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X-WR-CALNAME:Pediatric Epilepsy Surgery Alliance
X-ORIGINAL-URL:https://epilepsysurgeryalliance.org
X-WR-CALDESC:Events for Pediatric Epilepsy Surgery Alliance
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DTSTART;TZID=America/New_York:20221013T120000
DTEND;TZID=America/New_York:20221013T130000
DTSTAMP:20221012T165727Z
CREATED:20221012T163348Z
LAST-MODIFIED:20221012T165727Z
UID:17865-1665662400-1665666000@epilepsysurgeryalliance.org
SUMMARY:Power Hour
DESCRIPTION:We have a mantra at The Brain Recovery Project: Knowledge is power. If you have to advocate for something for your child\, you must understand it.\n\nPower Hour is for caregivers advocating for the needs of a child anywhere on the epilepsy surgery journey. Come with any questions about education\, transition to adulthood\, connecting to financial or medical resources\, housing options\, epilepsy surgery\, dealing with postoperative hydrocephalus or shunt issues\, or any other concern. We will have open forums where parents can learn from each other during the session and topic-specific sessions with specialists in the field. Sessions will be monitored by our Director of Patient and Family Advocacy. Power Hour is only for parents or primary caregivers of children (including adult children) who have had or are considering epilepsy surgery.\n\n\nPLEASE NOTE! YOU MUST REGISTER IN ADVANCE!
URL:https://epilepsysurgeryalliance.org/event/power-hour-6/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220927T190000
DTEND;TZID=America/New_York:20220927T200000
DTSTAMP:20230316T041633Z
CREATED:20221012T163100Z
LAST-MODIFIED:20230316T041633Z
UID:17874-1664305200-1664308800@epilepsysurgeryalliance.org
SUMMARY:School-Based Audiology Assessments and Interventions After Epilepsy Surgery
DESCRIPTION:Often\, parents express concern about their child’s ability to learn. They may struggle with attention or behavior issues in the classroom setting. It’s important to consider the impacts of a central auditory processing disorder for a child after a temporal lobectomy\, hemispherectomy/hemispherotomy\, TPO (temporal-parietal-occipital lobectomy)\, or a corpus callosotomy. \nEven if your child has received a proper audiological evaluation and a diagnosis of a central auditory processing disorder\, sometimes the school doesn’t know how to best support the child. \nPlease join us for a special Power Hour with Clinical and Educational Audiologist Amanda Levy\, Au.D.\, and Daphne Magdaleno\, parent to a child with a hemispherectomy\, to discuss school-based audiology assessments and interventions. \nDr. Levy will discuss functional listening evaluations and acoustical evaluations of the classroom. Both presenters will discuss what parents can do to help educate and encourage your school’s audiologist to learn more about their child’s epilepsy surgery and its impacts. This session will be moderated by our Director of Patient and Family Advocacy\, Audrey Vernick. \nThis session is NOT an overview of central auditory processing disorder after epilepsy surgery. \nPlease review our previous content on this topic to be prepared for this session: \n\nAn Introduction To Cortical Auditory Impairment After Hemispherectomy\, TPO\, or Temporal Lobectomy\nStrategies for Cortical Auditory Impairment After Hemispherectomy\nWhat do I need to know about Central Auditory Processing Disorder?\n\nPresentations from our Pediatric Epilepsy Surgery Conferences: \n\n\n\nHearing After Hemispherectomy (Dr. Frank Musiek\, 2016)\nHow the Brain Hears (Dr. Frank Musiek\, 2019)\n\n\n\n\n\n\n\nPresentation slides\n\n\n\n\n\nAdditional resources:\n\n\n\nThe International Guild of Auditory Processing Specialists (IGAPS) has a directory of professionals who assess and treat auditory processing disorders.\nClassroom Acoustics (The American Speech and Hearing Association/ASHA)\nThe difference between auditory processing disorder and ADHD (Understood.com)\nDichotic listening after cerebral hemispherectomy: methodological and theoretical observations (de Bode 2007)\nChanges in Central Auditory Processing Following Temporal Lobectomies in Children (Cranford 1996)\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/school-based-audiology-assessments-and-interventions-after-epilepsy-surgery/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/audiology-PH-event-image.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220818T200000
DTEND;TZID=America/New_York:20220818T210000
DTSTAMP:20221012T165753Z
CREATED:20221012T162922Z
LAST-MODIFIED:20221012T165753Z
UID:17864-1660852800-1660856400@epilepsysurgeryalliance.org
SUMMARY:Power Hour
DESCRIPTION:We have a mantra at The Brain Recovery Project: Knowledge is power. If you have to advocate for something for your child\, you must understand it.\n\nPower Hour is for caregivers advocating for the needs of a child anywhere on the epilepsy surgery journey. Come with any questions about education\, transition to adulthood\, connecting to financial or medical resources\, housing options\, epilepsy surgery\, dealing with postoperative hydrocephalus or shunt issues\, or any other concern. We will have open forums where parents can learn from each other during the session and topic-specific sessions with specialists in the field. Sessions will be monitored by our Director of Patient and Family Advocacy. Power Hour is only for parents or primary caregivers of children (including adult children) who have had or are considering epilepsy surgery.\n\n\nPLEASE NOTE! YOU MUST REGISTER IN ADVANCE!
