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X-WR-CALDESC:Events for Pediatric Epilepsy Surgery Alliance
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DTSTART;TZID=America/New_York:20250630T170000
DTEND;TZID=America/New_York:20250630T170000
DTSTAMP:20260627T100701
CREATED:20250426T221322Z
LAST-MODIFIED:20250611T151546Z
UID:20089-1751302800-1751302800@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR - Understanding Neurodevelopmental Disorders After Epilepsy Surgery
DESCRIPTION:Many children with drug-resistant epilepsy (DRE) also have learning\, behavior\, or attention challenges—but families are often left wondering what’s going on or how to get help. These challenges are sometimes part of something called a neurodevelopmental disorder (NDD). \nBut what is an NDD? How do you know if your child has one? And how do you get help? \nIn this Power Hour\, pediatric neurologist Dr. Shafali Jeste will explain NDDs in clear\, simple language. \nShe’ll cover: \n\nWhat neurodevelopmental disorders are\nHow they’re diagnosed\nHow they can overlap with epilepsy\, autism\, ADHD\, and learning delays\nHow the correct diagnosis can help unlock proper supports and services for your child\n\nThis talk is perfect for parents who are dealing with: \n\nBehavior or attention issues\nLearning delays\nTrouble getting school services or knowing what to ask for\n\nDr. Jeste will discuss how these issues may be present before epilepsy surgery\, may change after surgery\, or show up later on. Every child’s path is different—and having the right information can make a big difference. \nWho Should Attend: \nParents and caregivers of children with drug-resistant epilepsy (including genetic epilepsies like TSC\, Dravet\, or LGS) and ADHD\, autism\, or other suspected neurodevelopmental disorders. \nREGISTER HERE!\n\n\nPresented by the Pediatric Epilepsy Surgery Alliance in collaboration with \n\n TSC Alliance\nLGS Foundation\nCHADD’s National Resource Center on ADHD \n\n\n \n\n\nAbout our speaker:\nDr. Shafali Jeste is a behavioral child neurologist who specializes in autism and related neurodevelopmental disorders in children with epilepsy and genetic conditions. She is Chief of Neurology at Children’s Hospital Los Angeles and Professor of Pediatrics and Neurology at the USC Keck School of Medicine. \nHer research focuses on early diagnosis and treatment of NDDs\, especially in children with conditions like Tuberous Sclerosis Complex (TSC). She has led groundbreaking studies using brain-based tools to better understand autism\, ADHD\, and developmental delays in children with epilepsy. Dr. Jeste also helped develop clinical programs that provide specialized care for kids with complex neurodevelopmental needs. She is recognized for translating research into practical\, family-centered care and is a national leader in the fields of epilepsy and neurodevelopmental disorders (NDDs). \nDr. Jeste has published over 150 research articles and holds leadership roles with organizations such as the National Organization for Rare Disorders\, the TSC Alliance\, and the National Academies of Sciences\, Engineering\, and Medicine. Her work has been recognized with awards such as the Presidential Early Career Award and the Child Neurology Society’s Martha Bridge Denckla Award. She founded two specialized clinics for children with neurogenetic and developmental disabilities—CARING at UCLA and KiNDD at CHLA—and recently launched one of only three neurodevelopmental disorder fellowships in the country. \nOutside of work\, Dr. Jeste is a proud tennis mom to her two sons\, Nischal and Kiran\, and enjoys running marathons in her spare time.
URL:https://epilepsysurgeryalliance.org/event/6-30-25-power-hour/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/04/PESA-Power-Hour-Image.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250613T163000
DTEND;TZID=America/New_York:20250615T120000
DTSTAMP:20260627T100701
CREATED:20250426T155130Z
LAST-MODIFIED:20250531T010717Z
UID:20075-1749832200-1749988800@epilepsysurgeryalliance.org
SUMMARY:CHD2 Family & Scientific Conference
DESCRIPTION:The Pediatric Epilepsy Surgery Alliance is honored to participate in the Coalition to Cure CHD2 Family and Scientific Conference\, taking place June 13–15\, 2025\, in Westminster\, Colorado. \nOur Director of Patient and Family Advocacy\, Audrey Vernick\, will present on two important topics: \nTransition to Adult Care: Navigating Educational\, Social\, and Employment IssuesWhat does comprehensive life planning look like for individuals with CHD2 and their families? This session will explore the broader transition to adulthood — beyond just healthcare — including education\, employment\, community access\, emotional wellbeing\, and support services across the lifespan. \nPsychosocial Care for FamiliesA practical\, family-centered discussion focused on supporting both caregivers\, siblings\, and children living with complex neurological conditions. \nThe CHD2 conference brings together families\, clinicians\, and researchers working to advance care and research for this rare genetic epilepsy. Our involvement reflects the mission of The Alliance to support families navigating complex epilepsy\, neurodevelopmental challenges\, and surgical treatment decisions. \nWe look forward to connecting with the CHD2 community\, sharing valuable resources\, and strengthening our collaboration with the team at Children’s Hospital Colorado. \nStay tuned for updates from the conference!
URL:https://epilepsysurgeryalliance.org/event/chd2-family-scientific-conference/
LOCATION:Westin Westminster\, 10600 Westminster Boulevard\, Westminster\, CO\, 80020\, United States
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/04/CHD2-conference.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250517T001500
DTEND;TZID=America/New_York:20250517T010000
DTSTAMP:20260627T100701
CREATED:20250318T204848Z
LAST-MODIFIED:20250318T211919Z
UID:19980-1747440900-1747443600@epilepsysurgeryalliance.org
SUMMARY:Global Pediatric Epilepsy Surgery Registry: Hemispherectomy Outcomes
DESCRIPTION:Monika Jones\, Founder and Executive Director of the Pediatric Epilepsy Surgery Alliance (PESA) and Principal Investigator of the Global Pediatric Epilepsy Surgery Registry\, will present “The Pediatric Epilepsy Surgery Alliance Registry: Hemispherectomy Outcomes” at the Hemispherectomy Foundation Australia’s HemiCon Australia 2025. \nThis session will highlight findings from the Global Pediatric Epilepsy Surgery Registry\, a research initiative collecting data from families worldwide to better understand life after epilepsy surgery. The registry aims to answer critical questions about long-term outcomes\, post-surgical therapies\, and challenges that may arise after epilepsy surgery. \nKey Topics Include:\n\nLong-term developmental and functional outcomes after hemispherectomy\nEffective post-surgical therapies and interventions\nUnrecognized symptoms and medical issues reported by families\nThe impact of epilepsy surgery on quality of life\nHow registry data can drive improvements in care and research\n\nAbout Monika Jones\nMonika’s dedication to epilepsy surgery advocacy is deeply personal. Her son\, Henry\, was born with total hemimegalencephaly\, a rare brain malformation that caused him to have hundreds of seizures per day beginning in infancy. Despite multiple medications\, Henry experienced status epilepticus at three months old\, leading to an emergency modified lateral hemispherotomy. When his seizures returned\, he required two additional hemispherectomy surgeries\, resulting in chronic hydrocephalus\, multiple shunt procedures\, and other medical challenges. \nFrustrated by the lack of research and resources for post-surgical care\, Monika and her husband founded The Brain Recovery Project\, which later evolved into the Pediatric Epilepsy Surgery Alliance. Today\, she is a leading advocate for improving epilepsy surgery education\, access\, and long-term support for families worldwide.
