French Embassy\, 4101 Reservoir Rd NW\, Washington\, DC\, 20007\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/08/Event-page-.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231024T180000
DTEND;TZID=America/New_York:20231024T193000
DTSTAMP:20260628T163927
CREATED:20230906T005836Z
LAST-MODIFIED:20250109T010347Z
UID:18776-1698170400-1698175800@epilepsysurgeryalliance.org
SUMMARY:Talking with Your Kids About Sexuality
DESCRIPTION:Talking with our young and grown children about sexuality can be a difficult task. As parents and guardians\, we often worry whether talking about it gives permission\, and whether they can be safe from harm when they are in relationships. This workshop will help you become more comfortable discussing this topic by knowing what topics to cover when and the most effective ways to talk about this sensitive topic.\n\nExamine barriers to talking about sexuality.\nGain knowledge about sexuality and developmental disabilities.\nAcquire and practice skills in communicating about sexuality with our young and grown children.\n\n\nAbout our speaker\n\n\n\n\n\nElizabeth Solá\, M.A.\, has 25 years of extensive experience working with individuals with developmental and intellectual disabilities as a bilingual special educator\, working with individuals from infancy to adulthood and their families\, and currently as a self-direction broker to create inclusive opportunities and support self-determined individuals to live their best lives. As the parent of a young adult on the autism spectrum\, she also understands the importance of partnering with other parents to ‘start the conversation’ about healthy relationships and sexuality education from an early age. Elizabeth is on the advisory board and leads parent workshops in collaboration with Elevatus Training.\n\n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n \n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment!
URL:https://epilepsysurgeryalliance.org/event/talking-with-your-kids-about-sexuality-a-workshop-for-parents-and-guardians/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/Sexuality-Training-event-Image-1200-x-630-1.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231017T120000
DTEND;TZID=America/New_York:20231017T130000
DTSTAMP:20260628T163927
CREATED:20230906T004651Z
LAST-MODIFIED:20250109T010522Z
UID:18774-1697544000-1697547600@epilepsysurgeryalliance.org
SUMMARY:Monitoring Progress on Your Child's IEP Goals
DESCRIPTION:Progress monitoring: What is it\, and why does it matter?\n\nProgress monitoring is how you and your child’s school know whether IEP goals are being met. You must understand if your child is making progress\, how progress is being measured\, how to ask for and look at data\, and what to do if your child fails to make progress. Join Julie Gardner\, Educational Specialist\, and Audrey Vernick\, PESA’s Director of Patient and Family Advocacy\, as we tackle these topics and answer your questions.\n\n\nThis is Part 2 of a two-part webinar series on IEP goal development and progress monitoring.\n\n\n\n\n\nAbout our speaker:\n \nJulie is an Educational Specialist at Kennedy Krieger Institute. She has a BA in Elementary Education and Specific Learning Disabilities (Flagler College) and an MA in Varying Exceptionalities (University of South Florida)\, and is currently in the EdD program at Slippery Rock University. Julie has over 30 years of experience in Special Education\, including the private and public sectors. She has worked as an administrator and IEP chair in public and private schools. She is also co-owner of J & A Educational Consulting\, which provides consultation and advocacy services to families involved in the general and special education system. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/monitoring-progress-on-your-childs-iep-goals/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/website-event-Image-1200-x-630.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231010T140000
DTEND;TZID=America/New_York:20231010T150000
DTSTAMP:20260628T163927
CREATED:20230906T003547Z
LAST-MODIFIED:20250109T010623Z
UID:18771-1696946400-1696950000@epilepsysurgeryalliance.org
SUMMARY:IEP Goals – What Can a Parent Do?
DESCRIPTION:Do you need help understanding your child’s IEP goals? What data can you ask for\, and how often? How can you be more involved in your child’s IEP development? Join Julie Gardner\, Educational Specialist\, and Audrey Vernick\, PESA’s Director of Patient and Family Advocacy\, to learn how to actively participate in IEP goal development\, know when your child’s goals have not been met\, and what to do about it!\n\n\n\nThis is Part 1 of a two-part webinar series on IEP goal development and progress monitoring.\n\n\n\n\nAbout our speaker:\n \nJulie is an Educational Specialist at Kennedy Krieger Institute. She has a BA in Elementary Education and Specific Learning Disabilities (Flagler College) and an MA in Varying Exceptionalities (University of South Florida)\, and is currently in the EdD program at Slippery Rock University. Julie has over 30 years of experience in Special Education\, including the private and public sectors. She has worked as an administrator and IEP chair in public and private schools. She is also co-owner of J & A Educational Consulting\, which provides consultation and advocacy services to families involved in the general and special education system. \n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n  \n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/iep-goals-what-can-a-parent-do/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/website-event-Image-1200-x-630.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230927T200000
DTEND;TZID=America/New_York:20230927T210000
DTSTAMP:20260628T163927
CREATED:20230905T184038Z
LAST-MODIFIED:20230920T120133Z
UID:18769-1695844800-1695848400@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Ask Us Anything!