URL:https://epilepsysurgeryalliance.org/event/power-hour-4/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220802T120000
DTEND;TZID=America/New_York:20220802T130000
DTSTAMP:20221012T165819Z
CREATED:20221012T162832Z
LAST-MODIFIED:20221012T165819Z
UID:17863-1659441600-1659445200@epilepsysurgeryalliance.org
SUMMARY:Power Hour
DESCRIPTION:We have a mantra at The Brain Recovery Project: Knowledge is power. If you have to advocate for something for your child\, you must understand it.\n\nPower Hour is for caregivers advocating for the needs of a child anywhere on the epilepsy surgery journey. Come with any questions about education\, transition to adulthood\, connecting to financial or medical resources\, housing options\, epilepsy surgery\, dealing with postoperative hydrocephalus or shunt issues\, or any other concern. We will have open forums where parents can learn from each other during the session and topic-specific sessions with specialists in the field. Sessions will be monitored by our Director of Patient and Family Advocacy. Power Hour is only for parents or primary caregivers of children (including adult children) who have had or are considering epilepsy surgery.\n\n\nPLEASE NOTE! YOU MUST REGISTER IN ADVANCE!
URL:https://epilepsysurgeryalliance.org/event/power-hour-3/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220622T200000
DTEND;TZID=America/New_York:20220622T210000
DTSTAMP:20230316T042250Z
CREATED:20221012T162401Z
LAST-MODIFIED:20230316T042250Z
UID:17857-1655928000-1655931600@epilepsysurgeryalliance.org
SUMMARY:Power Hour
DESCRIPTION:We have a mantra at The Brain Recovery Project: Knowledge is power. If you have to advocate for something for your child\, you must understand it.\n\nPower Hour is for caregivers advocating for the needs of a child anywhere on the epilepsy surgery journey. Come with any questions about education\, transition to adulthood\, connecting to financial or medical resources\, housing options\, epilepsy surgery\, dealing with postoperative hydrocephalus or shunt issues\, or any other concern. We will have open forums where parents can learn from each other during the session and topic-specific sessions with specialists in the field. Sessions will be monitored by our Director of Patient and Family Advocacy. Power Hour is only for parents or primary caregivers of children (including adult children) who have had or are considering epilepsy surgery.\n\n\nPLEASE NOTE! YOU MUST REGISTER IN ADVANCE!
URL:https://epilepsysurgeryalliance.org/event/power-hour-2/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220608T120000
DTEND;TZID=America/New_York:20220608T130000
DTSTAMP:20230316T042216Z
CREATED:20220602T204044Z
LAST-MODIFIED:20230316T042216Z
UID:17482-1654689600-1654693200@epilepsysurgeryalliance.org
SUMMARY:Power Hour
DESCRIPTION:We have a mantra at The Brain Recovery Project: Knowledge is power. If you have to advocate for something for your child\, you must understand it.\n\nPower Hour is for caregivers advocating for the needs of a child anywhere on the epilepsy surgery journey. Come with any questions about education\, transition to adulthood\, connecting to financial or medical resources\, housing options\, epilepsy surgery\, dealing with postoperative hydrocephalus or shunt issues\, or any other concern. We will have open forums where parents can learn from each other during the session and topic-specific sessions with specialists in the field. Sessions will be monitored by our Director of Patient and Family Advocacy. Power Hour is only for parents or primary caregivers of children (including adult children) who have had or are considering epilepsy surgery.\n\n\nPLEASE NOTE! YOU MUST REGISTER IN ADVANCE!