URL:https://epilepsysurgeryalliance.org/event/global-pediatric-epilepsy-surgery-registry-hemispherectomy-outcomes/
LOCATION:SeaWorld Resort\, Gold Coast\, Australia\, Seaworld Drive\, Main Beach\, Gold Coast\, Queensland\, 4217\, Australia
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/01/Registry-1-1.png
ORGANIZER;CN="Hemispherectomy Foundation Australia":MAILTO:info@hemispherectomyaustralia.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250516T193000
DTEND;TZID=America/New_York:20250516T203000
DTSTAMP:20260627T100701
CREATED:20250318T203244Z
LAST-MODIFIED:20250318T210944Z
UID:19977-1747423800-1747427400@epilepsysurgeryalliance.org
SUMMARY:Understanding Medical Trauma and Hemispherectomy Families
DESCRIPTION:Audrey Vernick\, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA)\, will be the keynote speaker at the Hemispherectomy Foundation Australia’s HemiCon Australia 2025. \nAudrey will present “Understanding Medical Trauma and Hemispherectomy Families\,” an in-depth discussion on the profound emotional and psychological impact of epilepsy surgery and the challenges families face beyond the operating room. This session will highlight the long-term effects of medical trauma and the urgent need for trauma-informed care in pediatric neurology. \nHer keynote will explore: \n\nThe difference between parental stress and medical trauma\, and why families often don’t recognize PTSD in themselves.\nThe emotional toll of hemispherectomy\, including how parents and siblings process fear\, grief\, and uncertainty before and after surgery.\nThe impact on siblings\, including disenfranchised grief and how to support their unique emotional needs.\nThe challenges of finding mental health support for children post-surgery and how to advocate for care that considers both neurological and psychological needs.\nPractical strategies for coping\, healing\, and building resilience as a family while navigating life after surgery.\n\nPESA is proud to partner with Hemispherectomy Foundation Australia to ensure that Australian families have access to peer support\, advocacy\, and guidance throughout their hemispherectomy journey. \nAbout Audrey Vernick\nAudrey’s advocacy work is deeply personal. Her first son faced serious health challenges from birth due to a prenatal stroke. Despite trying multiple treatments\, his chronic infantile spasms continued. At two and a half\, he underwent a right hemispherectomy\, which stopped his seizures completely. He later required a shunt for hydrocephalus and remains seizure-free today. \nThrough her experiences\, Audrey developed a deep understanding of the medical\, educational\, and community challenges that families face after epilepsy surgery. She now helps parents make sense of the services their child may need\, ensuring they are informed and prepared to navigate post-surgical life. Her work focuses on education planning\, long-term support\, and trauma-informed care for children post-surgery. Audrey is a certified Future Planner through The Arc\, a trained Memory Coach for HOBSCOTCH\, and serves on multiple national epilepsy and disability advisory groups.
URL:https://epilepsysurgeryalliance.org/event/understanding-medical-trauma-and-hemispherectomy-families/
LOCATION:SeaWorld Resort\, Gold Coast\, Australia\, Seaworld Drive\, Main Beach\, Gold Coast\, Queensland\, 4217\, Australia
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/1.png
ORGANIZER;CN="Hemispherectomy Foundation Australia":MAILTO:info@hemispherectomyaustralia.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250515T200000
DTEND;TZID=America/New_York:20250515T210000
DTSTAMP:20260627T100701
CREATED:20250318T202226Z
LAST-MODIFIED:20250320T201812Z
UID:19972-1747339200-1747342800@epilepsysurgeryalliance.org
SUMMARY:Psychosocial Care of Hemispherectomy Families
DESCRIPTION:Audrey Vernick\, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA)\, will be the keynote speaker at HemiCon Australia 2025\, hosted by Hemispherectomy Foundation Australia. Drawing from her personal and professional expertise\, she will present “Psychosocial Care of Hemispherectomy Families: Preparing\, Adapting\, and Thriving Together\,” offering families guidance on navigating the challenges of epilepsy surgery\, school advocacy\, long-term support\, and building resilience beyond seizure control. \nPESA is proud to partner with Hemispherectomy Foundation Australia for our Parent Support Navigator Program\, ensuring that families in Australia have access to guidance and peer support throughout their epilepsy surgery journey. \nAbout Audrey Vernick\nAudrey’s advocacy work is deeply personal. Her first son faced serious health challenges from birth due to a prenatal stroke. Despite trying multiple treatments\, his chronic infantile spasms continued. At two and a half\, he underwent a right hemispherectomy\, which stopped his seizures completely. He later required a shunt for hydrocephalus and remains seizure-free today. \nThrough her experiences\, Audrey developed a deep understanding of the medical\, educational\, and community challenges that families face after epilepsy surgery. She now helps parents make sense of the services their child may need\, ensuring they are informed and prepared to navigate post-surgical life. Her work focuses on education planning\, long-term support\, and trauma-informed care for children post-surgery. Audrey is a certified Future Planner through The Arc\, a trained Memory Coach for HOBSCOTCH\, and serves on multiple national epilepsy and disability advisory groups.
URL:https://epilepsysurgeryalliance.org/event/psychosocial-care-of-hemispherectomy-families-preparing-adapting-and-thriving-together/
LOCATION:SeaWorld Resort\, Gold Coast\, Australia\, Seaworld Drive\, Main Beach\, Gold Coast\, Queensland\, 4217\, Australia
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/3-1.png
ORGANIZER;CN="Hemispherectomy Foundation Australia":MAILTO:info@hemispherectomyaustralia.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250501T190000
DTEND;TZID=America/New_York:20250501T200000
DTSTAMP:20260627T100701
CREATED:20250417T195531Z
LAST-MODIFIED:20250417T195531Z
UID:20054-1746126000-1746129600@epilepsysurgeryalliance.org
SUMMARY:Power Hour: School Questions Open Forum
DESCRIPTION:School can feel like a constant battle—whether your child has an IEP\, a 504 Plan\, or you’ve chosen to homeschool. In this Power Hour\, we’ll kick things off with a quick overview of seizure action plans and our key education resources\, then open the floor for real conversation. \nThis is your space to ask the hard questions\, share what’s working (or what isn’t)\, and connect with other parents who truly get it. Some of us have supportive school teams. Others are fighting for every service. Many of us are simply exhausted and need to know we’re not alone. \nCome as you are. No pressure\, no judgment—just honest talk\, shared experiences\, and support from a community that truly understands. You are welcome here whether you’re early in the school journey or preparing for adulthood. \nFor parents and caregivers of children with drug-resistant epilepsy\, epilepsy surgery histories\, and complex educational needs. \nNote: Our open forum sessions are not recorded to promote open and honest discussion. \nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick. \nREGISTER HERE!\n \nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n \nPower Hour sessions are brought to you by our corporate sponsor UCB. \nWe are grateful for their support!