DESCRIPTION:About Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nWe believe that by empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. \nDuring an “Open Forum\,” you can join us with any questions you may have or join us simply to learn and build community. \n  \nClick here to register!\n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/power-hour-ask-us-anything/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230925T170000
DTEND;TZID=America/New_York:20230925T180000
DTSTAMP:20260628T163927
CREATED:20230906T101211Z
LAST-MODIFIED:20230906T101348Z
UID:18785-1695661200-1695664800@epilepsysurgeryalliance.org
SUMMARY:What to Expect at an EMU Stay?
DESCRIPTION:A guide for individuals and their families with epilepsy on how to prepare\, and what to expect during and after an Epilepsy Monitoring Unit (EMU) stay. \nPresented by: \nAmmar Kheder\, MD\, Associate Professor of Neurology and Pediatrics- Epileptologist \nDirector\, Comprehensive Pediatric Epilepsy Center Emory University School of Medicine \nDate: September 25\, 2023 \nTime: 5:00 pm EST/ 4 pm CT/ 2 pm PT \nPA Educators and School Nurses eligible for ACT 48 Credits. \nRegister here \n  \n  \n \n  \n  \nWe’re grateful to It’sYourEpilepsy.com for convening this important webinar.
URL:https://epilepsysurgeryalliance.org/event/what-to-expect-at-an-emu-stay/
LOCATION:Webinar
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/FB-Event-cover.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230912T120000
DTEND;TZID=America/New_York:20230912T130000
DTSTAMP:20260628T163927
CREATED:20230905T181505Z
LAST-MODIFIED:20250109T010907Z
UID:18762-1694520000-1694523600@epilepsysurgeryalliance.org
SUMMARY:Assistive Technology Tools to Enable Access to Any Environment and Solve Any Problem
DESCRIPTION:Are you curious about which Assistive Technology (AT) tools and services are available that could help an individual after epilepsy surgery with improved access to information\, education\, communication\, employment\, or leisure activities? \nThis presentation provides an overview of assistive technology for people with learning\, communication\, and developmental disabilities. Through demonstrations and actual case studies\, we will learn about accessible features built into the technologies you currently own and dedicated tools that may also be obtained to provide access to learning\, augmentative communication\, physical access\, self-regulation of behavior\, and even independent living skills. Time will be allotted for questions and follow-up opportunities. \n\n\nAbout our speaker:\n \nMark Surabian currently operates ATHelp.org\, a free assistive technology clinic that has served over 4\,500 children and adults with learning\, communication\, sensory\, and physical challenges\, and ATTrain.org\, a free professional training program that serves agencies in the greater NYC area and offers remote support across the globe. He has utilized assistive and instructional technologies to directly serve the educational and vocational needs of thousands of individuals with disabilities for over 35 years. He is an instructor on assistive/educational technologies for NYU’s Doctoral Program in Occupational Therapy and in the Graduate Schools of Education for Bank Street College and St. Joseph’s College. He can be contacted at ATHelp@me.com or through his LinkedIn Profile: https://www.linkedin.com/in/marksurabian/ \nhttps://www.facebook.com/ATHelp.org/ \nhttps://athelp.org/ \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/assistive-technology-tools-to-enable-access-to-any-environment-and-solve-any-problem/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/Assistive-technology-hands.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230908T120000
DTEND;TZID=America/New_York:20230908T130000
DTSTAMP:20260628T163927
CREATED:20230822T010648Z
LAST-MODIFIED:20250109T011011Z
UID:18660-1694174400-1694178000@epilepsysurgeryalliance.org
SUMMARY:Understanding Sensory Processing and Self-Regulation
DESCRIPTION:Sensory processing is one of those terms that is commonly used\, but just as commonly misunderstood. For children who have had epilepsy surgery\, sensory processing difficulties may impact not only how they understand their worlds\, but how they think\, learn\, communicate\, move\, and so much more. \nPlease join us for an interactive discussion of sensory processing and regulation. We will gain a better understanding of what sensory processing is\, how it impacts our kids\, and what we can do to help them function better in their natural environments. \n\n\nAbout our speaker:\n\n\n\n \nLindy Joffe \nOTD\, OTR/L Doctor of Occupational Therapy (Post-Professional) \n\nLindy Joffe brings 23 years of experience to pediatric OT work. She completed her doctorate in OT through Boston University’s post-professional program in 2022 and her master’s at Columbia University in 1999. Lindy enjoys working with a range of ages\, from early intervention to adolescents and the occasional adult. She has taken a broad range of courses in sensory integrative principles\, DIR/Floortime techniques\, cognitive perceptual organization\, and Masgutova Neuromuscular Reflex Integration Techniques\, among others. Lindy is particularly interested in how the motor and sensory systems\, particularly the visual-vestibular-auditory triad and underlying reflex systems\, interact with the executive function system to propel an individual’s problem-solving abilities in three-dimensional and two-dimensional space. Lindy believes strongly in taking therapy beyond the clinic walls\, working closely with the child’s team to ensure maximal carry-over of therapeutic techniques into the child’s life. She has taught continuing education courses in sensory integration and problem-solving locally and nationwide. Lindy has a private practice in the San Francisco Bay Area. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/understanding-sensory-processing-and-self-regulation-2/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/08/Sensory-Power-Hour.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230831T130000
DTEND;TZID=America/New_York:20230831T140000
DTSTAMP:20260628T163927
CREATED:20230523T011621Z
LAST-MODIFIED:20230523T011621Z
UID:18526-1693486800-1693490400@epilepsysurgeryalliance.org
SUMMARY:Power Hour - Open Forum
DESCRIPTION:About Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step towards empowerment! \n\nPlease note you must REGISTER IN ADVANCE! \nREGISTER HERE!\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-4/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230823T120000
DTEND;TZID=America/New_York:20230823T130000
DTSTAMP:20260628T163927
CREATED:20230523T012311Z
LAST-MODIFIED:20250109T011131Z
UID:18527-1692792000-1692795600@epilepsysurgeryalliance.org
SUMMARY:College Considerations After Epilepsy Surgery
DESCRIPTION:Students after epilepsy surgery may have health conditions or physical disabilities requiring them to consider what support and accommodations they will need when transitioning to college. \nThe laws that govern accommodations change from high school to college\, as does the role of the student and guardian. \nThis Power Hour will look at the following: \n\nThe applicable laws that impact academic\, residential\, and programmatic aspects of college life.\nHow college has changed\, and the variety of college programs\, support programs\, and in-house assistance colleges may provide.\nCommon accommodations for students with physical disabilities and health conditions.\nPreparing students for college\n\nJoin us to learn about accommodations and services in college. How can you get the support you need for housing\, dining\, transportation\, academics\, and more? Our speaker\, Annie Tulkin\, will help you understand what to expect\, what to ask in advance\, what is the student’s role\, and what is the role of the disability support office.  \n\n\nAbout our speaker:\n\n\n\n \nAnnie Tulkin is the Founder and Director of Accessible College\, author\, and public speaker. She is an expert in the area of college preparation and transition for students with physical disabilities and health conditions. She supports students and families across the country. \nAnnie was the Associate Director of the Academic Resource Center at Georgetown University for nearly six years. In that position\, she supported undergraduate\, graduate\, and medical students with physical disabilities and health conditions and oversaw academic support services for the entire student body. Annie has worked in the disability field for her entire professional career\, including positions as a Regional Disability Coordinator for Humanitas\, Inc.\, working on the Job Corps disability support contract for The Department of Labor\, and as a Project Specialist with the Association of University Centers on Disabilities (AUCD) where she worked with both the National Service Inclusion Project (NSIP) and University Centers of Excellence in Developmental Disabilities (UCEDD) Technical Assistance projects. She holds a Bachelor’s Degree in Secondary Education from DePaul University\, a Master’s in Special Education from The University of Wisconsin-Madison\, and a Certificate in Health Coaching from Georgetown University. Annie was a Peace Corps Volunteer (Mongolia\, ‘03-’05) and a Fulbright Fellow (Mongolia\, ‘07-’08).  She resides in Silver Spring\, MD\, with her husband and daughter. \nWebsite: www.accessiblecollege.com \nFacebook: @AccessibleCollege \nTwitter: @AcssCollege \nInstagram: AccessibleCollege \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/college-considerations-after-epilepsy-surgery/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2021/02/Untitled-design-41.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230726T120000
DTEND;TZID=America/New_York:20230726T130000
DTSTAMP:20260628T163927
CREATED:20230523T011424Z
LAST-MODIFIED:20230725T101628Z
UID:18524-1690372800-1690376400@epilepsysurgeryalliance.org
SUMMARY:Power Hour - July 26\, 2023
DESCRIPTION:About Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step towards empowerment! \n\nPlease note you must REGISTER IN ADVANCE! \nREGISTER HERE!\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/july-26-2023/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230719T120000
DTEND;TZID=America/New_York:20230719T130000
DTSTAMP:20260628T163927
CREATED:20230523T005615Z
LAST-MODIFIED:20250109T011302Z
