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X-WR-CALDESC:Events for Pediatric Epilepsy Surgery Alliance
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DTSTART;VALUE=DATE:20260424
DTEND;VALUE=DATE:20260426
DTSTAMP:20260504T064044
CREATED:20260227T144112Z
LAST-MODIFIED:20260406T113620Z
UID:20498-1776988800-1777161599@epilepsysurgeryalliance.org
SUMMARY:Epilepsy Awareness Day at Disneyworld
DESCRIPTION:Epilepsy Awareness Day at Walt Disney World is a two-day epilepsy education and community event at Disney’s Contemporary Resort in Orlando on April 25–26\, 2026.  People with epilepsy\, families\, and clinicians\, with extensive medical education covering diagnosis\, treatment options\, epilepsy surgery\, and patient stories\, plus opportunities to connect with other families and advocacy groups. \nApril 24 – Expo: We’ll have a table at the expo where you can learn about our resources and programs. Don’t miss our session on School Advocacy at 10:00 a.m. in Room F. \nApril 25 – A Day at Disneyworld \n 
URL:https://epilepsysurgeryalliance.org/event/epilepsy-awareness-day-at-disneyworld/
LOCATION:Disney’s Contemporary Resort\, 4600 World Dr\,\, Lake Buena Vista\, FL\, 32830\, United States
CATEGORIES:Awareness
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2026/02/EADDL-Disney-World.jpg
ORGANIZER;CN="Epilepsy Alliance Florida":MAILTO:info@eafla.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260328T080000
DTEND;TZID=America/New_York:20260328T170000
DTSTAMP:20260504T064045
CREATED:20260227T162754Z
LAST-MODIFIED:20260227T163240Z
UID:20504-1774684800-1774717200@epilepsysurgeryalliance.org
SUMMARY:Purple Day Expo • Orlando\, FL
DESCRIPTION:A day dedicated to education\, connection\, creativity\, and hope. The Purple Day® Expo brings together individuals\, families\, healthcare professionals\, advocates\, and organizations from around the world to share resources\, inspire action\, and celebrate the epilepsy community. \nOur founder\, Monika Jones\, will present a session with Advent Health’s pediatric neurosurgeon\, Dr. Shelly Wang. where they’ll discuss various epilepsy surgeries and when to consider them. Swing by our booth to learn more about our programs and resources\, too. We can’t wait to see you ther!
URL:https://epilepsysurgeryalliance.org/event/purple-day-expo-orlando-fl/
CATEGORIES:Awareness
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2026/02/Purple-Day-2026-Expo.jpg
ORGANIZER;CN="The Anita Kaufman Foundation":MAILTO:debra@akfus.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251207T183000
DTEND;TZID=America/New_York:20251207T203000
DTSTAMP:20260504T064045
CREATED:20251113T233358Z
LAST-MODIFIED:20251128T150713Z
UID:20406-1765132200-1765139400@epilepsysurgeryalliance.org
SUMMARY:Seamless Handoffs in Pediatric-to-Adult Epilepsy Surgery Care
DESCRIPTION:This meeting focuses on one of the weakest links in complex epilepsy care: the transition from pediatric to adult providers for youth with prior epilepsy surgery including neuromodulation devices. When records\, imaging\, and device data are missing or fragmented\, adult teams are flying blind\, which delays care and increases risk when seizures recur\, batteries need replacement\, or shunt problems arise. \nPediatric and adult epileptologists\, neurologists\, neurosurgeons\, nurses/APPs\, and neuroradiologists will work together on three concrete tasks: practical ways to share imaging\, building named pediatric–adult contact partnerships\, ideating a usable transfer packet that includes surgical summaries and device details. Participants will leave with a transfer packet template\, a first draft of a contact tree that links pediatric and adult points of contact\, and one specific action to improve transition processes in their own setting. \nModerated by Dr. George Ibrahim\, Abe Bresver Chair in Functional Neurosurgery\, The Hospital for Sick Kids \nSpeakers include Dr. Jeffrey Blount\, Raymond J. Harbert Chair in Pediatric Neurosurgery\, Children’s of Alabama\, and Dr. Laura Kirkpatrick\, Director\, Epilepsy Transition Clinic\, UPMC Children’s Hospital of Pittsburgh. \n  \nBY INVITATION ONLY \nREGISTER BELOW \n  \n\n 
URL:https://epilepsysurgeryalliance.org/event/seamless-handoffs-in-pediatric-to-adult-epilepsy-surgery-care/
LOCATION:Omni Hotel\, 190 Marietta St NW\, Atlanta\, GA\, 30303\, United States
CATEGORIES:Meeting
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/11/IMG-family-with-teenage-girl.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251205
DTEND;VALUE=DATE:20251209
DTSTAMP:20260504T064045
CREATED:20250320T153419Z
LAST-MODIFIED:20251202T015954Z
UID:20004-1764892800-1765238399@epilepsysurgeryalliance.org
SUMMARY:American Epilepsy Society Annual Meeting | Atlanta\, GA
DESCRIPTION:If you’re attending the annual meeting of the American Epilepsy Society\, please stop by booth #754 to learn how we support families before and after surgery\, grab materials for your clinic\, or talk about collaboration. If you are working in pediatric epilepsy\, neurosurgery\, child neurology\, nursing\, psychology\, or industry\, we want to hear what you are seeing in your practice and how we can partner. \nHow We’re Amplifying the Voice of Our Community at the Meeting \n• Audrey Vernick\, our Director of Patient and Family Advocacy\, and our founder Monika Jones will be presenting at the Psychosocial Comorbidities SIG – Whole-Person Health: Prioritizing Care Partner Well-Being In Epilepsy on Saturday\, December 6th at 2:30 pm. We’ll focus on the medical trauma associated with having a child go through epilepsy surgery and what this means for children with drug-resistant epilepsy and their caregivers. \n• On Sunday\, December 7th\, at 6:30 pm where we’ll have a candid conversation about the major gaps in care for children transitioning from pediatric to adult epilepsy surgery care\, and what real world solutions may help. We see so many children who have seizures return in early adulthood\, many of whom have nuanced cognitive challenges that can make it difficult for them to navigate reoperation or consideration for neuromodulation devices. Thank you Drs. George Ibrahim for moderating this important meeting\, Jeffrey Blount taking us through the gaps\, and Laura Kirkpatrick for sharing transition of care models that work. To register for this dinner\, sign up here. \n• On Monday\, December 8th\, our founder Monika Jones joins the Pediatric State of the Art Symposium: It’s Not Just About Resection – Neuromodulation in Pediatrics. Her talk will help attendees understand the pediatric epilepsy surgery journey.  At noon\, she will be presenting a poster with Dr. Shaun Hussain\, Director of the UCLA Infantile Spasms Project\, where they’ll show how delay to diagnosis and delay to epilepsy surgery is correlated with cognitive and speech acquisition delays.
