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X-WR-CALDESC:Events for Pediatric Epilepsy Surgery Alliance
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DTSTART;TZID=America/New_York:20250314T120000
DTEND;TZID=America/New_York:20250314T130000
DTSTAMP:20260502T051148
CREATED:20250307T064011Z
LAST-MODIFIED:20250417T220951Z
UID:19924-1741953600-1741957200@epilepsysurgeryalliance.org
SUMMARY:The Life-Saving Nature of Epilepsy Surgery
DESCRIPTION:Epilepsy surgery is not a last resort. \nJoin the Pediatric Epilepsy Surgery Alliance in partnership with DEE-P Connections\, where Dr. Taylor Abel will present the latest research on the life-saving nature of epilepsy surgery. Dr. Abel will review key studies that highlight the effectiveness of surgical interventions for drug-resistant epilepsy and provide expert guidance on when families should consider surgery. \nThis webinar is essential for parents\, caregivers\, and professionals seeking expert insights into epilepsy surgery and its potential to transform lives. \nAbout our speaker:Dr. Taylor Abel is a leading expert in epilepsy surgery and research. He is the Chief of Pediatric Neurosurgery & Surgical Director of the Pediatric Epilepsy Surgery Program at UPMC Children’s Hospital of Pittsburgh\, and a board member of the American Epilepsy Society and the Pediatric Epilepsy Surgery Alliance.
URL:https://epilepsysurgeryalliance.org/event/the-life-saving-nature-of-epilepsy-surgery/
LOCATION:Virtual Workshop
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/The-LIFE-CHANGING-NATURE-OF-EPILEPSY-SURGERY.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230925T170000
DTEND;TZID=America/New_York:20230925T180000
DTSTAMP:20260502T051148
CREATED:20230906T101211Z
LAST-MODIFIED:20230906T101348Z
UID:18785-1695661200-1695664800@epilepsysurgeryalliance.org
SUMMARY:What to Expect at an EMU Stay?
DESCRIPTION:A guide for individuals and their families with epilepsy on how to prepare\, and what to expect during and after an Epilepsy Monitoring Unit (EMU) stay. \nPresented by: \nAmmar Kheder\, MD\, Associate Professor of Neurology and Pediatrics- Epileptologist \nDirector\, Comprehensive Pediatric Epilepsy Center Emory University School of Medicine \nDate: September 25\, 2023 \nTime: 5:00 pm EST/ 4 pm CT/ 2 pm PT \nPA Educators and School Nurses eligible for ACT 48 Credits. \nRegister here \n  \n  \n \n  \n  \nWe’re grateful to It’sYourEpilepsy.com for convening this important webinar.
URL:https://epilepsysurgeryalliance.org/event/what-to-expect-at-an-emu-stay/
LOCATION:Webinar
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/FB-Event-cover.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230719T120000
DTEND;TZID=America/New_York:20230719T130000
DTSTAMP:20260502T051148
CREATED:20230523T005615Z
LAST-MODIFIED:20250109T011302Z
UID:18517-1689768000-1689771600@epilepsysurgeryalliance.org
SUMMARY:Laser Ablation with Dr. Jeffrey Raskin
DESCRIPTION:Laser Ablation – What You Need to Know \nAbout our speaker:\n\nJeffrey S. Raskin\, MS\, MD\, FAAP\, FAANS\, is an assistant professor and board-certified pediatric neurosurgeon. He completed his residency in the Department of Neurological sSrgery at Oregon Health & Science University and fellowship training in pediatric neurosurgery at Texas Children’s Hospital. He maintains specific interests in functional neurosurgery in children and serves as Director of Functional Neurosurgery at Lurie Children’s. Dr. Raskin is a member of the American Association of Neurological Surgeons\, Congress of Neurological Surgeons\, American Association of Pediatrics\, American Society of Pediatric Neurosurgery\, North American Neuromodulation Society\, and associate editor of Operative Neurosurgery. Dr. Raskin’s career goals include promotion to full professor of neurological surgery\, maximizing the national and international reputation of neurosurgical care at Lurie Children’s\, and serving the profession of neurological surgery through national representation. Dr. Raskin enjoys amateur bird watching\, art\, and culture with his wife. \n\nClinical Interests: Epilepsy\, movement disorders\, pain syndromes \n \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/laser-ablation-with-dr-jeffrey-raskin/
LOCATION:Webinar
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/05/Brain-scan-1200-×-628-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T180000
DTEND;TZID=America/New_York:20230412T190000
DTSTAMP:20260502T051148
CREATED:20230328T015135Z
LAST-MODIFIED:20230328T015522Z
UID:18414-1681322400-1681326000@epilepsysurgeryalliance.org
SUMMARY:Diagnóstico de Epilepsia\, Primera Consulta
DESCRIPTION:En este webinar: \n\ncomprenderá la importancia de las características de las personas con epilepsia;\nSe delinearán los aspectos a tener en cuenta para el diagnóstico de epilepsia;\nEntenderá las indicaciones de los estudios solicitados;\nSe resaltará la importancia del diagnóstico correcto de epilepsia.\n\nPresentador: \n\nSebastian Ortiz De la Rosa\, MD\nInstituto Roosevelt\,\nUnidad de Epilepsia\,\nHospital San Jose Infantil