UID:18517-1689768000-1689771600@epilepsysurgeryalliance.org
SUMMARY:Laser Ablation with Dr. Jeffrey Raskin
DESCRIPTION:Laser Ablation – What You Need to Know \nAbout our speaker:\n\nJeffrey S. Raskin\, MS\, MD\, FAAP\, FAANS\, is an assistant professor and board-certified pediatric neurosurgeon. He completed his residency in the Department of Neurological sSrgery at Oregon Health & Science University and fellowship training in pediatric neurosurgery at Texas Children’s Hospital. He maintains specific interests in functional neurosurgery in children and serves as Director of Functional Neurosurgery at Lurie Children’s. Dr. Raskin is a member of the American Association of Neurological Surgeons\, Congress of Neurological Surgeons\, American Association of Pediatrics\, American Society of Pediatric Neurosurgery\, North American Neuromodulation Society\, and associate editor of Operative Neurosurgery. Dr. Raskin’s career goals include promotion to full professor of neurological surgery\, maximizing the national and international reputation of neurosurgical care at Lurie Children’s\, and serving the profession of neurological surgery through national representation. Dr. Raskin enjoys amateur bird watching\, art\, and culture with his wife. \n\nClinical Interests: Epilepsy\, movement disorders\, pain syndromes \n \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/laser-ablation-with-dr-jeffrey-raskin/
LOCATION:Webinar
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/05/Brain-scan-1200-×-628-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230706T130000
DTEND;TZID=America/New_York:20230706T140000
DTSTAMP:20260628T163927
CREATED:20230531T001331Z
LAST-MODIFIED:20250109T011415Z
UID:18549-1688648400-1688652000@epilepsysurgeryalliance.org
SUMMARY:Future Planning - How to Prepare for Adulthood
DESCRIPTION:Future Planning involves creating a plan for your child’s life as they enter adulthood and also preparing for when you are no longer here to care for them. In this Power Hour\, we’ll discuss creating a “future plan” and a “letter of intent.” \nWhat should your plan include? Here are some things you will need to think about: \n\nExpressing Wishes for the Future\nDeciding Where to Live\nFinancing the Future\nSupporting Major and Daily Life Decisions\nEmployment and Daily Activities\nMaking Social Connections\n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n\nAbout Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact they may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n…. and more!\n\nWe believe that by empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n 
URL:https://epilepsysurgeryalliance.org/event/future-planning-how-to-prepare-for-adulthood/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/05/Future-planning-1200-×-628-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230627T120000
DTEND;TZID=America/New_York:20230627T130000
DTSTAMP:20260628T163927
CREATED:20230523T003857Z
LAST-MODIFIED:20250109T011542Z
UID:18516-1687867200-1687870800@epilepsysurgeryalliance.org
SUMMARY:Transition and the IEP - Part 2
DESCRIPTION:Regardless of their disabilities\, all children eventually become adults – physically and legally. Transition planning is about looking ahead at your child’s future life\, setting goals\, and determining what supports and services will be needed to help them succeed in adulthood. \nUnder the Individuals with Disabilities in Education Act (IDEA)\, students with disabilities are entitled to a free appropriate public education (FAPE) designed to meet the child’s unique needs and prepare them for further education\, employment\, and independent living. In fact\, the main purpose of IDEA is to ensure that all children with disabilities are “prepared to lead productive and independent adult lives\, to the maximum extent possible.” However\, children with disabilities are often described as “falling off a cliff” once they leave high school due to the failure of planning and implementing effective transition plans. \nTransition planning should help your child exit high school ready to start the rest of their life with a vision for their future and a plan in place. They may require support in adulthood – the transition IEP can help you spell out what supports your child will need and who will provide them. \nJoin us for this Power Hour “Transition and the IEP” with our Director of Patient and Family Advocacy\, Audrey Vernick\, to learn more about this process and how to prepare your child – and yourself – for what happens after high school. \nPlease note this is a two-part series.\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n\nAbout Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact they may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n…. and more!\n\nWe believe that by empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n 
URL:https://epilepsysurgeryalliance.org/event/transition-and-the-iep-part-2/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/05/Transition-Power-Hour-1200-×-628-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230620T120000
DTEND;TZID=America/New_York:20230620T130000
DTSTAMP:20260628T163927
CREATED:20230523T003609Z
LAST-MODIFIED:20250109T011651Z
UID:18514-1687262400-1687266000@epilepsysurgeryalliance.org