URL:https://epilepsysurgeryalliance.org/event/power-hour-school-questions-open-forum/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250415T130000
DTEND;TZID=America/New_York:20250415T143000
DTSTAMP:20260627T100701
CREATED:20250310T233023Z
LAST-MODIFIED:20250426T142639Z
UID:19934-1744722000-1744727400@epilepsysurgeryalliance.org
SUMMARY:Power Hour: Making It to Monday – A Conversation on Medical Trauma\, Resilience\, and Community
DESCRIPTION:For parents and caregivers of children with neurological conditions\, the challenges don’t end when the medical crisis is over. The emotional impact—watching your child undergo procedures\, facing an uncertain future\, and managing ongoing care—can be overwhelming. \nMedical trauma is real\, yet it is rarely acknowledged in healthcare settings. Both children and caregivers can experience anxiety\, PTSD\, exhaustion\, and burnout\, often without realizing that these are symptoms of trauma. \nFor many families\, the effects of medical trauma remain unspoken\, leading to isolation\, self-doubt\, and emotional exhaustion. But healing starts with recognition\, connection\, and support. \nIn this discussion\, Jennifer Nunes (social worker and author of Making It to Monday) will be joined by a panel of parents who will answer questions and share their lived experiences. \nTopics include:\n\nWhat is medical trauma\, and how does it affect both children and caregivers?\nRecognizing trauma responses in both parents and children\, including PTSD\, anxiety\, and emotional burnout.\nPractical tools for healing\, including therapy options\, self-care strategies\, and trauma-informed approaches.\nThe power of community and peer support in navigating life after a medical crisis.\nHow parents can advocate for trauma-informed care in medical settings.\n\nJoin us for this honest and validating conversation about the emotional impact of medical trauma—and how families can find strength\, healing\, and hope. \nREGISTER HERE! \nAbout our speaker:\nJennifer Nunes is a registered social worker\, author\, and public speaker in Greater Toronto. With over a decade of experience in clinical social work\, Jennifer specializes in addressing and treating issues such as anxiety\, trauma\, caregiver stress\, and self-esteem. She wrote Making It to Monday\, an Amazon bestselling memoir that chronicles her family’s journey through her son’s medical crisis. The book promotes resilience\, accessing inner strength through vulnerability\, and finding joy in the chaos. Jennifer is also an active public speaker\, offering workshops and seminars on caregiver advocacy and positive psychology. \n \nAbout our panelists:\nCamie Rodan is the mom of two beautiful children\, including a 10-year-old son who had multiple perinatal strokes. After her son received a grim prognosis\, Camie spent years traveling to access the best therapies and medical services to help him recover\, ultimately moving across the country—from Washington\, D.C.\, to Tennessee\, and then to Southern California\, where she now resides with her family. She dedicates her time to supporting other families in the disability community as the Communications Director for the International Alliance for Pediatric Stroke and co-founder of the KISS Pediatric Stroke Support Facebook group. Camie is also a school representative for her local Special Education Local Plan Area\, a founder of the Special Education Parent Advisory Committee for her school district\, and a graduate of an Emerging Leadership Program for disability advocates. She brings a unique and personal perspective on trauma\, advocacy\, and the importance of community for families living with lifelong medical conditions. \nNaomi D. Williams is a perfectly imperfect person on a mission to empower individuals and families to live their best life\, now. As a Life Doula\, she helps people navigate and process major life-altering events. Naomi believes anyone and everyone can and should lead an exceptional life. She is the proud mother of a former 26-week preemie who lives with a host of diagnoses that fall under the primary umbrella of spastic quadriplegia cerebral palsy. She uses her and her son’s past and present experiences to inform and partner with healthcare systems as they live out the consequences of not being considered a valuable member of their care team. Naomi is the author of And God Remembered Noah: A mother’s heart-opening journey through 22 weeks in the NICU. When not advocating for her family or others\, you can find Naomi getting lost exploring nature or taking a deep breath on her yoga mat. Find her at exceptionalliving101.org \, Noahland.Art\, or LinkedIn. \nHosted by:\nAudrey Vernick\, the Director of Patient and Family Advocacy for the Pediatric Epilepsy Surgery Alliance\, draws from her personal experience navigating her son Bennett’s medical journey after he suffered a prenatal stroke. Following years of treatment for chronic infantile spasms\, he underwent a right hemispherectomy. However\, the journey has not been easy. She understands the challenges families face in the aftermath of life-altering medical events. \n\nThis Power Hour is a collaboration between the Pediatric Epilepsy Surgery Alliance\, the International Alliance for Pediatric Stroke\, the Child Neurology Foundation\, and the Courageous Parents Network. \n \n\n \nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n \nPower Hour sessions are brought to you by our corporate sponsor UCB. \nWe are grateful for their support!
URL:https://epilepsysurgeryalliance.org/event/power-hour-making-it-to-monday-a-conversation-on-medical-trauma-resilience-and-community/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/8.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250327T100000
DTEND;TZID=America/New_York:20250327T110000
DTSTAMP:20260627T100701
CREATED:20250312T134728Z
LAST-MODIFIED:20250312T134728Z
UID:19954-1743069600-1743073200@epilepsysurgeryalliance.org
SUMMARY:Central Auditory Processing Disorder After Pediatric Epilepsy Surgery
DESCRIPTION:Epilepsy surgeries that remove or disconnect the temporal lobe\, including hemispheric procedures\, will result in central auditory processing disorders for the child. This can impact how they hear conversations in noisy environments\, learn to read\, and cross the street. \nWe are amplifying the voice of our community to audiologists from around the world by presenting research on Central Auditory Processing After Pediatric Epilepsy Surgery. \n\nLead Presenter: Frank E. Musiek\, PhD – Professor Ret.\, University of Arizona\, member\, Scientific Advisory Board\, Pediatric Epilepsy Surgery Alliance \nPresenter: Monika A. Jones\, JD – Founder and Executive Director\, Pediatric Epilepsy Surgery Alliance
URL:https://epilepsysurgeryalliance.org/event/central-auditory-processing-disorder-after-pediatric-epilepsy-surgery/
LOCATION:Ernest N. Morial Convention Center\, 900 Convention Center Blvd\, New Orleans\, LA\, 70130\, United States
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/IMG_child_covering_ears_1200x600.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250314T120000
DTEND;TZID=America/New_York:20250314T130000
DTSTAMP:20260627T100701
CREATED:20250307T064011Z
LAST-MODIFIED:20250417T220951Z
UID:19924-1741953600-1741957200@epilepsysurgeryalliance.org
SUMMARY:The Life-Saving Nature of Epilepsy Surgery
DESCRIPTION:Epilepsy surgery is not a last resort. \nJoin the Pediatric Epilepsy Surgery Alliance in partnership with DEE-P Connections\, where Dr. Taylor Abel will present the latest research on the life-saving nature of epilepsy surgery. Dr. Abel will review key studies that highlight the effectiveness of surgical interventions for drug-resistant epilepsy and provide expert guidance on when families should consider surgery. \nThis webinar is essential for parents\, caregivers\, and professionals seeking expert insights into epilepsy surgery and its potential to transform lives. \nAbout our speaker:Dr. Taylor Abel is a leading expert in epilepsy surgery and research. He is the Chief of Pediatric Neurosurgery & Surgical Director of the Pediatric Epilepsy Surgery Program at UPMC Children’s Hospital of Pittsburgh\, and a board member of the American Epilepsy Society and the Pediatric Epilepsy Surgery Alliance.