URL:https://epilepsysurgeryalliance.org/event/diagnostico-de-epilepsia-primera-consulta/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/03/Latino-doctor.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230316T180000
DTEND;TZID=America/New_York:20230316T190000
DTSTAMP:20260502T051148
CREATED:20230306T010231Z
LAST-MODIFIED:20230306T015644Z
UID:18365-1678989600-1678993200@epilepsysurgeryalliance.org
SUMMARY:What Doctors Don't Discuss with You and Why
DESCRIPTION:Are you feeling overwhelmed by your epilepsy journey? You are not alone. The process of navigating life with epilepsy or as a caregiver to someone with epilepsy can be very intimidating and feeling like you are as prepared as possible is difficult to achieve. There are only so many things that a doctor can prepare you for and often times it is difficult to follow the medical verbiage that they use so nonchalantly. This webinar will focus on how to gather the resources you are looking for when living with epilepsy. Doctors are wonderful\, but don’t always have time to discuss ways to find daily support. If you are interested in learning more about the resources available to you\, join us on Thursday March 16th\, 2023 with our guest speaker Leigh Schommer.
URL:https://epilepsysurgeryalliance.org/event/what-doctors-dont-discuss-with-you-and-why/
LOCATION:Webinar
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/03/Copy-of-Website-Events-Calendar-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230210T140000
DTEND;TZID=America/New_York:20230210T160000
DTSTAMP:20260502T051148
CREATED:20230118T014733Z
LAST-MODIFIED:20250109T035607Z
UID:18156-1676037600-1676044800@epilepsysurgeryalliance.org
SUMMARY:Impacts of Epilepsy Surgery for Vision Educators
DESCRIPTION:Are you a vision teacher or orientation & mobility specialist working with students\, mentoring teachers in the field\, or helping teams? Do you want to learn more about students with epilepsy who have had VNS\, hemispherectomy\, or other types of epilepsy surgery?  \nPlease join the Pediatric Epilepsy Surgery Alliance for our live virtual school training session. This training will help vision educators understand the medical and functional effects of epilepsy surgery in childhood – large resective or disconnective procedures like hemispherectomy\, single or multiple lobectomies or disconnections\, corpus callosotomy\, or neuromodulation devices.  This training will focus on the impacts of epilepsy and epilepsy surgery on a child’s vision and mobility. We will also address other areas of impact\, as these children can be quite complex and may need myriad supports. \nThis training session will cover: \n\nAn understanding of ongoing seizures and drug-resistant epilepsy\,\nThe different surgeries/procedures and their descriptions\,\nThe impact(s) of the various procedures.\n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n  \nMeet your trainer:\n \nMonika Jones\, JD\, is the visionary founder and executive director of the Pediatric Epilepsy Surgery Alliance. \nShe is: \n\nPrincipal investigator: Scientific Symposium on rehabilitation after hemispherectomy under a grant from the National Institutes of Health (2014); \nPrincipal investigator: Research meeting on functional outcomes after large resective/disconnective pediatric epilepsy surgery (2019) held in 2019; \nPrincipal investigator: Global Pediatric Epilepsy Surgery Registry;\nCo-Author: Disparities in Multi-Disciplinary Rehabilitation after Cerebral Hemispherectomy: A Patient-Centered Report from the Global Pediatric Epilepsy Surgery Registry; Etiology and Age Modifies Subjective Visual Function After Cerebral Hemispherectomy; Long-term patient reported outcomes of visual field defects and compensatory mechanisms in patients after cerebral hemispherectomy; Endocrine dysfunction after pediatric epilepsy surgery: a report from the Global Pediatric Epilepsy Surgery Registry; Knowledge gaps for functional outcomes after multilobar resective and disconnective pediatric epilepsy surgery: Conference Proceedings of the Patient-Centered Stakeholder Meeting 2019; Functional cognitive and language outcomes after cerebral hemispherectomy for hemimegalencephaly; Epilepsy Benchmarks IV: Limit or prevent adverse consequences of seizures and their treatments across the lifespan; Orthopedic impairments after hemispherectomy; Epilepsy community at an inflection point: translating research toward curing the epilepsies and improving patient outcomes\nMember\, CVI (Cortical Visual Impairment) CoLab (with C. Roman Lansky\, G. Dutton\, Perkins School for the Blind);\nMember: Education Committee\, Perkins School for the Blind; Board of Directors\, Council of Parent Attorneys and Advocates; Rare Epilepsies Network Steering Committee; Epilepsy Leadership Council; Infantile Spasms Action Network;\nMother to a child who had hemispherectomy at three months old; has met over 800 children who have had epilepsy surgery.