SUMMARY:Transition and the IEP - Part 1
DESCRIPTION:Regardless of their disabilities\, all children eventually become adults – physically and legally. Transition planning is about looking ahead at your child’s future life\, setting goals\, and determining what supports and services will be needed to help them succeed in adulthood. \nUnder the Individuals with Disabilities in Education Act (IDEA)\, students with disabilities are entitled to a free appropriate public education (FAPE) designed to meet the child’s unique needs and prepare them for further education\, employment\, and independent living. In fact\, the main purpose of IDEA is to ensure that all children with disabilities are “prepared to lead productive and independent adult lives\, to the maximum extent possible.” However\, children with disabilities are often described as “falling off a cliff” once they leave high school due to the failure of planning and implementing effective transition plans. \nTransition planning should help your child exit high school ready to start the rest of their life with a vision for their future and a plan in place. They may require support in adulthood – the transition IEP can help you spell out what supports your child will need and who will provide them. \nJoin us for this Power Hour “Transition and the IEP” with our Director of Patient and Family Advocacy\, Audrey Vernick\, to learn more about this process and how to prepare your child – and yourself – for what happens after high school. \nPlease note this is a two-part series.\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\nAbout Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact they may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n…. and more!\n\nWe believe that by empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n 
URL:https://epilepsysurgeryalliance.org/event/transition-and-the-iep-part-1/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/05/Transition-Power-Hour-1200-×-628-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230617T210000
DTEND;TZID=America/New_York:20230618T000000
DTSTAMP:20260628T163927
CREATED:20230427T231941Z
LAST-MODIFIED:20230611T125632Z
UID:18456-1687035600-1687046400@epilepsysurgeryalliance.org
SUMMARY:Summer Fun Fest
DESCRIPTION:🗓 June 17\, 2023 \n⏱ 6 – 9 p.m. \n🍔 Burgers + 🍧 Kona Ice + 🥤 refreshments included \n🎟 $25 for adults/free for kids! \n♿️ Accessible for persons with special needs \n🚗 Free parking onsite! \nSummer Fun Fest is our new regional community engagement event that gives our families the chance to expand social connections with other families of children with epilepsy or who have experienced surgery to treat seizures. (Children of all abilities and needs welcome!) \nJoin us at Kid Space Museum in Pasadena\, California\, where children of any ability can explore\, learn\, and play in a safe and supportive environment. Get ready to engage your senses and have a blast with the interactive exhibits. \nThe event includes a great selection of burgers from Patty Meets Bun (including vegetarian and low carb)\, refreshments\, dessert from Kona Ice\, and resource fair featuring Livanova VNS therapy\, It’sYourEpilepsy.com\, California Mentor\, Orginami\, The Connected Parent\, Craft Studio Shop Store\, and Tully’s Training. \n\n\n\n\n\nYou’ll have exclusive access to the museum’s outdoor 3.5-acre grounds. Interactive exhibits include a physics forest where budding scientists can explore concepts such as levers and pulleys\, trajectory\, and momentum. There’s also a splash dance fountain\, trike track\, a giant hawk’s nest to climb on\, and a real creek to wade through! (Don’t forget towels and water-friendly footwear.) \nWith delicious food\, exciting exhibits\, and families who understand epilepsy\, this is one event you won’t want to miss! \n\n\n\n\n\n\n\n\n\n$25 for adults\, free for children. \nAll proceeds benefits the Pediatric Epilepsy Surgery Alliance\, a non-profit organization that serves the community of children who need neurosurgery to treat their seizures. \n\nDownload our event flyer to share with your friends and colleagues! Summer Fun Fest flyer (pdf) \n\nGet Your Tickets\n\n\n\n\nThank you to our event sponsors\nEPILEPSY SURGERY EVALUATION FINANCIAL AID SPONSOR\n$10\,000\n\n\n\n\n\n\nPATRON\n\n\n\nBRONZE\n\n\n\nFRIEND\n\nCalifornia Mentor\n\nSponsor Info\nDo you want to partner with us for this very special event? Download our Summer Fun Fest Sponsorship Package. \n\nCan’t Make It?\nYou can support the Pediatric Epilepsy Surgery Alliance by donating today.\n\n\nDonate
URL:https://epilepsysurgeryalliance.org/event/summer-fun-fest/
LOCATION:Kids Space Museum\, 480 N Arroyo Blvd\, Pasadena\, CA\, 91103\, United States
CATEGORIES:Fun
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230523T120000
DTEND;TZID=America/New_York:20230523T130000
DTSTAMP:20260628T163927
CREATED:20230118T015908Z
LAST-MODIFIED:20230522T205905Z
UID:18162-1684843200-1684846800@epilepsysurgeryalliance.org
SUMMARY:Power Hour - Open Forum
DESCRIPTION:Power Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\nAbout Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step towards empowerment! \n\nPlease note you must REGISTER IN ADVANCE here.