URL:https://epilepsysurgeryalliance.org/event/american-epilepsy-society-aes-annual-meeting-atlanta-ga/
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/2025-aes-annual-meeting.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251110T090000
DTEND;TZID=America/New_York:20251111T170000
DTSTAMP:20260504T064045
CREATED:20250320T152620Z
LAST-MODIFIED:20250320T152620Z
UID:20000-1762765200-1762880400@epilepsysurgeryalliance.org
SUMMARY:Epilepsy Awareness Day @ Disneyland (EADDL) | Anaheim\, CA
DESCRIPTION:In an effort to address the unmet needs for increased education for people with epilepsy and their families\, we (Sofie’s Journey) have created the Epilepsy Awareness & Education Expo and Epilepsy Awareness Day at Disneyland. Our goal is to help educate as many people as possible & teach them to advocate and find the cure they are looking for. \nExperience the magic at Epilepsy Awareness Day at Disneyland – the biggest gathering of epilepsy physicians and patients on earth\, set amidst the enchanting backdrop of Disneyland. Join us for an unforgettable experience filled with medical expertise\, patient stories\, and the wonder of the happiest place on Earth. \n\nThe Pediatric Epilepsy Surgery Alliance coordinates all epilepsy surgery talks for the two-day expo.\nPESA will attend and have a booth at their expo.
URL:https://epilepsysurgeryalliance.org/event/epilepsy-awareness-day-disneyland-eaddl-anaheim-ca/
LOCATION:Disneyland Resort\, Anaheim\, CA\, 92802\, United States
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/Disneyland-Resort.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251022T080000
DTEND;TZID=America/New_York:20251022T090000
DTSTAMP:20260504T064045
CREATED:20260412T140336Z
LAST-MODIFIED:20260412T140409Z
UID:20374-1761120000-1761123600@epilepsysurgeryalliance.org
SUMMARY:Sharing the Sibling Experience: Insights from Adult Siblings
DESCRIPTION:  \n\nDrug-resistant epilepsy is relentless. It disrupts daily life\, creates uncertainty\, and impacts the whole family. Seizures can happen anytime\, bringing terrifying moments and constant stress. \nEven after surgery\, challenges often remain: medical side effects\, behavior struggles\, learning difficulties\, and endless appointments. Parents are consumed with managing it all\, and siblings often feel the impact in ways that aren’t consistently recognized. \nAs siblings grow up\, their roles can shift. Some step into caregiving or care management\, especially as parents age or pass away. These transitions bring new emotions\, responsibilities\, and decisions. \nIn this Power Hour\, Emily Holl\, Director of the Sibling Support Project\, will lead a candid conversation with three adult siblings who grew up in families shaped by drug-resistant epilepsy and epilepsy surgery: \n\nAn attorney whose sister had epilepsy surgery as a child\nA young adult reflecting on his brother’s hemispherectomy\nA pediatric neurologist whose brother lived with seizures and later died from SUDEP\n\nTogether\, they will share stories that reflect a saying often heard in our community: “Once a sib\, always a sib.” Even after loss\, the sibling bond continues to shape their lives. \nTopics include: \n\nGrowing up with the unpredictability of seizures\nThe emotional impact of emergencies and divided parental attention\nHow parents can support their other children while navigating epilepsy’s challenges\nThe evolving role of siblings in adulthood\, including caregiving and long-term planning\nHonest reflections on what helped\, and what they wish had been different\n\nThis video is for caregivers who want to better understand the sibling experience\, as well as teen and adult siblings seeking connection and validation. \nPlease note: This video will include a discussion of SUDEP (Sudden Unexpected Death in Epilepsy) and epilepsy related death. \n  \n 
URL:https://epilepsysurgeryalliance.org/event/sharing-the-sibling-experience-insights-from-adult-siblings-2/
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/10/skill-development-of-disabled-child-on-wheelchair-2025-01-08-02-39-20-utc-scaled.jpg
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251015T130000
DTEND;TZID=America/New_York:20251015T143000
DTSTAMP:20260504T064045
CREATED:20250703T145700Z
LAST-MODIFIED:20250819T183009Z
UID:20200-1760533200-1760538600@epilepsysurgeryalliance.org
SUMMARY:Sharing the Sibling Experience: Insights from Adult Siblings
DESCRIPTION:Drug-resistant epilepsy is relentless. It disrupts daily life\, creates uncertainty\, and impacts the whole family. Seizures can happen anytime\, bringing terrifying moments and constant stress.  \nEven after surgery\, challenges often remain: medical side effects\, behavior struggles\, learning difficulties\, and endless appointments. Parents are consumed with managing it all\, and siblings often feel the impact in ways that aren’t always recognized. \nAs siblings grow up\, their roles can shift. Some step into caregiving or care management\, especially as parents age or pass away. These transitions bring new emotions\, responsibilities\, and decisions. \nIn this Power Hour\, Emily Holl\, Director of the Sibling Support Project\, will lead a candid conversation with three adult siblings who grew up in families shaped by drug-resistant epilepsy and epilepsy surgery: \n\nAn attorney whose sister had epilepsy surgery as a child\nA young adult reflecting on his brother’s hemispherectomy\nA pediatric neurologist whose brother lived with seizures and later died from SUDEP\n\n\nTogether\, they will share stories that reflect a saying often heard in our community: “Once a sib\, always a sib.” Even after loss\, the sibling bond continues to shape their lives. \nTopics include: \n\nGrowing up with the unpredictability of seizures\nThe emotional impact of emergencies and divided parental attention\nHow parents can support their other children while navigating epilepsy’s challenges\nThe evolving role of siblings in adulthood\, including caregiving and long-term planning\nHonest reflections on what helped\, and what they wish had been different\n\n\nThis event is for caregivers who want to better understand the sibling experience\, as well as teen and adult siblings seeking connection and validation. \nPlease note: This session will include a discussion of SUDEP (Sudden Unexpected Death in Epilepsy) and epilepsy related death. October 15th is SUDEP Action Day\, a day of international action that shines a light on the largest cause of death in people with epilepsy.  \nRegister Here!\n  \n\nAbout our speaker:\nEmily Holl is the Director of the Sibling Support Project\, a social worker\, author\, trainer\, and sibling advocate. Since 2003\, she has worked in the disability field\, providing workshops\, training\, and support for siblings\, families\, and individuals with disabilities. She has conducted and published research on sibling issues\, facilitated future planning workshops for families\, and co-facilitated Sibshops for school-age siblings of children with developmental\, health\, and mental health concerns. \nEmily has served as a board member of the Sibling Leadership Network (SLN) and founded sibsNY\, the New York chapter of SLN. She has written about her personal sibling experiences in various publications\, including Thicker than Water and The Sibling Survival Guide: Indispensable Information for Adult Brothers and Sisters of People with Disabilities. \nEmily holds degrees from the University of Massachusetts\, Columbia University\, and Hunter College (CUNY). She previously worked as a social worker in New York City and later as Director of Academic Support at St. Paul College in Minnesota\, overseeing disability resources and equity initiatives. She lives in the Greater Seattle area with her husband and two young sons. As the primary family support for her brother\, she deeply understands the complexities of the sibling experience and the importance of a strong support network.