URL:https://epilepsysurgeryalliance.org/event/impacts-of-epilepsy-surgery-for-vision-educators/
LOCATION:Virtual Workshop
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/01/School-Training-for-Vision-Educators-Impacts-of-Epilepsy-Surgery.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230126T180000
DTEND;TZID=America/New_York:20230126T200000
DTSTAMP:20260502T051148
CREATED:20230124T182945Z
LAST-MODIFIED:20230124T190037Z
UID:18192-1674756000-1674763200@epilepsysurgeryalliance.org
SUMMARY:Seizing Hope virtual film screening
DESCRIPTION:Can new technology bring hope to children who have drug-resistant epilepsy?\nThe Pediatric Epilepsy Surgery Alliance was thrilled to co-host the USA Premiere of Seizing Hope: High Tech Journeys in Pediatric Epilepsy at the 2022 American Epilepsy Society Annual Meeting.  \nNow you have an opportunity to view this film during a virtual screening event with the Divisions of Bioethics and Pediatric Neurology at Columbia University. \nYou can register for this screening here! \nMore than 500\,000 children in Canada and the USA have epilepsy. About a third of those children continue to have seizures despite taking anti-seizure medications\, also known as pediatric drug-resistant epilepsy (DRE). Surgery may be one option for them\, but what if there is another option that is less invasive or more effective? What if new technology can bring hope to children who have DRE? \nThis mini-documentary is about hope for children and their families in mitigating and treating pediatric drug-resistant epilepsy (DRE). It is a story about how families learn to trust their medical team\, educate them\, and help them consider neurotechnology options for their child. It is a story about empowerment as loved ones shed light on the ethical factors that led to their decisions. In doing so\, they empower other families that face similar challenges. It is a story of how children and families affected by DRE can seize hope in times of darkness for a better quality of life. \nIn a world guided by the promises of technology\, the goal of Seizing Hope is to raise awareness about the options offered by different technologies specifically for the brain in complement or as an alternative to treatment with medication. The purpose of this documentary is to empower and improve decision-making by exploring values and priorities through the lens of the families and doctors who care for them. The stories of four families with children with pediatric DRE were compiled to shed light on their hope\, trust\, and empowerment journey. The views and research presented in this documentary represent a multi-year neuroethics project funded by the National Institute of Mental Health of the USA National Institutes of Health\, BRAIN Initiative. \nLearn more at https://www.seizinghopefilm.com/ \nFor upcoming screenings: https://neuroethics.med.ubc.ca/seizing-hope-high-tech-journeys-in-pediatric-epilepsy/#shscreenings \nFor more pediatric drug-resistant epilepsy and neurotechnological treatments resource materials\, please visit:  \n\nNIH Epilepsy Resources (Neuroethics Canada)\n\nAnd the resources from the Pediatric Epilepsy Surgery Alliance: \n\nAbout Epilepsy Surgery\nThe Risks of Drug-Resistant Seizures In Childhood \nThe Surgical Evaluation Process \nUnderstanding the decision-making process around RNS\, VNS\, and DBS \nNeurostimulation devices for pediatric seizures – What’s New?  \nDeep Brain Stimulation\nResponsive Neurostimulation (RNS) \nVagus Nerve Stimulation (VNS)
URL:https://epilepsysurgeryalliance.org/event/seizing-hope-virtual-film-screening/
LOCATION:Webinar
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/01/Neuroethics-Canada.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221130T150000
DTEND;TZID=America/New_York:20221130T160000
DTSTAMP:20260502T051148
CREATED:20221126T153745Z
LAST-MODIFIED:20250102T190958Z
UID:18022-1669820400-1669824000@epilepsysurgeryalliance.org
SUMMARY:Epilepsy surgery and rare genetic epilepsies
DESCRIPTION:When should you consider epilepsy surgery for your child’s rare genetic epilepsy? Join Dr. Ahmad Marashly\, Medical Director\, Pediatric Epilepsy Surgery Program\, Johns Hopkins Hospital\, and Monika Jones\, founder and Executive Director of the Pediatric Epilepsy Surgery Alliance (and rare epilepsy mom) to learn about: \n– an overview of surgery\n– the growing body of medical literature that supports brain surgery or neuromodulation for both palliative and sometimes curative surgery\n–the genetic disorders that cause refractory epilepsy including ion channel dysfunction\, sodium channel mutations. mTOR pathway and other conditions.
URL:https://epilepsysurgeryalliance.org/event/epilepsy-surgery-and-rare-genetic-epilepsies/
LOCATION:Webinar
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/11/Copy-of-Website-Events-Calendar-Image.png
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