URL:https://epilepsysurgeryalliance.org/event/the-life-saving-nature-of-epilepsy-surgery/
LOCATION:Virtual Workshop
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/The-LIFE-CHANGING-NATURE-OF-EPILEPSY-SURGERY.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250206T150000
DTEND;TZID=America/New_York:20250206T163000
DTSTAMP:20260627T100701
CREATED:20250126T020558Z
LAST-MODIFIED:20250213T225936Z
UID:19795-1738854000-1738859400@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Navigating the Life Stage Checklist for Families
DESCRIPTION:THIS EVENT HAS OCCURRED. YOU CAN WATCH IT HERE: \n\n\n  \nIn this Power Hour\, Growing Together: Navigating the Life Stage Checklist for Families\, our Director of Patient and Family Advocacy\, Audrey Vernick\, walks you through the “Transition to Adulthood/Life Stage Checklist” step-by-step\, breaking down key milestones and actionable steps across critical life stages. From early intervention to adult services\, this comprehensive guide empowers families to feel confident as they prepare for transitions\, access necessary supports\, and advocate effectively. \nThen\, a fantastic parent panel answers questions and shares their lived experiences. They provide insights into navigating challenges such as coordinating care for adults with disabilities and addressing gaps in resources and support. Their stories offer practical advice and encouragement for families facing similar experiences. \nKey resources: \n\nTransition to Adulthood/Life Stage Checklist\nSlide deck with links\nResource list with links from Growing Together Power Hour\nEducational Transition For Youth With Neurological Conditions Guide \nTransition Roadmap for Youth with Neurological Conditions\nThe (Almost) Everything List\n\nThank you to our webinar partners: Angelman Syndrome Foundation\, DEE-P Connections\, and the Rare Epilepsy Network.\n\nWe are grateful for UCB’s continued support of our transition resources. \n \n \nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n 
URL:https://epilepsysurgeryalliance.org/event/power-hour-navigating-the-life-stage-checklist-for-families/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/01/Untitled-Presentation.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241106T150000
DTEND;TZID=America/New_York:20241106T160000
DTSTAMP:20260627T100701
CREATED:20240308T225832Z
LAST-MODIFIED:20250122T044233Z
UID:19350-1730905200-1730908800@epilepsysurgeryalliance.org
SUMMARY:What About My Other Kids?
DESCRIPTION:THIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\nWhat about my other kids? Navigating the dynamics of sibling relationships in families of children with pediatric epilepsy\nWhen you have a child that requires constant supervision and care\, how\, as a parent\, do you balance this with the needs of your other children? How do you support your “neurotypical” children when they have experienced the trauma of meltdowns\, rage episodes\, and frequent hospitalizations of their brother or sister? How do you help them understand their sibling’s illness without feeling as though you are creating a double standard or excuses for unacceptable behavior? And how do you balance all your children’s needs when one of them requires everything you have to give? Join us for a deep dive into this complex issue of sibling relationships in families of children who have pediatric epilepsy surgery. \n\nAbout our speaker: \nEileen Devine\, LCSW \n \nEileen has over a dozen years of clinical experience and is the adoptive mother of a child with fetal alcohol syndrome. She believes that kids do well if they can and that when we understand how a child’s brain works\, we understand the meaning behind challenging behaviors. Eileen’s goal is to not only support parents in feeling more competent and confident in connecting with their child by parenting from a brain-based perspective but also to recognize their experience as the parent of a child with challenging behavioral symptoms and their impact on their sense of self and well-being. When these two sides of the neurobehavioral coin can be equally addressed\, there is less frustration and increased hope in this unique parenting journey. \nEileen is a licensed Clinical Social Worker and is a certified facilitator in the teaching and application of the neurobehavioral model\, as developed by FASCETS founder Diane Malbin. She has also completed Tier 1 training in Think:Kids Collaborative Problem Solving. Eileen is an instructor for the Post-Master’s Certificate in Adoption and Foster Therapy through Portland State University’s Child Welfare Partnership\, training other therapists on the neurobehavioral model. \nFounder of the Brain First Parenting Program and The Resilience Room  \nTune in! Brain First Parenting Podcast Mini-Series \n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment!