URL:https://epilepsysurgeryalliance.org/event/sharing-the-sibling-experience-insights-from-adult-siblings/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/07/friendship-little-boy-and-girl-walking-together-o-2025-03-26-02-44-37-utc-scaled.jpg
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251007
DTEND;VALUE=DATE:20251012
DTSTAMP:20260504T064045
CREATED:20250320T151551Z
LAST-MODIFIED:20250917T014809Z
UID:19997-1759795200-1760227199@epilepsysurgeryalliance.org
SUMMARY:54th CNS Annual Meeting | Charlotte\, NC
DESCRIPTION:The Pediatric Epilepsy Surgery Alliance will be at the 2025 Child Neurology Society Annual Meeting to advocate for families affected by drug-resistant epilepsy. These in-person gatherings are a vital opportunity to engage directly with clinicians\, share real-world family experiences\, and collaborate on ways to improve care across the lifespan. If you’ll be attending\, we’d love to connect! \n\nPresentation Highlight \nAudrey Vernick\, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance\, has been invited to speak at the Child Neurology Foundation’s Transition of Care Task Force Meeting on October 7\, 2025\, in Charlotte. Her presentation will focus on the real-world challenges families face when pediatric care ends\, especially for youth with complex neurological conditions. Transition to adulthood is not a simple handoff. For many\, it’s the beginning of lifelong care needs that require coordination\, communication\, and compassion. Despite the existence of excellent models and tools\, too many families still fall through the cracks. This meeting will focus on the adult side of transition and how we can work together\, across systems and specialties\, to create meaningful\, actionable change for our community.
URL:https://epilepsysurgeryalliance.org/event/54th-cns-annual-meeting-child-neurology-society/
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/CSN-Annual-Conference.jpg
ORGANIZER;CN="Child Neurology Society":MAILTO:nationaloffice@childneurologysociety.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T190000
DTEND;TZID=America/New_York:20250908T200000
DTSTAMP:20260504T064045
CREATED:20250818T232335Z
LAST-MODIFIED:20250818T232931Z
UID:20251-1757358000-1757361600@epilepsysurgeryalliance.org
SUMMARY:Back To School Open Forum
DESCRIPTION:Getting ready to send your child back to school? Join us for a special Back to School Power Hour. This open forum is for parents and caregivers of children with drug-resistant epilepsy\, epilepsy surgery histories\, or complex neurological needs.\n\nWe’ll kick things off with a brief overview of Seizure Action Plans: what they are\, why they matter\, and how to make sure your child’s plan is clear\, complete\, and actually followed at school.\n\n\nNext\, we’ll answer your questions about our most popular education tools to help you advocate for your child with confidence:\n\n\nNavigating the IEP Process (self-paced course)PESA’s Educational Assessments Checklists (spreadsheet)PESA’s IEP GoalBank (spreadsheet)PESA’s Special Education Resource Guide (spreadsheet)\n\n\nThen we’ll open the floor for conversation. Bring your questions\, your challenges\, your wins\, and everything in between. You’ll find encouragement and understanding here\, whether you’re feeling hopeful\, overwhelmed\, or somewhere in the middle.\n\nThis is your space; a chance to breathe\, be heard\, and connect with others on a similar path.\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\nRegister Now
URL:https://epilepsysurgeryalliance.org/event/back-to-school-open-forum/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/08/GPH-Back-to-school-1200-x-628.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T190000
DTEND;TZID=America/New_York:20250908T200000
DTSTAMP:20260504T064045
CREATED:20250802T163759Z
LAST-MODIFIED:20250802T163759Z
UID:20243-1757358000-1757361600@epilepsysurgeryalliance.org
SUMMARY:Power Hour: Back to School Open Forum
DESCRIPTION:Getting ready to send your child back to school? Join us for a special Back to School Power Hour. This open forum is for parents and caregivers of children with drug-resistant epilepsy\, epilepsy surgery histories\, or complex neurological needs. \nWe’ll kick things off with a brief overview of Seizure Action Plans: what they are\, why they matter\, and how to make sure your child’s plan is clear\, complete\, and actually followed at school. \nNext\, we’ll answer your questions about our most popular education tools to help you advocate for your child with confidence: \n\nNavigating the IEP Process (self-paced course)\nPESA’s Educational Assessments Checklists (spreadsheet)\nPESA’s IEP GoalBank (spreadsheet)\nPESA’s Special Education Resource Guide (spreadsheet)\n\nThen we’ll open the floor for conversation. Bring your questions\, your challenges\, your wins\, and everything in between. You’ll find encouragement and understanding here\, whether you’re feeling hopeful\, overwhelmed\, or somewhere in the middle. \nThis is your space; a chance to breathe\, be heard\, and connect with others on a similar path. \nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.
URL:https://epilepsysurgeryalliance.org/event/power-hour-back-to-school-open-forum/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/08/school-supplies-and-green-backpack-on-blue-backgro-2025-02-12-05-02-13-utc-scaled.jpg
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250806T190000
DTEND;TZID=America/New_York:20250806T200000
DTSTAMP:20260504T064045
CREATED:20250703T152151Z
LAST-MODIFIED:20250708T182032Z
UID:20204-1754506800-1754510400@epilepsysurgeryalliance.org
SUMMARY:Preparing Teens and Families for Adult Health Care
DESCRIPTION:Preparing for adult health care is a significant milestone\, especially for teens who have had epilepsy surgery. From managing medications to navigating health insurance\, this transition requires planning\, advocacy\, and the right tools. \nThis Power Hour will give teens and caregivers practical strategies to support a smooth healthcare transition. Whether your teen has an IEP\, a 504 Plan\, or needs extra support navigating this major transition\, you’ll learn how to build real-world skills that lead to greater health independence. \nWe’ll cover: \n• Transition Planning Tools: How to use IEPs\, 504 Plans\, and checklists to build medical self-advocacy and independence \n• Medical Self-Advocacy: Helping teens learn to talk with doctors\, manage medications\, and participate in their own care \n• Seizure Safety: What young adults need to know about rescue medications and safety plans for school\, college\, and work \n• Legal and Practical Steps: Understanding medical power of attorney\, insurance\, emergency planning\, and the shift to adult providers \n• Resources and Support: Access to tools\, checklists\, and trusted organizations that support teens and families through the transition \nThis session was adapted from a presentation created for the National Association of School Nurses (NASN)\, now tailored explicitly for families navigating epilepsy and childhood epilepsy surgery. \nWho Should Attend? Teens with epilepsy or other neurological conditions and parents or caregivers supporting their transition to adult health care. \nHosted by: Audrey Vernick\, Director of Patient and Family Advocacy\, Pediatric Epilepsy Surgery Alliance. \nRegister Here!\n \n  \nThis session is brought to you by our corporate sponsor\, UCB. \nWe are grateful for their support!