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-3/
LOCATION:Virtual Workshop
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230519T203000
DTEND;TZID=America/New_York:20230519T230000
DTSTAMP:20260628T163927
CREATED:20230308T152726Z
LAST-MODIFIED:20230502T173040Z
UID:18371-1684528200-1684537200@epilepsysurgeryalliance.org
SUMMARY:Funny Fundraiser - Philly
DESCRIPTION:Laugh out loud while you raise funds for our impactful programs and research. \n  \nGet Your Tickets \n  \n 
URL:https://epilepsysurgeryalliance.org/event/funny-fundraiser/
LOCATION:Comedy Cabaret\, 625 North Main Street\, Doylestown\, PA\, 18901\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/03/Website-Events-Calendar-Image.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230513T120000
DTEND;TZID=America/New_York:20230514T150000
DTSTAMP:20260628T163927
CREATED:20230324T163752Z
LAST-MODIFIED:20230326T185822Z
UID:18405-1683979200-1684076400@epilepsysurgeryalliance.org
SUMMARY:The Last Comiskey Premiere - Chicago
DESCRIPTION:Celebrate “Last Comiskey\,” a new documentary about the unforgettable final season played at Comiskey Park. The event will include a screening of portions of the film\, followed by a Q&A featuring:\n\n* Nancy Faust — White Sox organist (1970-2010)\n* Donn Pall — White Sox pitcher (1988-1993)\n* Wayne Edwards — White sox pitcher (1990-1991)\n* Tom Shaer — Longtime Chicago Sportscaster\n* Matt Flesch — Producer/Director of “Last Comiskey” and board chair of the Pediatric Epilepsy Surgery Alliance\n* Additional guests to be announced prior to the event\n\nThe cost of admission is a $25 donation benefitting the Pediatric Epilepsy Surgery Alliance.\n\nBuy Your Tickets Now
URL:https://epilepsysurgeryalliance.org/event/the-last-comiskey-premiere-chicago/
LOCATION:The Promontory\, 5311 S. Lake Park Avenue\, Chicago\, IL\, 60615\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/03/Lask-Comiskey-1.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230512T200000
DTEND;TZID=America/New_York:20230512T210000
DTSTAMP:20260628T163927
CREATED:20230501T230343Z
LAST-MODIFIED:20230501T234225Z
UID:18465-1683921600-1683925200@epilepsysurgeryalliance.org
SUMMARY:Seizing Hope - virtual premiere
DESCRIPTION:Friday\, May 12\, 2023\n 5 pm Pacific Time | 6 pm Mountain Time | 7 pm Central Time | 8 pm Eastern Time\n Free admission\n\nMore than 500\,000 children in Canada and the USA have epilepsy. About a third of those children continue to have seizures despite taking anti-seizure medications\, also known as pediatric drug resistant epilepsy (DRE).  \nBrain surgery may be one option for them\, but what if there is another option that is less invasive or more effective? What if new technology can bring hope to children who have DRE? \nABOUT SEIZING HOPE \nFamilies with children who have drug resistant epilepsy face complex realities. In a world guided by the promises of technology\, the goal of Seizing Hope is to raise awareness about the options offered by different technologies specifically for the brain in complement or as an alternative to treatment with medication. These options include \n\nvagus nerve stimulation\ndeep brain stimulation\, and\nresponsive neurostimulation.\n\nWatch as four families navigate decision-making around using various neuromodulation devices to treat seizures in their children. Here\, the producers compiled the stories of four families with children who have pediatric DRE to shed light on their hope\, trust\, and empowerment journey. \nThe views and research presented in this documentary represent a multi-year neuroethics project funded by the National Institute of Mental Health of the USA National Institutes of Health\, BRAIN Initiative. \nAfter viewing the documentary together\, panelists will answer questions presented by the moderator. \nMODERATOR \nMonika Jones\, JD\, founder and executive director of the Pediatric Epilepsy Surgery Alliance. \nPANELISTS \nDr. Judy Illes\, CM\, PhD\, FRSC\, FCAHS \nProfessor and UBC Distinguished Scholar in Neuroethics\, Director\, Neuroethics Canada\, University of British Columbia \nDr. Sandi Lam\, MD\, MBA \nDivision Head\, Neurosurgery; Yeager Professorship in Pediatric Neurosurgery\, Ann and Robert H. Lurie Children’s Hospital \nProfessor of Neurological Surgery\, Northwestern University Feinberg School of Medicine \nMember of the board of directors\, Pediatric Epilepsy Surgery Alliance \nDr. Taylor Abel \nAssociate Professor\, University of Pittsburgh School of Medicine \nChief\, Pediatric Epilepsy Surgery\, Surgical Director\, Pediatric Epilepsy Surgery Program\, UPMC Children’s Hospital  \nMember\, scientific advisory board\, Pediatric Epilepsy Surgery Alliance \nCREDITS \nNeuroethics Canada UBC\, with funding from the NIH/NIMH BRAIN Initiative (#RF1MH117805-01) in association with Conexkt Innovation Studio And Cassiar Film CO. present Seizing Hope. \nFeaturing the Bagg\, Chartrand\, Thompson\, and Cowin families. \nExecutive Producers Dr. Judy Illes and Dr. Patrick J. McDonald. \nProduced by Dr. Johann Roduit. Directed by Adam Wormald \nLearn more about the film at https://www.seizinghopefilm.com/ \nGet Your Free Tickets