URL:https://epilepsysurgeryalliance.org/event/what-about-my-other-kids/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/03/Copy-of-Blog-Post-or-Image-1200-x-630-1200-x-630-px-1.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241026T173000
DTEND;TZID=America/New_York:20241026T200000
DTSTAMP:20260627T100701
CREATED:20240817T221954Z
LAST-MODIFIED:20241021T165546Z
UID:19534-1729963800-1729972800@epilepsysurgeryalliance.org
SUMMARY:Give for Hope ™ Boo Bash
DESCRIPTION:THIS EVENT HAS BEEN CANCELLED \n  \n  \nJoin us at the beautiful French Embassy in Washington\, DC! This event kicks off our annual Give for Hope™ campaign to benefit Dreams for Danny – our surgical evaluation travel scholarship. This financial aid program provides up to $1\,000 in travel costs for families who seek a pediatric epilepsy surgery evaluation at a level 4 facility more than fifty miles from their home. \nCostumes or cocktail attire encouraged. \n\nTickets are $125 for adults\, free for children.\nVIP Table – $2\,500 (table for ten\, includes mention on social media and at event)\n\nAdmission includes: \n\nTrick or treat stations\, face painting\, and character actors.\nFrench hot and cold canapés\, pizza for the kids\, beverages\, and a table of French desserts. Cash bar includes a selection of exquisite French wines.\nCorporate sponsorship opportunities are available. Download our prospectus to see all the incredible ways you can support our community: Boo Bash 2024 Corporate Sponsorship Prospectus (PDF)\nReady to sponsor or book your VIP table?? Complete this online support form.\nDon’t forget to set up your own peer-to-peer fundraiser! It’s easy and a fun way to raise critical funds for this important program. Start your fundraiser here today.\n\nI MPORTANT \n\nThere is no onsite parking at the French embassy except for disability access. If you require a disabled parking space\, please contact bcarver@epilepsysurgeryalliance.org. We will follow up with disabled access information for you.\nLimited street parking can be found on Reservoir Road. The embassy encourages you to use taxi/Uber/Lyft\, public transit\, or ride sharing.\nDoors open at 5:30 p.m. Please allow extra time for security check in.\nYou will need a valid photo I.D. and your Eventbrite ticket (printed or ready on your phone) to get into the embassy.\nDue to security reasons\, your name must match the name on the Eventbrite ticket. All tickets must have a corresponding name.\nPlease be advised that for security reasons\, embassy staff cannot allow large bags\, backpacks\, or bike helmets into the embassy.\n\n 
URL:https://epilepsysurgeryalliance.org/event/give-for-hope-boo-bash-3/
LOCATION:French Embassy\, 4101 Reservoir Rd NW\, Washington\, DC\, 20007\, United States
CATEGORIES:Fun,Fundraiser
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/08/Eventbrite-Header-2024.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240912T120000
DTEND;TZID=America/New_York:20240912T130000
DTSTAMP:20260627T100701
CREATED:20240514T232707Z
LAST-MODIFIED:20250109T004122Z
UID:19433-1726142400-1726146000@epilepsysurgeryalliance.org
SUMMARY:Future Planning for Siblings
DESCRIPTION:Siblings are often in line to be the default caregiver for their brother or sister with special needs. This webinar will explore what this responsibility means for you and discuss alternative paths available. What can you do now to plan for distributing support effectively\, ensuring your loved one receives a person-centered plan that caters to all their needs? Learn how siblings can be involved in a loving and caring manner while maintaining their own lives\, and explore ways in which friends and family can offer supportive assistance. Don’t miss out on valuable insights into future planning for siblings and families. \n\nAbout our speaker: \nKristin Carleton \n \nBefore co-founding All Needs Planning\, Kristin spent over three years as Vice President of Financial Planning and Investments at James River Wealth Advisors in Midlothian\, Virginia. She was a founder and director of the special needs planning organization Eli’s Village in Richmond\, Virginia. Kristin also worked extensively in the financial services field as an advisor and a Registered Client Service Assistant\, among other roles. She has dedicated her life to building plans to help ensure that every family\, regardless of their situation\, can enjoy fulfilling and capable lives. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment!
URL:https://epilepsysurgeryalliance.org/event/future-planning-for-siblings/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/05/Copy-of-Blog-Post-or-Image-1200-x-630-1200-x-630-px-2.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240812T190000
DTEND;TZID=America/New_York:20240812T200000
DTSTAMP:20260627T100701
CREATED:20240202T055602Z
LAST-MODIFIED:20250109T004430Z
UID:19202-1723489200-1723492800@epilepsysurgeryalliance.org
SUMMARY:Back to School with a 504 Plan or IEP
DESCRIPTION:Please join us for a special “back to school” chat as you prepare to return your child to school.\n\nWe’ll begin by sharing information about our key educational resources for children who have epilepsy\, epilepsy surgery\, or other neurological conditions:\n\nNavigating the IEP Process (course)\nPESA’s Educational Assessments Checklists (spreadsheet)\nPESA’s IEP GoalBank (spreadsheet)\nPESA’s Special Education Resource Guide (spreadsheet)\n\nThen\, we’ll have time for your IEP and 504 Plan questions.\n\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\nWe have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power. \nIf you have to advocate for something for your child\, you must understand it. \nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.
URL:https://epilepsysurgeryalliance.org/event/backtoschool/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/Back-to-School-1200-x-628-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240801
DTEND;VALUE=DATE:20240805
DTSTAMP:20260627T100701
CREATED:20231003T011654Z
LAST-MODIFIED:20240322T143438Z
UID:18867-1722481200-1722740399@epilepsysurgeryalliance.org
SUMMARY:Pediatric Epilepsy Surgery Conference & Family Reunion
DESCRIPTION:SURROUND YOURSELF WITH PEOPLE WHO GET IT\nIf your child has had epilepsy surgery\, or may need it\, this conference is for you. Learn from some of the world’s top neuro-professionals\, educators\, researchers\, rehabilitation clinicians who will present rich sessions on issues related to pediatric epilepsy surgery. \nExhibitors will share their resources for our community and professional childcare is available so that kids have safe and supervised fun. \nJoin hundreds of families from around the world and enjoy two days of learning\, fun\, and fellowship against the backdrop of the beautiful city of Boston. \nAugust 1: RESEARCH MEETING (For invited researchers only) \nAugust 2 – 3: FAMILY CONFERENCE  \n  \nFull Information\nSign up for our newsletter so you never miss an announcement about this conference! \nGet Email Updates\nWhat we did in 2019
URL:https://epilepsysurgeryalliance.org/event/family-and-research-conference/
LOCATION:Boston Sheraton\, 39 Dalton Street\, Boston\, CA\, 02119\, United States
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/Family-conference.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240610T190000
DTEND;TZID=America/New_York:20240610T200000
DTSTAMP:20260627T100701
CREATED:20240202T054537Z
LAST-MODIFIED:20240202T054537Z
UID:19195-1718046000-1718049600@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-8/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240531T120000
DTEND;TZID=America/New_York:20240531T130000
DTSTAMP:20260627T100701
CREATED:20240305T220325Z
LAST-MODIFIED:20250109T004841Z
UID:19340-1717156800-1717160400@epilepsysurgeryalliance.org
SUMMARY:Understanding Executive Function