URL:https://epilepsysurgeryalliance.org/event/power-hour-preparing-teens-and-families-for-adult-health-care/
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/07/a-young-girl-sitting-on-an-examination-table-looks-2025-01-29-04-32-20-utc.jpg
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250707T110000
DTEND;TZID=America/New_York:20250709T170000
DTSTAMP:20260504T064045
CREATED:20250320T144346Z
LAST-MODIFIED:20250603T050209Z
UID:19991-1751886000-1752080400@epilepsysurgeryalliance.org
SUMMARY:How School Nurses Can Support the Transition to Adulthood
DESCRIPTION:How School Nurses Can Support the Transition to Adulthood for Students with Complex Health Needs\nSpeaker: Audrey Vernick\, Megan Carlson\nSession: Virtual Anytime Sessions (Viewable between July 7\, 2025 and October 11th\, 2025 \nThe transition to adulthood for students with complex health needs\, such as epilepsy\, requires targeted support from school nurses\, who play a vital role in this process. This session will equip school nurses with practical strategies to promote health literacy\, medical self-advocacy\, and care coordination\, all essential for helping students achieve health independence. Using epilepsy as a case study\, the session will guide participants on incorporating health-related goals into Individualized Education Programs (IEPs) and developing comprehensive medical self-care plans\, including emergency protocols. \nAttendees will learn how to assess students’ health literacy\, collaborate effectively with IEP teams\, and design tailored health goals that address students’ specific medical needs. The session will also cover critical legal and medical considerations\, such as medical power of attorney and end-of-life decisions\, necessary for a smooth transition to adulthood. \nAn interactive case-study approach will allow participants to apply transition strategies to various student scenarios\, ensuring hands-on learning and take-home tools that can be implemented in their schools. \nThe session will also emphasize diversity\, equity\, and inclusion (DEI) in transition planning\, focusing on equitable healthcare access and culturally competent care. School nurses will explore how social determinants\, language barriers\, and cultural values shape transition planning to ensure all students\, regardless of background\, successfully transition to adulthood. \nAligned with NASN’s Framework™\, this session supports the pillars of Care Coordination\, Standards of Practice\, and Leadership\, empowering school nurses to advocate for equitable\, individualized care and improved student outcomes.
URL:https://epilepsysurgeryalliance.org/event/nasn2025/
LOCATION:Virtual
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/NASN2025_Logo_Website_Card_Tile.jpg
ORGANIZER;CN="National Association for School Nurses":MAILTO:nasn@nasn.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250630T170000
DTEND;TZID=America/New_York:20250630T170000
DTSTAMP:20260504T064045
CREATED:20250426T221322Z
LAST-MODIFIED:20250611T151546Z
UID:20089-1751302800-1751302800@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR - Understanding Neurodevelopmental Disorders After Epilepsy Surgery
DESCRIPTION:Many children with drug-resistant epilepsy (DRE) also have learning\, behavior\, or attention challenges—but families are often left wondering what’s going on or how to get help. These challenges are sometimes part of something called a neurodevelopmental disorder (NDD). \nBut what is an NDD? How do you know if your child has one? And how do you get help? \nIn this Power Hour\, pediatric neurologist Dr. Shafali Jeste will explain NDDs in clear\, simple language. \nShe’ll cover: \n\nWhat neurodevelopmental disorders are\nHow they’re diagnosed\nHow they can overlap with epilepsy\, autism\, ADHD\, and learning delays\nHow the correct diagnosis can help unlock proper supports and services for your child\n\nThis talk is perfect for parents who are dealing with: \n\nBehavior or attention issues\nLearning delays\nTrouble getting school services or knowing what to ask for\n\nDr. Jeste will discuss how these issues may be present before epilepsy surgery\, may change after surgery\, or show up later on. Every child’s path is different—and having the right information can make a big difference. \nWho Should Attend: \nParents and caregivers of children with drug-resistant epilepsy (including genetic epilepsies like TSC\, Dravet\, or LGS) and ADHD\, autism\, or other suspected neurodevelopmental disorders. \nREGISTER HERE!\n\n\nPresented by the Pediatric Epilepsy Surgery Alliance in collaboration with \n\n TSC Alliance\nLGS Foundation\nCHADD’s National Resource Center on ADHD \n\n\n \n\n\nAbout our speaker:\nDr. Shafali Jeste is a behavioral child neurologist who specializes in autism and related neurodevelopmental disorders in children with epilepsy and genetic conditions. She is Chief of Neurology at Children’s Hospital Los Angeles and Professor of Pediatrics and Neurology at the USC Keck School of Medicine. \nHer research focuses on early diagnosis and treatment of NDDs\, especially in children with conditions like Tuberous Sclerosis Complex (TSC). She has led groundbreaking studies using brain-based tools to better understand autism\, ADHD\, and developmental delays in children with epilepsy. Dr. Jeste also helped develop clinical programs that provide specialized care for kids with complex neurodevelopmental needs. She is recognized for translating research into practical\, family-centered care and is a national leader in the fields of epilepsy and neurodevelopmental disorders (NDDs). \nDr. Jeste has published over 150 research articles and holds leadership roles with organizations such as the National Organization for Rare Disorders\, the TSC Alliance\, and the National Academies of Sciences\, Engineering\, and Medicine. Her work has been recognized with awards such as the Presidential Early Career Award and the Child Neurology Society’s Martha Bridge Denckla Award. She founded two specialized clinics for children with neurogenetic and developmental disabilities—CARING at UCLA and KiNDD at CHLA—and recently launched one of only three neurodevelopmental disorder fellowships in the country. \nOutside of work\, Dr. Jeste is a proud tennis mom to her two sons\, Nischal and Kiran\, and enjoys running marathons in her spare time.
URL:https://epilepsysurgeryalliance.org/event/6-30-25-power-hour/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/04/PESA-Power-Hour-Image.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250613T163000
DTEND;TZID=America/New_York:20250615T120000
DTSTAMP:20260504T064045
CREATED:20250426T155130Z
LAST-MODIFIED:20250531T010717Z
UID:20075-1749832200-1749988800@epilepsysurgeryalliance.org
SUMMARY:CHD2 Family & Scientific Conference
DESCRIPTION:The Pediatric Epilepsy Surgery Alliance is honored to participate in the Coalition to Cure CHD2 Family and Scientific Conference\, taking place June 13–15\, 2025\, in Westminster\, Colorado. \nOur Director of Patient and Family Advocacy\, Audrey Vernick\, will present on two important topics: \nTransition to Adult Care: Navigating Educational\, Social\, and Employment IssuesWhat does comprehensive life planning look like for individuals with CHD2 and their families? This session will explore the broader transition to adulthood — beyond just healthcare — including education\, employment\, community access\, emotional wellbeing\, and support services across the lifespan. \nPsychosocial Care for FamiliesA practical\, family-centered discussion focused on supporting both caregivers\, siblings\, and children living with complex neurological conditions. \nThe CHD2 conference brings together families\, clinicians\, and researchers working to advance care and research for this rare genetic epilepsy. Our involvement reflects the mission of The Alliance to support families navigating complex epilepsy\, neurodevelopmental challenges\, and surgical treatment decisions. \nWe look forward to connecting with the CHD2 community\, sharing valuable resources\, and strengthening our collaboration with the team at Children’s Hospital Colorado. \nStay tuned for updates from the conference!