URL:https://epilepsysurgeryalliance.org/event/seizing-hope-virtual-premiere/
LOCATION:Virtual
CATEGORIES:General
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/05/Seizing-Hope-2.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230509T120000
DTEND;TZID=America/New_York:20230509T130000
DTSTAMP:20260628T163927
CREATED:20230208T151513Z
LAST-MODIFIED:20250109T011825Z
UID:18164-1683633600-1683637200@epilepsysurgeryalliance.org
SUMMARY:Behavioral Health Wellness
DESCRIPTION:Behavioral Health Wellness in Teens After Epilepsy Surgery\nIt can be difficult for both youth and their parents to navigate the teen years\, which can be full of change\, hormones\, risk-taking behaviors\, self-blame\, greater peer influence\, etc. In addition\, there are often a lot of questions about your teen’s behavioral health after epilepsy surgery. What is behavioral health? What concerns should I be aware of? What if my child doesn’t have any concerns – is this normal? When should I take action versus taking a deep breath and moving on? How do I talk to my child about behavioral health concerns? How do I ask for behavioral health services? This session is about managing depression and anxiety in teens who have had epilepsy surgery. Dr. Wagner will help you understand behavioral health and how to notice and address related concerns in your child. \n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\nAbout our speaker:\nDr. Janelle Wagner received her Ph.D. in Clinical Psychology from Oklahoma State University in 2004. She completed an internship and postdoctoral fellowship in pediatric psychology at the Medical University of South Carolina (MUSC)\, specializing in epilepsy. Dr. Wagner has dedicated her research career to the integration of medical and behavioral aspects of pediatric epilepsy\, focusing on behavioral health assessment and intervention within the context of self-/family management. She has been funded by the national Epilepsy Foundation (EF)\, Parents Against Childhood Epilepsy (PACE)\, the Pediatric Partnership for Epilepsy Research\, the Henkin Family Foundation\, the National Institutes of Health (NIH)\, and the Centers for Disease Control and Prevention (CDC). Dr. Wagner serves on committees and in leadership positions within national and international epilepsy research and clinical communities. Her findings have been published in over 100 respected peer review journal articles and book chapters. Dr. Wagner also has a personal experience with epilepsy as the sibling of a younger brother who was diagnosed with complex partial epilepsy in childhood. \n  \n \n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step towards empowerment! \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/behavioral-health-after-epilepsy-surgery/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/01/Behavioral-Health-Wellness-in-Teens-After-Epilepsy-Surgery.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230419T150000
DTEND;TZID=America/New_York:20230419T160000
DTSTAMP:20260628T163927
CREATED:20230118T015724Z
LAST-MODIFIED:20250109T011937Z
UID:18161-1681916400-1681920000@epilepsysurgeryalliance.org
SUMMARY:About Neuropsych Assessments
DESCRIPTION:Are you wondering about neuropsychological evaluations for your child before or after epilepsy surgery?\n\nJoin us to find out:\n\nWhat is a neuropsychological evaluation and why does it matter?\nHow is it different from all of the other evaluations my child has?\nHow do I get a neuropsychological evaluation?\nHow do I read/understand a neuropsychological evaluation?\nWhat do I do with the evaluation after we have received it?\n\nJoin our Director of Patient and Family Advocacy\, Audrey Vernick\, as we answer these questions and more.\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\nAbout Power Hour\n\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/neuropsych-assessments/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/03/Neuropsychological-Assessments-1200-×-628-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T180000
DTEND;TZID=America/New_York:20230412T190000
DTSTAMP:20260628T163927
CREATED:20230328T015135Z
LAST-MODIFIED:20230328T015522Z
UID:18414-1681322400-1681326000@epilepsysurgeryalliance.org
SUMMARY:Diagnóstico de Epilepsia\, Primera Consulta
DESCRIPTION:En este webinar: \n\ncomprenderá la importancia de las características de las personas con epilepsia;\nSe delinearán los aspectos a tener en cuenta para el diagnóstico de epilepsia;\nEntenderá las indicaciones de los estudios solicitados;\nSe resaltará la importancia del diagnóstico correcto de epilepsia.\n\nPresentador: \n\nSebastian Ortiz De la Rosa\, MD\nInstituto Roosevelt\,\nUnidad de Epilepsia\,\nHospital San Jose Infantil
URL:https://epilepsysurgeryalliance.org/event/diagnostico-de-epilepsia-primera-consulta/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/03/Latino-doctor.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230404T120000