DESCRIPTION:Executive function (EF) skills impact a broad range of functional developmental outcomes. For children who have had epilepsy surgery\, executive functioning challenges may impact how your child manages their academic success\, social integration\, motor coordination\, independence in self-care\, and community engagement. Dr. Joffe is an expert in Executive Function assessment and treatment. Join us to learn more about what EF skills are\, how to measure them\, and what to do to improve these skills. \n\nAbout our speaker: \nLindy Joffe \n \nOTD\, OTR/L Doctor of Occupational Therapy (Post-Professional) \nLindy Joffe brings 23 years of experience to pediatric OT work. She completed her doctorate in OT through Boston University’s post-professional program in 2022 and her master’s at Columbia University in 1999. Lindy enjoys working with a range of ages\, from early intervention to adolescents and the occasional adult. She has taken a broad range of courses in sensory integrative principles\, DIR/Floortime techniques\, cognitive perceptual organization\, and Masgutova Neuromuscular Reflex Integration Techniques\, among others. Lindy is particularly interested in how the motor and sensory systems\, particularly the visual-vestibular-auditory triad and underlying reflex systems\, interact with the executive function system to propel an individual’s problem-solving abilities in three-dimensional and two-dimensional space. Lindy believes strongly in taking therapy beyond the clinic walls\, working closely with the child’s team to ensure maximal carry-over of therapeutic techniques into the child’s life. She has taught continuing education courses in sensory integration and problem-solving locally and nationwide. Lindy has a private practice in the San Francisco Bay Area. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n  \n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n  \n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/understanding-executive-function/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/03/Copy-of-Blog-Post-or-Image-1200-x-630-1200-x-630-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240520T190000
DTEND;TZID=America/New_York:20240520T200000
DTSTAMP:20260627T100701
CREATED:20240202T054318Z
LAST-MODIFIED:20240404T015454Z
UID:19194-1716231600-1716235200@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-7/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240408T190000
DTEND;TZID=America/New_York:20240408T200000
DTSTAMP:20260627T100701
CREATED:20240202T054024Z
LAST-MODIFIED:20240202T054024Z
UID:19193-1712602800-1712606400@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-6/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240311T190000
DTEND;TZID=America/New_York:20240311T200000
DTSTAMP:20260627T100701
CREATED:20240202T053837Z
LAST-MODIFIED:20240202T054155Z
UID:19192-1710183600-1710187200@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-5/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240305T170000
DTEND;TZID=America/New_York:20240305T180000
DTSTAMP:20260627T100701
CREATED:20240202T052524Z
LAST-MODIFIED:20250109T005102Z
UID:19186-1709658000-1709661600@epilepsysurgeryalliance.org
SUMMARY:Using Neuropsychological Evaluation to Inform Your Child's Transition Plan
DESCRIPTION:After epilepsy surgery\, the transition to adulthood can be particularly challenging. Families need to know what tools are helpful to fully understand their teen’s cognitive and functional profile to design a results-oriented transition plan. How can you advocate for a neuropsychological assessment at the time of transition? Why is it needed? How can you use this assessment to drive transition planning for your young adult? This Power Hour will address these questions and more.\n\n\n\n\nAbout our speaker:\n\n\nMadison Berl\, Ph.D.\, ABPP\, is a licensed and board-certified pediatric neuropsychologist and faculty member of the Division of Pediatric Neuropsychology at Children’s National Hospital.  She is the Director of Research for the Division of Pediatric Neuropsychology and neuropsychologist for the Comprehensive Pediatric Epilepsy Program (CPEP). She is a Professor of Psychiatry and Behavioral Sciences at The George Washington University School of Medicine\, the Co-Director of the T32 Fellowship Program\, and Director of the Human Neurobehavioral Core of the Intellectual and Developmental Disabilities Research Center (IDDRC).  She serves on scientific and organizing committees within the American Epilepsy Society and International League Against Epilepsy and is an associate editor of Neuropsychology Reviews. Dr. Berl received her doctorate in clinical psychology from George Mason University.  She completed her predoctoral internship at Kennedy Krieger Institute/Johns Hopkins School of Medicine and a three-year postdoctoral research and clinical fellowship in pediatric neuropsychology at Children’s National. She earned her undergraduate degree in psychobiology at the University of California at Los Angeles.\n\n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/using-neuropsychological-evaluation-to-inform-your-childs-transition-plan/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/watercolor-young-adult.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240212T190000
DTEND;TZID=America/New_York:20240212T200000
DTSTAMP:20260627T100701
CREATED:20240202T053409Z
LAST-MODIFIED:20240202T054118Z
UID:19189-1707764400-1707768000@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-2/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240116T190000
DTEND;TZID=America/New_York:20240116T200000
DTSTAMP:20260627T100701
CREATED:20231215T231916Z
LAST-MODIFIED:20250109T005334Z
UID:19029-1705431600-1705435200@epilepsysurgeryalliance.org
SUMMARY:School Performance After Epilepsy Surgery: Working Memory and Cognitive Load
DESCRIPTION:Many children face challenges at school after epilepsy surgery. They may have difficulty making or maintaining academic progress for various reasons. This Power Hour will discuss the concept of cognitive load and offer perspectives on how it can help you and your child’s team understand how they learn\, both at home and at school. We will learn about working memory and its relationship to reading\, oral language\, math skills\, and other academic areas. Suggestions for advocacy and accommodations that can be integrated into the IEP process and in direct discussions with teachers and other educators will be provided. \n\nOUR SPEAKER: \n \nAmy is a speech language pathologist who works in the Department of Speech\, Language\, and Swallowing Disorders at the Massachusetts General Hospital in Boston\, MA. She is also a researcher at the MGH Institute of Health Profession’s (IHP) Rehabilitation Sciences program in the Brain\, Education\, and Mind (BEAM) lab\, directed by Dr. Joanna Christodoulou. Amy’s research and clinical interests fall at the intersection of speech language pathology and neurosurgery\, and she is passionate about understanding and advocating for the best possible neurocognitive outcomes in adults and children undergoing neurosurgery. While her expertise is focused on language and literacy\, her clinical experience extends across other academic skills areas\, including math and executive function skills. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n  \n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/working_memory/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/12/11.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231213T203000
DTEND;TZID=America/New_York:20231213T213000
DTSTAMP:20260627T100701
CREATED:20231027T014204Z
LAST-MODIFIED:20250109T005438Z
UID:18918-1702499400-1702503000@epilepsysurgeryalliance.org
SUMMARY:Empowering Families to Address the Sexual Assault Epidemic in the Disability Community