URL:https://epilepsysurgeryalliance.org/event/chd2-family-scientific-conference/
LOCATION:Westin Westminster\, 10600 Westminster Boulevard\, Westminster\, CO\, 80020\, United States
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/04/CHD2-conference.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250517T001500
DTEND;TZID=America/New_York:20250517T010000
DTSTAMP:20260504T064045
CREATED:20250318T204848Z
LAST-MODIFIED:20250318T211919Z
UID:19980-1747440900-1747443600@epilepsysurgeryalliance.org
SUMMARY:Global Pediatric Epilepsy Surgery Registry: Hemispherectomy Outcomes
DESCRIPTION:Monika Jones\, Founder and Executive Director of the Pediatric Epilepsy Surgery Alliance (PESA) and Principal Investigator of the Global Pediatric Epilepsy Surgery Registry\, will present “The Pediatric Epilepsy Surgery Alliance Registry: Hemispherectomy Outcomes” at the Hemispherectomy Foundation Australia’s HemiCon Australia 2025. \nThis session will highlight findings from the Global Pediatric Epilepsy Surgery Registry\, a research initiative collecting data from families worldwide to better understand life after epilepsy surgery. The registry aims to answer critical questions about long-term outcomes\, post-surgical therapies\, and challenges that may arise after epilepsy surgery. \nKey Topics Include:\n\nLong-term developmental and functional outcomes after hemispherectomy\nEffective post-surgical therapies and interventions\nUnrecognized symptoms and medical issues reported by families\nThe impact of epilepsy surgery on quality of life\nHow registry data can drive improvements in care and research\n\nAbout Monika Jones\nMonika’s dedication to epilepsy surgery advocacy is deeply personal. Her son\, Henry\, was born with total hemimegalencephaly\, a rare brain malformation that caused him to have hundreds of seizures per day beginning in infancy. Despite multiple medications\, Henry experienced status epilepticus at three months old\, leading to an emergency modified lateral hemispherotomy. When his seizures returned\, he required two additional hemispherectomy surgeries\, resulting in chronic hydrocephalus\, multiple shunt procedures\, and other medical challenges. \nFrustrated by the lack of research and resources for post-surgical care\, Monika and her husband founded The Brain Recovery Project\, which later evolved into the Pediatric Epilepsy Surgery Alliance. Today\, she is a leading advocate for improving epilepsy surgery education\, access\, and long-term support for families worldwide.
URL:https://epilepsysurgeryalliance.org/event/global-pediatric-epilepsy-surgery-registry-hemispherectomy-outcomes/
LOCATION:SeaWorld Resort\, Gold Coast\, Australia\, Seaworld Drive\, Main Beach\, Gold Coast\, Queensland\, 4217\, Australia
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/01/Registry-1-1.png
ORGANIZER;CN="Hemispherectomy Foundation Australia":MAILTO:info@hemispherectomyaustralia.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250516T193000
DTEND;TZID=America/New_York:20250516T203000
DTSTAMP:20260504T064045
CREATED:20250318T203244Z
LAST-MODIFIED:20250318T210944Z
UID:19977-1747423800-1747427400@epilepsysurgeryalliance.org
SUMMARY:Understanding Medical Trauma and Hemispherectomy Families
DESCRIPTION:Audrey Vernick\, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA)\, will be the keynote speaker at the Hemispherectomy Foundation Australia’s HemiCon Australia 2025. \nAudrey will present “Understanding Medical Trauma and Hemispherectomy Families\,” an in-depth discussion on the profound emotional and psychological impact of epilepsy surgery and the challenges families face beyond the operating room. This session will highlight the long-term effects of medical trauma and the urgent need for trauma-informed care in pediatric neurology. \nHer keynote will explore: \n\nThe difference between parental stress and medical trauma\, and why families often don’t recognize PTSD in themselves.\nThe emotional toll of hemispherectomy\, including how parents and siblings process fear\, grief\, and uncertainty before and after surgery.\nThe impact on siblings\, including disenfranchised grief and how to support their unique emotional needs.\nThe challenges of finding mental health support for children post-surgery and how to advocate for care that considers both neurological and psychological needs.\nPractical strategies for coping\, healing\, and building resilience as a family while navigating life after surgery.\n\nPESA is proud to partner with Hemispherectomy Foundation Australia to ensure that Australian families have access to peer support\, advocacy\, and guidance throughout their hemispherectomy journey. \nAbout Audrey Vernick\nAudrey’s advocacy work is deeply personal. Her first son faced serious health challenges from birth due to a prenatal stroke. Despite trying multiple treatments\, his chronic infantile spasms continued. At two and a half\, he underwent a right hemispherectomy\, which stopped his seizures completely. He later required a shunt for hydrocephalus and remains seizure-free today. \nThrough her experiences\, Audrey developed a deep understanding of the medical\, educational\, and community challenges that families face after epilepsy surgery. She now helps parents make sense of the services their child may need\, ensuring they are informed and prepared to navigate post-surgical life. Her work focuses on education planning\, long-term support\, and trauma-informed care for children post-surgery. Audrey is a certified Future Planner through The Arc\, a trained Memory Coach for HOBSCOTCH\, and serves on multiple national epilepsy and disability advisory groups.
URL:https://epilepsysurgeryalliance.org/event/understanding-medical-trauma-and-hemispherectomy-families/
LOCATION:SeaWorld Resort\, Gold Coast\, Australia\, Seaworld Drive\, Main Beach\, Gold Coast\, Queensland\, 4217\, Australia
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/1.png
ORGANIZER;CN="Hemispherectomy Foundation Australia":MAILTO:info@hemispherectomyaustralia.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250515T200000
DTEND;TZID=America/New_York:20250515T210000
DTSTAMP:20260504T064045
CREATED:20250318T202226Z
LAST-MODIFIED:20250320T201812Z
UID:19972-1747339200-1747342800@epilepsysurgeryalliance.org
SUMMARY:Psychosocial Care of Hemispherectomy Families
DESCRIPTION:Audrey Vernick\, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance (PESA)\, will be the keynote speaker at HemiCon Australia 2025\, hosted by Hemispherectomy Foundation Australia. Drawing from her personal and professional expertise\, she will present “Psychosocial Care of Hemispherectomy Families: Preparing\, Adapting\, and Thriving Together\,” offering families guidance on navigating the challenges of epilepsy surgery\, school advocacy\, long-term support\, and building resilience beyond seizure control. \nPESA is proud to partner with Hemispherectomy Foundation Australia for our Parent Support Navigator Program\, ensuring that families in Australia have access to guidance and peer support throughout their epilepsy surgery journey. \nAbout Audrey Vernick\nAudrey’s advocacy work is deeply personal. Her first son faced serious health challenges from birth due to a prenatal stroke. Despite trying multiple treatments\, his chronic infantile spasms continued. At two and a half\, he underwent a right hemispherectomy\, which stopped his seizures completely. He later required a shunt for hydrocephalus and remains seizure-free today. \nThrough her experiences\, Audrey developed a deep understanding of the medical\, educational\, and community challenges that families face after epilepsy surgery. She now helps parents make sense of the services their child may need\, ensuring they are informed and prepared to navigate post-surgical life. Her work focuses on education planning\, long-term support\, and trauma-informed care for children post-surgery. Audrey is a certified Future Planner through The Arc\, a trained Memory Coach for HOBSCOTCH\, and serves on multiple national epilepsy and disability advisory groups.