URL:https://epilepsysurgeryalliance.org/event/power-hour/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220428T190000
DTEND;TZID=America/New_York:20220428T200000
DTSTAMP:20230315T181521Z
CREATED:20220417T111002Z
LAST-MODIFIED:20230315T181521Z
UID:17269-1651172400-1651176000@epilepsysurgeryalliance.org
SUMMARY:AAC and Literacy After Epilepsy Surgery
DESCRIPTION:Some children in our community use augmentative and alternative communication (AAC) devices to communicate with others. Many parents wonder if proper reading instruction is part of their education. \n\n \n\nDoes your team know how to measure your child’s progress using AAC?\nDoes your team know how to support and model AAC use for your child throughout the day?\nHow does your child demonstrate knowledge and communicate during shared reading\, writing\, and word study?\nIs your team trained to use AAC?\nIs AAC used in other learning parts of the day?\n\n\n\nPlease join us as Dr. Stephanie Spadorcia helps us untangle some of these questions and more. \nStephanie Spadorcia\, Ph.D. is Associate Dean of the Graduate School of Education\, Associate Professor of Literacy and Special Education\, and Director of the Teacher Residency Programs at Lesley University in Cambridge\, MA.  She teaches courses in assessment\, instructional methods for reading and writing\, technology integration\, and literacy instruction for children with disabilities. She has worked with teachers on literacy and assessment initiatives in schools in New England and across the country. To learn more about Dr. Spadorcia\, go to https://www.stephaniespadorciaconsulting.com. \nDr. Stephanie Spadorcia \nWhat we discussed: \n\nWhat are literacy and communication?\nWhat is the difference between AT (assistive technology) and AAC (augmentative and alternative communication (AAC)?\nWhat is the emergent literacy model?\nWhat should reading instruction include?\nIs there dedicated instructional time in your child’s day\, every day\, for reading\, writing\, listening\, and communicating?\nAre there IEP goals that address all four of these areas?\nIs AAC use interwoven throughout the day in all four of these areas?\nHow do you teach a nonverbal or minimally verbal child to read?\nWhat about assessment or measuring progress?\n\nEssential Components of Daily Literacy Instruction: \n\nWord work\nComprehension\nWriting\nIndependent reading time\n\nDr. Spadorcia recommended 90-120 minutes of literacy instruction PER DAY in a child’s schedule that includes these 4 components. These minutes can be spread throughout the day. \nSuggested Assessment Tools: \n\nDevelopmental Writing Scale\n\nThe Developmental Writing Scale: A New Progress Monitoring Tool for Beginning Writers (Sturm 2012)\nThe Power of the Developmental Writing Scale (video)\nEffective Writing Instruction for Students with Developmental Disabilities: Curriculum\, Measurement\, and Accommodations\nUsing the Developmental Writing Scale for Writing Assessment | Jane Farrall Consulting\nWhat can assessment look like? (Alternative Pencils)\n\n\nMaze activity\n\nOn Progress Monitoring\, Maze Tests\, and Reading Comprehension Assessment (Reading Rockets)\n\n\nCloze activity\n\nUtilizing a Cloze Activity to Promote Decoding | Literacy for Students with Cognitive Disabilities\nDeveloping Fluent Readers (Reading Rockets)\n\n\nDevelopmental Spelling Test\n\nAssess the Child\, Find the Phase J. Richard Gentry – PDF Free Download\nDevelopmental Spelling Test – Teaching All Learners (Boston Public Schools)\nThe Gentry Developmental Spelling Test\nDeveloping a Written Productivity Profile: Conducting a Developmental Spelling Analysis (Montgomery Schools\, MD)\n\n\nInformal Reading Inventory\n\nInformal Reading Inventory (Qualitative Reading Inventory) (Reading Rockets)\nA Critical Analysis of Eight Informal Reading Inventories (Reading Rockets)\n\n\nWord identification assessment (Literacy Instruction for Individuals with Autism\, Cerebral Palsy\, Down Syndrome\, and Other Disabilities\, Penn State\, Janice Light & David McNaughton)\n\nResources Shared by Dr. Spadorcia: \n\nAAC Intervention (Caroline Musselwhite)\nAlternative Pencils | Center for Literacy and Disability Studies\nCenter for Literacy and Disability Studies\nEmergent Literacy model:\n\nTeale\, W.\, Sulzby\, E. Emergent Literacy: Writing and Reading. 1986 Norwood\, NJ: Ablex\nEmergent literacy (The Edmonton Regional Learning Consortium/ERLC)\nEmergent Literacy (Emilia Ferreiro\, The StateUniversity.com Education Encyclopedia)\n\n\nLiteracy and Disabilities – Stephanie Spadorcia Consulting\nMayer-Johnson PCS for Clicker : Spectronics – Inclusive Learning Technologies\nProloquo2Go – AAC app with symbols\nWhat are some types of assistive devices and how are they used? | NICHD\nRick Creech\, speech therapist and AAC specialist who was born with cerebral palsy. See also Reflections from a Unicorn (Creech 1992)
URL:https://epilepsysurgeryalliance.org/event/aac-and-literacy/
LOCATION:Virtual Workshop
CATEGORIES:Past events
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/04/Copy-of-AAC.png
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