DESCRIPTION:Join us for a transformative presentation where we shed light on the alarming sexual assault epidemic affecting people with disabilities. Led by passionate disability advocate Julie Payne-Neward\, this session is a call to action for families and caregivers. \nWhat You’ll Learn:\n1. Understanding the Epidemic: We will delve into the staggering statistics surrounding sexual abuse within the disability community\, raising awareness about a silent crisis.\n2. Recognizing Signs and Suspected Abuse: Learn how to identify signs of potential sexual abuse and how to create a safe environment for open communication.\n3. The Path to Healing: Discover resources and strategies for supporting survivors and their families on their journey to healing and recovery.\n4. Taking Collective Action: Julie will share her experiences and insights on how The Natalie Project empowers families and communities to take collective action\, advocating for change and justice. \nWho Should Attend:\n– Family members of individuals with disabilities\n– Caregivers and support networks\n– Advocates and allies\n– Anyone concerned about the safety and well-being of people with disabilities \nLet’s come together to learn\, support\, and take a stand against the sexual assault epidemic within the disability community. Together\, we can make a difference. \n\nOUR SPEAKER: \nJulie Payne-Neward is a dedicated champion for adult siblings of people with disabilities. Her advocacy is deeply rooted in her love and concern for her sister Natalie\, who has intellectual/developmental disabilities and survived a harrowing incident of sexual abuse while attending a publicly funded day program. Julie is the co-founder and a board member of The California Sibling Leadership Network\, known as “CaliforniaSibs.” She also leads the impactful initiative\, The Natalie Project (#ustoo)\, and has been appointed by the Governor as a Councilwoman to the California State Council on Developmental Disabilities (SCDD). \nBeyond her advocacy work\, Julie has a successful career in retail real estate management\, and she holds an International MBA from the University of San Diego. Julie\, along with her husband and two young daughters\, calls sunny San Diego home\, where they relish the joys of the sun\, sea\, and sand. \nhttps://www.thenatalieproject.org/ \nhttps://www.linkedin.com/in/the-natalie-project-a89464226/ \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/empowering-families-to-address-the-sexual-assault-epidemic-in-the-disability-community/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/image0.jpeg
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231204T183000
DTEND;TZID=America/New_York:20231204T210000
DTSTAMP:20260627T100701
CREATED:20231107T140030Z
LAST-MODIFIED:20250109T005816Z
UID:18937-1701714600-1701723600@epilepsysurgeryalliance.org
SUMMARY:Science and Research Update: Outcomes After Cerebral Hemispheric Surgery
DESCRIPTION:Moderated by Dr. George Ibrahim (The Hospital for Sick Children)\, this review will include: \n1. Early Data from the Global Pediatric Epilepsy Surgery Registry – Outcomes Beyond Seizure Control (Monika Jones\, JD\, Pediatric Epilepsy Surgery Alliance) \n2. Functional Outcomes: The Children’s Hospital of Pittsburgh Experience (Dr. Taylor Abel and Emily Harford\, M.A\, CCC-SLP Children’s Hospital of Pittsburgh) \n3. Systematic Review of Outcomes Other Than Seizure Freedom (Dr. Nancy Mcnamara\, Mott Children’s Hospital) \n4. Post-Operative Hydrocephalus (Dr. Aria Fallah\, UCLA Mattel Children’s Hospital) \nThis Science and Research Update meeting has been approved by the American Epilepsy Society to be held in tandem with the annual meeting of the American Epilepsy Society in Orlando\, Florida. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n \n 
URL:https://epilepsysurgeryalliance.org/event/science-and-research-update-outcomes-after-cerebral-hemispheric-surgery/
LOCATION:Rosen Plaza Hotel\, 9700 International Drive\, Orlando\, FL\, 32819\, United States
CATEGORIES:Research Meeting
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/11/Science-Meeting-Event.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231115T200000
DTEND;TZID=America/New_York:20231115T210000
DTSTAMP:20260627T100701
CREATED:20231024T230913Z
LAST-MODIFIED:20250109T005950Z
UID:18911-1700078400-1700082000@epilepsysurgeryalliance.org
SUMMARY:The Lifelong Impact of Having a Sibling with a Disability
DESCRIPTION:  \nThis session is all about understanding the brothers and sisters of people with disabilities. Research shows that siblings of people with disabilities have their own special qualities and needs\, but often\, families and experts don’t really know the best ways to help them out. We’re going to dive into what the studies say and share real-life stories from these siblings. \nThe goal? To create a friendly\, supportive space where everyone can learn how to better support and understand these awesome siblings. \nSPEAKERS: \nKalyn Farris\n \nKalyn Farris is the Sib of the late great Jonathan\, who left a huge impression on Kalyn in both their childhood together and after his passing. Kalyn found the Sib movement during a period of grief and has found that giving back through the Board has been healing in her journey to understand her Sib experience and honor the memories of her sibling relationship. Kalyn has her Master’s in Public Policy and currently works as a Senior Director in human resources strategy for a large healthcare company. Although her life looks different\, Kalyn has nothing but admiration for Sibs\, who are in the thick of the Club Sandwich Generation – playing a care role for aging parents\, young children\, and their siblings – and hopes that the work of CaliforniaSibs can provide them with the information\, support\, advocacy and empowerment they need to thrive in their lives. \nNikki Donnelly\n \nNikki is a co-founder of the Oregon Sibling Leadership Network. She is one of three children in her family\, with the youngest sibling being autistic. Her brother\, Robby\, has guided her career path in special education and her passion for advocacy for people with diverse needs. Watching her brother grow from a non-verbal\, self-injurious child to a well-functioning adult inspires her to help other families. She currently serves as an Autism Consultant in Southern Oregon and is pursuing her Doctorate degree in Education with a focus on inclusive practices. She was previously a special education teacher and administrator in CA. She still sits on the Board of Directors for the California Sibling Leadership Network and is also a Board Member for the national Sibling Leadership Network and the Advisory Council for The Natalie Project. She serves Adjunct Faculty roles at Portland State University\, Fresno Pacific University\, and the University of Illinois Urbana Champaign. In her leisure time\, Nikki enjoys fly-fishing\, snowboarding\, hiking and backpacking. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/the-lifelong-impact-of-having-a-sibling-with-a-disability/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/Copy-of-Website-events-calendar.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231109T120000
DTEND;TZID=America/New_York:20231109T130000
DTSTAMP:20260627T100701
CREATED:20231024T225834Z
LAST-MODIFIED:20250109T010116Z
UID:18908-1699531200-1699534800@epilepsysurgeryalliance.org
SUMMARY:Behavior & Co-Regulation with Eileen Devine
DESCRIPTION:As a parent\, your greatest and most effective tool for decreasing challenging behaviors is the ability to provide co-regulation for your child. Contrary to what many think\, this is not simply a psychological or emotional process underway but is one that resides deep within our nervous system and our child’s nervous system. \nIn this Power Hour\, we will talk about what is meant by self-regulation and co-regulation and why it is important for us to be cognizant of these two elements as a parent. We will talk about how this might look different when parenting a child with a brain-based diagnosis or disability and strategies for increasing the ability to stay regulated when your child is in the midst of incredibly challenging behaviors. No matter how little or how much we know about this topic\, there is always room to grow in our understanding of ourselves from this nervous system lens\, so I hope you will join us for this important discussion. \nAbout Eileen Devine\, LCSW: \n \nEileen has over a dozen years of clinical experience and is the adoptive mother of a child with fetal alcohol syndrome. She believes that kids do well if they can and that when we understand how a child’s brain works\, we understand the meaning behind challenging behaviors. Eileen’s goal is to not only support parents in feeling more competent and confident in connecting with their child by parenting from a brain-based perspective but also to recognize their experience as the parent of a child with challenging behavioral symptoms and their impact on their sense of self and well-being. When these two sides of the neurobehavioral coin can be equally addressed\, there is less frustration and increased hope in this unique parenting journey. \nEileen has her License in Clinical Social Work and is a certified facilitator in the teaching and application of the neurobehavioral model\, as developed by FASCETS founder Diane Malbin.  She has also completed Tier 1 training in Think:Kids Collaborative Problem Solving. Eileen is an instructor for the Post-Master’s Certificate in Adoption and Foster Therapy through Portland State University’s Child Welfare Partnership\, training other therapists on the neurobehavioral model. \nFounder of the Brain First Parenting Program and The Resilience Room  \nTune in! Brain First Parenting Podcast Mini-Series \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/behavior-co-regulation-with-eileen-devine/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/website-event-Image-1200-x-630-2.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20231101