URL:https://epilepsysurgeryalliance.org/event/psychosocial-care-of-hemispherectomy-families-preparing-adapting-and-thriving-together/
LOCATION:SeaWorld Resort\, Gold Coast\, Australia\, Seaworld Drive\, Main Beach\, Gold Coast\, Queensland\, 4217\, Australia
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/3-1.png
ORGANIZER;CN="Hemispherectomy Foundation Australia":MAILTO:info@hemispherectomyaustralia.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250501T190000
DTEND;TZID=America/New_York:20250501T200000
DTSTAMP:20260504T064045
CREATED:20250417T195531Z
LAST-MODIFIED:20250417T195531Z
UID:20054-1746126000-1746129600@epilepsysurgeryalliance.org
SUMMARY:Power Hour: School Questions Open Forum
DESCRIPTION:School can feel like a constant battle—whether your child has an IEP\, a 504 Plan\, or you’ve chosen to homeschool. In this Power Hour\, we’ll kick things off with a quick overview of seizure action plans and our key education resources\, then open the floor for real conversation. \nThis is your space to ask the hard questions\, share what’s working (or what isn’t)\, and connect with other parents who truly get it. Some of us have supportive school teams. Others are fighting for every service. Many of us are simply exhausted and need to know we’re not alone. \nCome as you are. No pressure\, no judgment—just honest talk\, shared experiences\, and support from a community that truly understands. You are welcome here whether you’re early in the school journey or preparing for adulthood. \nFor parents and caregivers of children with drug-resistant epilepsy\, epilepsy surgery histories\, and complex educational needs. \nNote: Our open forum sessions are not recorded to promote open and honest discussion. \nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick. \nREGISTER HERE!\n \nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n \nPower Hour sessions are brought to you by our corporate sponsor UCB. \nWe are grateful for their support!
URL:https://epilepsysurgeryalliance.org/event/power-hour-school-questions-open-forum/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250415T130000
DTEND;TZID=America/New_York:20250415T143000
DTSTAMP:20260504T064045
CREATED:20250310T233023Z
LAST-MODIFIED:20250426T142639Z
UID:19934-1744722000-1744727400@epilepsysurgeryalliance.org
SUMMARY:Power Hour: Making It to Monday – A Conversation on Medical Trauma\, Resilience\, and Community
DESCRIPTION:For parents and caregivers of children with neurological conditions\, the challenges don’t end when the medical crisis is over. The emotional impact—watching your child undergo procedures\, facing an uncertain future\, and managing ongoing care—can be overwhelming. \nMedical trauma is real\, yet it is rarely acknowledged in healthcare settings. Both children and caregivers can experience anxiety\, PTSD\, exhaustion\, and burnout\, often without realizing that these are symptoms of trauma. \nFor many families\, the effects of medical trauma remain unspoken\, leading to isolation\, self-doubt\, and emotional exhaustion. But healing starts with recognition\, connection\, and support. \nIn this discussion\, Jennifer Nunes (social worker and author of Making It to Monday) will be joined by a panel of parents who will answer questions and share their lived experiences. \nTopics include:\n\nWhat is medical trauma\, and how does it affect both children and caregivers?\nRecognizing trauma responses in both parents and children\, including PTSD\, anxiety\, and emotional burnout.\nPractical tools for healing\, including therapy options\, self-care strategies\, and trauma-informed approaches.\nThe power of community and peer support in navigating life after a medical crisis.\nHow parents can advocate for trauma-informed care in medical settings.\n\nJoin us for this honest and validating conversation about the emotional impact of medical trauma—and how families can find strength\, healing\, and hope. \nREGISTER HERE! \nAbout our speaker:\nJennifer Nunes is a registered social worker\, author\, and public speaker in Greater Toronto. With over a decade of experience in clinical social work\, Jennifer specializes in addressing and treating issues such as anxiety\, trauma\, caregiver stress\, and self-esteem. She wrote Making It to Monday\, an Amazon bestselling memoir that chronicles her family’s journey through her son’s medical crisis. The book promotes resilience\, accessing inner strength through vulnerability\, and finding joy in the chaos. Jennifer is also an active public speaker\, offering workshops and seminars on caregiver advocacy and positive psychology. \n \nAbout our panelists:\nCamie Rodan is the mom of two beautiful children\, including a 10-year-old son who had multiple perinatal strokes. After her son received a grim prognosis\, Camie spent years traveling to access the best therapies and medical services to help him recover\, ultimately moving across the country—from Washington\, D.C.\, to Tennessee\, and then to Southern California\, where she now resides with her family. She dedicates her time to supporting other families in the disability community as the Communications Director for the International Alliance for Pediatric Stroke and co-founder of the KISS Pediatric Stroke Support Facebook group. Camie is also a school representative for her local Special Education Local Plan Area\, a founder of the Special Education Parent Advisory Committee for her school district\, and a graduate of an Emerging Leadership Program for disability advocates. She brings a unique and personal perspective on trauma\, advocacy\, and the importance of community for families living with lifelong medical conditions. \nNaomi D. Williams is a perfectly imperfect person on a mission to empower individuals and families to live their best life\, now. As a Life Doula\, she helps people navigate and process major life-altering events. Naomi believes anyone and everyone can and should lead an exceptional life. She is the proud mother of a former 26-week preemie who lives with a host of diagnoses that fall under the primary umbrella of spastic quadriplegia cerebral palsy. She uses her and her son’s past and present experiences to inform and partner with healthcare systems as they live out the consequences of not being considered a valuable member of their care team. Naomi is the author of And God Remembered Noah: A mother’s heart-opening journey through 22 weeks in the NICU. When not advocating for her family or others\, you can find Naomi getting lost exploring nature or taking a deep breath on her yoga mat. Find her at exceptionalliving101.org \, Noahland.Art\, or LinkedIn. \nHosted by:\nAudrey Vernick\, the Director of Patient and Family Advocacy for the Pediatric Epilepsy Surgery Alliance\, draws from her personal experience navigating her son Bennett’s medical journey after he suffered a prenatal stroke. Following years of treatment for chronic infantile spasms\, he underwent a right hemispherectomy. However\, the journey has not been easy. She understands the challenges families face in the aftermath of life-altering medical events. \n\nThis Power Hour is a collaboration between the Pediatric Epilepsy Surgery Alliance\, the International Alliance for Pediatric Stroke\, the Child Neurology Foundation\, and the Courageous Parents Network. \n \n\n \nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n \nPower Hour sessions are brought to you by our corporate sponsor UCB. \nWe are grateful for their support!
URL:https://epilepsysurgeryalliance.org/event/power-hour-making-it-to-monday-a-conversation-on-medical-trauma-resilience-and-community/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/8.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250327T100000
DTEND;TZID=America/New_York:20250327T110000
DTSTAMP:20260504T064045
CREATED:20250312T134728Z
LAST-MODIFIED:20250312T134728Z
UID:19954-1743069600-1743073200@epilepsysurgeryalliance.org
SUMMARY:Central Auditory Processing Disorder After Pediatric Epilepsy Surgery
DESCRIPTION:Epilepsy surgeries that remove or disconnect the temporal lobe\, including hemispheric procedures\, will result in central auditory processing disorders for the child. This can impact how they hear conversations in noisy environments\, learn to read\, and cross the street. \nWe are amplifying the voice of our community to audiologists from around the world by presenting research on Central Auditory Processing After Pediatric Epilepsy Surgery. \n\nLead Presenter: Frank E. Musiek\, PhD – Professor Ret.\, University of Arizona\, member\, Scientific Advisory Board\, Pediatric Epilepsy Surgery Alliance \nPresenter: Monika A. Jones\, JD – Founder and Executive Director\, Pediatric Epilepsy Surgery Alliance
URL:https://epilepsysurgeryalliance.org/event/central-auditory-processing-disorder-after-pediatric-epilepsy-surgery/
LOCATION:Ernest N. Morial Convention Center\, 900 Convention Center Blvd\, New Orleans\, LA\, 70130\, United States
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/IMG_child_covering_ears_1200x600.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250314T120000
DTEND;TZID=America/New_York:20250314T130000
DTSTAMP:20260504T064045
CREATED:20250307T064011Z
LAST-MODIFIED:20250417T220951Z
UID:19924-1741953600-1741957200@epilepsysurgeryalliance.org
SUMMARY:The Life-Saving Nature of Epilepsy Surgery
DESCRIPTION:Epilepsy surgery is not a last resort. \nJoin the Pediatric Epilepsy Surgery Alliance in partnership with DEE-P Connections\, where Dr. Taylor Abel will present the latest research on the life-saving nature of epilepsy surgery. Dr. Abel will review key studies that highlight the effectiveness of surgical interventions for drug-resistant epilepsy and provide expert guidance on when families should consider surgery. \nThis webinar is essential for parents\, caregivers\, and professionals seeking expert insights into epilepsy surgery and its potential to transform lives. \nAbout our speaker:Dr. Taylor Abel is a leading expert in epilepsy surgery and research. He is the Chief of Pediatric Neurosurgery & Surgical Director of the Pediatric Epilepsy Surgery Program at UPMC Children’s Hospital of Pittsburgh\, and a board member of the American Epilepsy Society and the Pediatric Epilepsy Surgery Alliance.