DTEND;TZID=America/New_York:20230404T130000
DTSTAMP:20260628T163927
CREATED:20230118T015427Z
LAST-MODIFIED:20250109T012111Z
UID:18159-1680609600-1680613200@epilepsysurgeryalliance.org
SUMMARY:All About ABLE Accounts
DESCRIPTION:The financial aspects of caring for a child or adult with special needs can be daunting. This workshop will tell you all you need to know about ABLE accounts.\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n\n\n\nAbout our speakers:\n\n\n\nMary McDirmid\, Special Needs Financial Planner\, Special Abilities Network \nWhen Mary isn’t helping families navigate the world of special needs financial planning\, she is a wife to Jay and a mom to Charlie and Ruth. In addition to her leadership role at Special Abilities Network\, she is a volunteer advocate for kids with rare diseases. She takes the title “Mom Boss’ seriously; just ask her! Mary understands the emotional and financial aspects of caring for a loved one with special needs because she is the parent of a child with a rare disease. Let her guide you toward making educated financial decisions for your unique family situation. \n\n\nEric Ochmanek\, Program Director – ABLE Today\, National Association of State Treasurers (NAST) \nEric Ochmanek leads NAST’s ABLE today national initiative to advance financial empowerment for people with disabilities by increasing the awareness of ABLE accounts. ABLE today\, a collaborative outreach and awareness effort highlighting the impactful benefits of ABLE accounts for all ABLE Programs\, fosters the opportunity for people with disabilities to save and invest in their future. This includes providing ABLE education directly to the disability community\, establishing partnerships with stakeholders\, and engaging employers on the benefits ABLE provides as a tool for Diversity\, Equity\, and Inclusion. Eric helped launch Ohio’s ABLE Program in June 2016 and led its national outreach efforts. He traveled to each of the state’s 88 counties and throughout the country to connect people with disabilities with ABLE accounts and built partnerships within the disability community and the financial\, legal\, and support service industries. \nSara Hart Weir\, Senior Advisor & Former President + CEO of the National Down syndrome Society \nSara Hart Weir is a national ABLE expert\, nonprofit executive\, and disability activist. Weir is the former President & C.E.O. of the National Down Syndrome Society (NDSS)\, where during her tenure at NDSS\, she led the passage of the landmark\, bipartisan Stephen Beck Jr.\, Achieving a Better Life Experience (ABLE) Act in 2014 (P.L.113-295). Weir also supported a majority of the enactment of ABLE state laws\, assisted with over 40 state ABLE plan launches\, and led efforts to expand ABLE to include the ABLE to Work Act and the ABLE Financial Planning Act. Weir is also a national leader in driving public-private partnerships to ensure people with disabilities have a fair shot at the American Dream. Weir drives solutions that give individuals with disabilities access to a better life – from growing workforce development and career opportunities\, increasing access to quality\, affordable housing\, improving healthcare delivery systems\, and expanding inclusive education. Weir has a Bachelor of Arts in Psychology and Political Leadership from Westminster College and a Master of Science in Public Policy and Management from Carnegie Mellon University’s Heinz College. \n\n\n\n\nAbout Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step towards empowerment! \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/all-about-able-accounts/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/01/All-About-ABLE-Accounts-.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230316T180000
DTEND;TZID=America/New_York:20230316T190000
DTSTAMP:20260628T163927
CREATED:20230306T010231Z
LAST-MODIFIED:20230306T015644Z
UID:18365-1678989600-1678993200@epilepsysurgeryalliance.org
SUMMARY:What Doctors Don't Discuss with You and Why
DESCRIPTION:Are you feeling overwhelmed by your epilepsy journey? You are not alone. The process of navigating life with epilepsy or as a caregiver to someone with epilepsy can be very intimidating and feeling like you are as prepared as possible is difficult to achieve. There are only so many things that a doctor can prepare you for and often times it is difficult to follow the medical verbiage that they use so nonchalantly. This webinar will focus on how to gather the resources you are looking for when living with epilepsy. Doctors are wonderful\, but don’t always have time to discuss ways to find daily support. If you are interested in learning more about the resources available to you\, join us on Thursday March 16th\, 2023 with our guest speaker Leigh Schommer.
URL:https://epilepsysurgeryalliance.org/event/what-doctors-dont-discuss-with-you-and-why/
LOCATION:Webinar
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/03/Copy-of-Website-Events-Calendar-Image.png
END:VEVENT
END:VCALENDAR