DTEND;VALUE=DATE:20231103
DTSTAMP:20260627T100701
CREATED:20231003T104205Z
LAST-MODIFIED:20231003T114211Z
UID:18870-1698807600-1698893999@epilepsysurgeryalliance.org
SUMMARY:Epilepsy Awareness Month
DESCRIPTION:November is Epilepsy Awareness Month\nNovember is not just another month on the calendar; it’s a time to shine a spotlight on epilepsy. At the Pediatric Epilepsy Surgery Alliance\, we dedicate this month to raising awareness about pediatric epilepsy surgery\, sharing vital information\, and rallying support for our life-changing programs. \nWhy Epilepsy Awareness Month Matters\nEpilepsy is more than just a medical condition; it’s a long and arduous journey for many families\, where they seek answers\, support\, and hope. Pediatric epilepsy surgery is a beacon of hope for many\, and it’s our mission to ensure that every family has access to the information and resources they need. \nHow You Can Make a Difference\n1. Share Information: Use your voice and platform on social media to share our facts\, stories\, and resources about pediatric epilepsy surgery. Every post\, tweet\, or story can make a difference in someone’s life. \n2. Start a Fundraiser: Whether you’re an individual with a passion for the cause or a group looking to make an impact\, consider starting a peer-to-peer fundraiser. Rally your friends\, family\, and colleagues to support our programs. You can set up fundraiser on our website or on platforms like Facebook or Instagram. Every dollar raised brings hope to another child. \n3. Sign Up for Our Newsletter: Stay informed and connected. Our newsletter provides updates\, stories\, and opportunities to get involved. By signing up\, you become part of a community dedicated to making a difference. \n 
URL:https://epilepsysurgeryalliance.org/event/epilepsy-awareness-month/
CATEGORIES:Awareness
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/Three-purple-awareness-ribbons-against-a-purple-background.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231031T120000
DTEND;TZID=America/New_York:20231102T010000
DTSTAMP:20260627T100701
CREATED:20230901T211247Z
LAST-MODIFIED:20230901T211247Z
UID:18732-1698753600-1698886800@epilepsysurgeryalliance.org
SUMMARY:Epilepsy Awareness Day at Disneyland
DESCRIPTION:Epilepsy Awareness Day at Disneyland is the world’s largest epilepsy event! Learn from experts while you surround yourself with people who understand the journey. \nThis year we have the honor of organizing all the adult and pediatric epilepsy surgery sessions. Thank you to the organizers at Sophie’s Journey for entrusting us with this important role. \n\nGeneral Event Information\nFree Tickets
URL:https://epilepsysurgeryalliance.org/event/epilepsy-awareness-day-at-disneyland/
LOCATION:Disneyland Hotel\, 1150 Magic Way\, Anaheim\, CA\, 92802\, United States
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/Website-Events-Calendar-Image.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231027T173000
DTEND;TZID=America/New_York:20231027T203000
DTSTAMP:20260627T100701
CREATED:20230817T194843Z
LAST-MODIFIED:20231016T024349Z
UID:18649-1698427800-1698438600@epilepsysurgeryalliance.org
SUMMARY:Give for Hope™ Boo Bash (Washington DC)
DESCRIPTION:Join us at the beautiful French Embassy in Washington\, DC! As the Pediatric Epilepsy Surgery Alliance’s national signature event\, the Give for Hope™ Boo Bash benefits Dreams for Danny – our surgical evaluation travel scholarship. \nThe Problem\nOne-third of children with epilepsy have seizures that medication cannot control. Epilepsy surgery brings hope to stop or reduce seizures\, but finding out whether your child is a candidate for surgery at a specialized epilepsy center can be costly. \nHow You Can Solve It\nYour generosity enables us to provide up to $1\,000 to families facing the overwhelming costs associated with their child’s essential hospital tests. Your support alleviates the financial burden of airfare\, gas\, lodging\, and meals\, giving families the hope and focus they need during a critical time. Together\, we’re not just covering expenses; we’re offering a lifeline for families as they explore surgical options that could change their child’s life. \nYour contributions are vital in helping us reach our ambitious goal of raising $50\,000. With your support\, we aim to provide 50 or more children suffering from medication-resistant seizures the opportunity for a life-changing surgical evaluation.\nHonoring Disability Stars\nThis event is also a platform to honor those with relentless dedication to our community. This year’s honoree is Maureen van Stone\, Esq. the esteemed director of the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute and the founding director of Project HEAL (Health\, Education\, Advocacy\, Law). With an unwavering dedication to children with disabilities\, Ms. van Stone has pioneered transformative programs that combine healthcare\, education\, and legal advocacy to empower families in need. Her exceptional work through Project HEAL\, Maryland’s only medical-legal partnership\, has provided invaluable resources to low-income families and children with disabilities. A distinguished leader in the field\, she embodies the spirit of community service and is an inspiration to us all. \nAbout the event\nEnjoy hosted beer and French wine bar\, refreshments and appetizers\, a dinner buffet\, pizza for the kids\, silent auction\, trick or treating\, costume contest\, and monster mash dance party! \nCostumes or cocktail attire encouraged. \nTickets\n\nAdult – Regular: $50*\nAdult – VIP: $250**- Includes recognition at event\, preferred seating\, and champagne toast\nVisionary Table: $1\,500* – Deepen your commitment to our community with friends\, family\, or colleagues. Includes admission for ten persons\, dedicated sign\, preferred table location\, champagne toast\, recognition at event\, and on website\, meet and greet with honoree. Email Brittany Carver at bcarver@epilepsysurgeryalliance.org to purchase your visionary table.\nFree for children\n\n📣 *We are delighted to announce that thanks to the generous support of our corporate sponsors\, Livanova and Zimmer Biomet\, we have twelve complimentary adult tickets available for families who may not be able to afford the regular ticket price. Email bcarver@epilepsysurgeryalliance.org to learn more. Tickets are on a first-come\, first-served basis. \nDon’t forget to set up your own peer-to-peer fundraiser! It’s easy and a fun way to raise critical funds for this important program. Start your fundraiser here today. \n**Only amounts in excess of the fair market value of each ticket are tax deductible. Adult and Visionary Pass – valued at $40; VIP table – valued at $400. Recognition at the event and on the website is deemed to be “good will” and without monetary value. \n  \nGet Your Tickets \nDreams for Danny is funded in part by the generosity of \n \n\nBoo Bash Sponsors\n  \nAlly \n\n\n \nPatron \n\n  \n \n \n  \n \n  \n \n  \nFriend \n\n \n  \nVisionary \n \n  \n  \n  \n  \nCorporate Partnership: Help make this event a success and give a child hope – Boo Bash Sponsorship Package – Industry
URL:https://epilepsysurgeryalliance.org/event/give-for-hope-boo-bash-2/
LOCATION:French Embassy\, 4101 Reservoir Rd NW\, Washington\, DC\, 20007\, United States
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/08/Event-page-.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
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