URL:https://epilepsysurgeryalliance.org/event/the-life-saving-nature-of-epilepsy-surgery/
LOCATION:Virtual Workshop
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/The-LIFE-CHANGING-NATURE-OF-EPILEPSY-SURGERY.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250206T150000
DTEND;TZID=America/New_York:20250206T163000
DTSTAMP:20260504T064045
CREATED:20250126T020558Z
LAST-MODIFIED:20250213T225936Z
UID:19795-1738854000-1738859400@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Navigating the Life Stage Checklist for Families
DESCRIPTION:THIS EVENT HAS OCCURRED. YOU CAN WATCH IT HERE: \n\n\n  \nIn this Power Hour\, Growing Together: Navigating the Life Stage Checklist for Families\, our Director of Patient and Family Advocacy\, Audrey Vernick\, walks you through the “Transition to Adulthood/Life Stage Checklist” step-by-step\, breaking down key milestones and actionable steps across critical life stages. From early intervention to adult services\, this comprehensive guide empowers families to feel confident as they prepare for transitions\, access necessary supports\, and advocate effectively. \nThen\, a fantastic parent panel answers questions and shares their lived experiences. They provide insights into navigating challenges such as coordinating care for adults with disabilities and addressing gaps in resources and support. Their stories offer practical advice and encouragement for families facing similar experiences. \nKey resources: \n\nTransition to Adulthood/Life Stage Checklist\nSlide deck with links\nResource list with links from Growing Together Power Hour\nEducational Transition For Youth With Neurological Conditions Guide \nTransition Roadmap for Youth with Neurological Conditions\nThe (Almost) Everything List\n\nThank you to our webinar partners: Angelman Syndrome Foundation\, DEE-P Connections\, and the Rare Epilepsy Network.\n\nWe are grateful for UCB’s continued support of our transition resources. \n \n \nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n 
URL:https://epilepsysurgeryalliance.org/event/power-hour-navigating-the-life-stage-checklist-for-families/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/01/Untitled-Presentation.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241106T150000
DTEND;TZID=America/New_York:20241106T160000
DTSTAMP:20260504T064045
CREATED:20240308T225832Z
LAST-MODIFIED:20250122T044233Z
UID:19350-1730905200-1730908800@epilepsysurgeryalliance.org
SUMMARY:What About My Other Kids?
DESCRIPTION:THIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\nWhat about my other kids? Navigating the dynamics of sibling relationships in families of children with pediatric epilepsy\nWhen you have a child that requires constant supervision and care\, how\, as a parent\, do you balance this with the needs of your other children? How do you support your “neurotypical” children when they have experienced the trauma of meltdowns\, rage episodes\, and frequent hospitalizations of their brother or sister? How do you help them understand their sibling’s illness without feeling as though you are creating a double standard or excuses for unacceptable behavior? And how do you balance all your children’s needs when one of them requires everything you have to give? Join us for a deep dive into this complex issue of sibling relationships in families of children who have pediatric epilepsy surgery. \n\nAbout our speaker: \nEileen Devine\, LCSW \n \nEileen has over a dozen years of clinical experience and is the adoptive mother of a child with fetal alcohol syndrome. She believes that kids do well if they can and that when we understand how a child’s brain works\, we understand the meaning behind challenging behaviors. Eileen’s goal is to not only support parents in feeling more competent and confident in connecting with their child by parenting from a brain-based perspective but also to recognize their experience as the parent of a child with challenging behavioral symptoms and their impact on their sense of self and well-being. When these two sides of the neurobehavioral coin can be equally addressed\, there is less frustration and increased hope in this unique parenting journey. \nEileen is a licensed Clinical Social Worker and is a certified facilitator in the teaching and application of the neurobehavioral model\, as developed by FASCETS founder Diane Malbin. She has also completed Tier 1 training in Think:Kids Collaborative Problem Solving. Eileen is an instructor for the Post-Master’s Certificate in Adoption and Foster Therapy through Portland State University’s Child Welfare Partnership\, training other therapists on the neurobehavioral model. \nFounder of the Brain First Parenting Program and The Resilience Room  \nTune in! Brain First Parenting Podcast Mini-Series \n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment!
URL:https://epilepsysurgeryalliance.org/event/what-about-my-other-kids/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/03/Copy-of-Blog-Post-or-Image-1200-x-630-1200-x-630-px-1.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241026T173000
DTEND;TZID=America/New_York:20241026T200000
DTSTAMP:20260504T064045
CREATED:20240817T221954Z
LAST-MODIFIED:20241021T165546Z
UID:19534-1729963800-1729972800@epilepsysurgeryalliance.org
SUMMARY:Give for Hope ™ Boo Bash
DESCRIPTION:THIS EVENT HAS BEEN CANCELLED \n  \n  \nJoin us at the beautiful French Embassy in Washington\, DC! This event kicks off our annual Give for Hope™ campaign to benefit Dreams for Danny – our surgical evaluation travel scholarship. This financial aid program provides up to $1\,000 in travel costs for families who seek a pediatric epilepsy surgery evaluation at a level 4 facility more than fifty miles from their home. \nCostumes or cocktail attire encouraged. \n\nTickets are $125 for adults\, free for children.\nVIP Table – $2\,500 (table for ten\, includes mention on social media and at event)\n\nAdmission includes: \n\nTrick or treat stations\, face painting\, and character actors.\nFrench hot and cold canapés\, pizza for the kids\, beverages\, and a table of French desserts. Cash bar includes a selection of exquisite French wines.\nCorporate sponsorship opportunities are available. Download our prospectus to see all the incredible ways you can support our community: Boo Bash 2024 Corporate Sponsorship Prospectus (PDF)\nReady to sponsor or book your VIP table?? Complete this online support form.\nDon’t forget to set up your own peer-to-peer fundraiser! It’s easy and a fun way to raise critical funds for this important program. Start your fundraiser here today.\n\nI MPORTANT \n\nThere is no onsite parking at the French embassy except for disability access. If you require a disabled parking space\, please contact bcarver@epilepsysurgeryalliance.org. We will follow up with disabled access information for you.\nLimited street parking can be found on Reservoir Road. The embassy encourages you to use taxi/Uber/Lyft\, public transit\, or ride sharing.\nDoors open at 5:30 p.m. Please allow extra time for security check in.\nYou will need a valid photo I.D. and your Eventbrite ticket (printed or ready on your phone) to get into the embassy.\nDue to security reasons\, your name must match the name on the Eventbrite ticket. All tickets must have a corresponding name.\nPlease be advised that for security reasons\, embassy staff cannot allow large bags\, backpacks\, or bike helmets into the embassy.\n\n 
URL:https://epilepsysurgeryalliance.org/event/give-for-hope-boo-bash-3/
LOCATION:French Embassy\, 4101 Reservoir Rd NW\, Washington\, DC\, 20007\, United States
CATEGORIES:Fun,Fundraiser
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/08/Eventbrite-Header-2024.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240912T120000
DTEND;TZID=America/New_York:20240912T130000
DTSTAMP:20260504T064045
CREATED:20240514T232707Z
LAST-MODIFIED:20250109T004122Z
UID:19433-1726142400-1726146000@epilepsysurgeryalliance.org
SUMMARY:Future Planning for Siblings
DESCRIPTION:Siblings are often in line to be the default caregiver for their brother or sister with special needs. This webinar will explore what this responsibility means for you and discuss alternative paths available. What can you do now to plan for distributing support effectively\, ensuring your loved one receives a person-centered plan that caters to all their needs? Learn how siblings can be involved in a loving and caring manner while maintaining their own lives\, and explore ways in which friends and family can offer supportive assistance. Don’t miss out on valuable insights into future planning for siblings and families. \n\nAbout our speaker: \nKristin Carleton \n \nBefore co-founding All Needs Planning\, Kristin spent over three years as Vice President of Financial Planning and Investments at James River Wealth Advisors in Midlothian\, Virginia. She was a founder and director of the special needs planning organization Eli’s Village in Richmond\, Virginia. Kristin also worked extensively in the financial services field as an advisor and a Registered Client Service Assistant\, among other roles. She has dedicated her life to building plans to help ensure that every family\, regardless of their situation\, can enjoy fulfilling and capable lives. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment!
URL:https://epilepsysurgeryalliance.org/event/future-planning-for-siblings/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/05/Copy-of-Blog-Post-or-Image-1200-x-630-1200-x-630-px-2.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240812T190000
DTEND;TZID=America/New_York:20240812T200000
DTSTAMP:20260504T064045
CREATED:20240202T055602Z
LAST-MODIFIED:20250109T004430Z
UID:19202-1723489200-1723492800@epilepsysurgeryalliance.org
SUMMARY:Back to School with a 504 Plan or IEP
DESCRIPTION:Please join us for a special “back to school” chat as you prepare to return your child to school.\n\nWe’ll begin by sharing information about our key educational resources for children who have epilepsy\, epilepsy surgery\, or other neurological conditions:\n\nNavigating the IEP Process (course)\nPESA’s Educational Assessments Checklists (spreadsheet)\nPESA’s IEP GoalBank (spreadsheet)\nPESA’s Special Education Resource Guide (spreadsheet)\n\nThen\, we’ll have time for your IEP and 504 Plan questions.\n\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\nWe have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power. \nIf you have to advocate for something for your child\, you must understand it. \nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.
URL:https://epilepsysurgeryalliance.org/event/backtoschool/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/Back-to-School-1200-x-628-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240801
DTEND;VALUE=DATE:20240805
DTSTAMP:20260504T064045
CREATED:20231003T011654Z
LAST-MODIFIED:20240322T143438Z
UID:18867-1722481200-1722740399@epilepsysurgeryalliance.org
SUMMARY:Pediatric Epilepsy Surgery Conference & Family Reunion
DESCRIPTION:SURROUND YOURSELF WITH PEOPLE WHO GET IT\nIf your child has had epilepsy surgery\, or may need it\, this conference is for you. Learn from some of the world’s top neuro-professionals\, educators\, researchers\, rehabilitation clinicians who will present rich sessions on issues related to pediatric epilepsy surgery. \nExhibitors will share their resources for our community and professional childcare is available so that kids have safe and supervised fun. \nJoin hundreds of families from around the world and enjoy two days of learning\, fun\, and fellowship against the backdrop of the beautiful city of Boston. \nAugust 1: RESEARCH MEETING (For invited researchers only) \nAugust 2 – 3: FAMILY CONFERENCE  \n  \nFull Information\nSign up for our newsletter so you never miss an announcement about this conference! \nGet Email Updates\nWhat we did in 2019
URL:https://epilepsysurgeryalliance.org/event/family-and-research-conference/
LOCATION:Boston Sheraton\, 39 Dalton Street\, Boston\, CA\, 02119\, United States
CATEGORIES:Conferences
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/Family-conference.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240610T190000
DTEND;TZID=America/New_York:20240610T200000
DTSTAMP:20260504T064045
CREATED:20240202T054537Z
LAST-MODIFIED:20240202T054537Z
UID:19195-1718046000-1718049600@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-8/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240531T120000
DTEND;TZID=America/New_York:20240531T130000
DTSTAMP:20260504T064045
CREATED:20240305T220325Z
LAST-MODIFIED:20250109T004841Z
UID:19340-1717156800-1717160400@epilepsysurgeryalliance.org
SUMMARY:Understanding Executive Function
DESCRIPTION:Executive function (EF) skills impact a broad range of functional developmental outcomes. For children who have had epilepsy surgery\, executive functioning challenges may impact how your child manages their academic success\, social integration\, motor coordination\, independence in self-care\, and community engagement. Dr. Joffe is an expert in Executive Function assessment and treatment. Join us to learn more about what EF skills are\, how to measure them\, and what to do to improve these skills. \n\nAbout our speaker: \nLindy Joffe \n \nOTD\, OTR/L Doctor of Occupational Therapy (Post-Professional) \nLindy Joffe brings 23 years of experience to pediatric OT work. She completed her doctorate in OT through Boston University’s post-professional program in 2022 and her master’s at Columbia University in 1999. Lindy enjoys working with a range of ages\, from early intervention to adolescents and the occasional adult. She has taken a broad range of courses in sensory integrative principles\, DIR/Floortime techniques\, cognitive perceptual organization\, and Masgutova Neuromuscular Reflex Integration Techniques\, among others. Lindy is particularly interested in how the motor and sensory systems\, particularly the visual-vestibular-auditory triad and underlying reflex systems\, interact with the executive function system to propel an individual’s problem-solving abilities in three-dimensional and two-dimensional space. Lindy believes strongly in taking therapy beyond the clinic walls\, working closely with the child’s team to ensure maximal carry-over of therapeutic techniques into the child’s life. She has taught continuing education courses in sensory integration and problem-solving locally and nationwide. Lindy has a private practice in the San Francisco Bay Area. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n  \n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n  \n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/understanding-executive-function/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/03/Copy-of-Blog-Post-or-Image-1200-x-630-1200-x-630-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240520T190000
DTEND;TZID=America/New_York:20240520T200000
DTSTAMP:20260504T064045
CREATED:20240202T054318Z
LAST-MODIFIED:20240404T015454Z
UID:19194-1716231600-1716235200@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-7/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
END:VCALENDAR